Finance Score: 7
Governance Score: 6
Support Score: 8
  • Liabilities <10%: +3
  • Income diversified: +3
  • Large legacies income: +1
  • Good trustee age range: +3
  • Gender balanced board: +3
  • Grant maker support: +8
Overall GiG Score: 21 ?

HUNTINGTONS DISEASE ASSOCIATION 

Relief and treatment of those suffering from or believed to be suffering from Huntington's Disease and to provide support to them and their families. The Association also sponsors research and is involved in disseminating the results of research.
Analysis by Giving is Great

Positives:

  • The charity has received backing from multiple prominent grant makers, including a Community Foundation, recently
  • This charity has a robust balance sheet
  • Income generation is well diversified
  • This charity has received considerable income from legacies in recent years
  • There have been no material income shortfalls in recent years
  • The Board appears to be well diversified in terms of age and gender
Established: 37 years

www.hda.org.uk

info@hda.org.uk

01513315444

Charity Commission for England and WalesCompanies HouseFacebookInstagramX
UN SDGs
?

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/03/23£2,004£2,035£-31£293£2,384£2,15812.741200
31/03/22£2,166£1,420£747£220£2,489£2,40620.3335,000
31/03/21£1,880£1,301£579£183£1,746£1,69015.633700
31/03/20£1,681£1,581£100£178£1,089£1,060834700
31/03/19£1,765£1,684£81£187£1,028£1,0057.237800
31/03/18£1,678£1,733£-55£200£940£9476.6360
31/03/17£1,532£1,521£11£180£1,009£8766.9350
31/03/16£1,678£1,592£86£173£935£8106.1360
31/03/15£1,390£1,574£-184£160£872£8546.5350
31/03/14£1,394£1,390£4£133£1,015£9908.5320
31/03/13£1,779£1,342£438£109£996£9568.5320
31/03/12£1,267£1,229£37£110£547£5345.2310
31/03/11£1,310£1,160£150£111£514£4664.8290
31/03/10£1,130£1,092£38£99£359£3043.3280
31/03/09£1,168£1,182£-14£74£289£2552.6290
31/03/08*£1,057£1,204£-147£77£342£1901.9320
31/03/07*£1,031£946£85£69£508£3254.1290
31/03/06*£1,068£1,082£-14£0£0£0n/a00
31/03/05£819£825£-6£0£0£0n/a00
31/03/04£682£743£-61£0£0£0n/a00

Financial Ratios
Fundraising Costs/Relevant Income: 15.1%
Fundraising Costs/Total Spending: 14.4%
Senior Staff Costs/Total Spending: 4%
Highest pay band: £70,000-£80,000
Liabilities/Assets: 6%
Liabilities/Income: 8%
Unrestricted Funds/Total Funds: 91%
Reserves/Spending: 12.7 months
Net Current Assets/Spending: 9 months
Quick Ratio: 8
Asset Split ?
What it does
  • Disability
  • Education/Training
  • The Advancement Of Health Or Saving Of Lives
  • The Prevention Or Relief Of Poverty
Who works here?
  • 41 employees
  • 200 volunteers
Who it helps
  • Children/Young People
  • Elderly/Old People
  • Other Charities Or Voluntary Bodies
  • Other Defined Groups
  • People Of A Particular Ethnic Or Racial Origin
  • People With Disabilities
How it operates
  • Makes Grants to Individuals
  • Makes Grants to Organisations
  • Provides advocacy/advice/information
  • Provides human resources
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Throughout England And Wales,

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
National Lottery Community Fund£418,360
DCMS£84,131
Garfield Weston Foundation£35,000
Cheshire Community Foundation£10,000
Specific Donations
Amount When
Months
To be used for
National Lottery Community Fund - Huntington’s Disease Youth Engagement Service (HDYES)
£418,360 27/03/2023
This funding will enable the project to develop and grow its existing youth engagement service to reach more children and young people affected by Huntington’s Disease at the earliest opportunity.
Cheshire Community Foundation - Specialist Huntington's Disease Advisory service - Cheshire and Warrington
£2,500 07/09/2022
Specialist Huntington's Disease Advisory service - Cheshire and Warrington
Sir Jules Thorn Charitable Trust - Huntington's Disease Association - 01/09/21
£1,750 21/09/2021
Core Funding
Garfield Weston Foundation - Main Grants award
£20,000 16/07/2021
Specialist Huntington's Disease Advisory Service - North West
Cheshire Community Foundation - Cheshire Specialist Huntington's Disease Advisory Service
£7,500 25/06/2021
The Huntington’s Disease Association is the only organisation dedicated to supporting families affected by Huntington’s disease, a devastating terminal neurological condition of the central ....more
DCMS - Coronavirus Community Support Fund
£80,976 05/08/2020
"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more
BBC Children in Need - Grant to Huntingtons Disease Association
£3,155 17/06/2020
6
COVID19 - This grant will provide children with Huntingtons Disease, and their families, additional online support and workbooks to enable children and young people to feel less isolated due to the ....more
City Bridge Trust - Grant to Huntington's Disease Association
£8,589 01/06/2020
A grant of £8,589 to fund the essential and urgent costs outlined in the appliciation, so that the organisation can carry on providing support to Londoners.
DCMS - VSCE CMC Fund
£3,155 01/06/2020
NET, Comic Relief and Children in Need will use this funding to provide: increased support to vulnerable people and hidden groups, thus reducing the burden on public services; reach local grassroots ....more
County Durham Community Foundation - Specialist Huntington's Disease Advisory Service County Durham, Darlington & Tees Valley
£2,000 14/04/2020
To support those with Huntington's Disease to cope with impact of coronavirus.
Garfield Weston Foundation - Main Grants award
£15,000 08/05/2019
Specialist Huntington's Disease Association - North & Mid Wales
Cheshire Community Foundation - Specialist Huntington's Disease Adviser - Cheshire
£5,000 23/07/2018
The Huntington’s Disease Association is the only organisation dedicated to supporting families affected by Huntington’s disease (HD) – a devastating terminal neurological condition of the ....more
Essex Community Foundation - Specialist Huntington's Disease Adviser - Alison Heavey
£5,000 01/03/2018
11
Towards the salary of a specialist Huntington's Disease Adviser to support sufferers and their famiies in Essex
London Catalyst - Huntington's Disease Association - 2
£3,000 06/02/2018
Specialist Huntington's Disease Adviser for London - Anna Holmes
Garfield Weston Foundation - Main Grants award
£15,000 09/10/2017
Specialist Huntington's Disease Advisory service for North Wales
BBC Children in Need - Grant to Huntingtons Disease Association
£116,101 14/06/2017
36
This project will fund a specialist Huntington's disease youth worker to work with children and young people across the south who have Huntington's disease or who have a member of the family with ....more
Cheshire Community Foundation - Specialist Huntington's Disease Advisory Service - Cheshire
£7,000 13/03/2017
The Huntington's Disease Association is the only organisation dedicated to supporting families affected by Huntington's disease - a devastating terminal neurological condition of the central nervous ....more
County Durham Community Foundation - Advisory (SHDA) service for the North East of England
£3,000 02/03/2017
To support the continued delivery of a specialist Huntington’s Disease advisory (SHDA) service for the North East of England.
Masonic Trust - Huntington's Advisory Service
£30,000 19/10/2016
Specialist Huntington's Disease Advisory Service - North West. Provides intensive support to people with Huntington's Disease and their families and carers, covering Lancashire and Cumbria.
Birmingham City Council - Regional Care Advisory Service
£15,682 01/04/2016
REGIONAL CARE ADVISORY SERVICE; Health and wellbeing; Adult Social Care & Health Third Sector Grants - Advice & Support
The Rayne Foundation - Grant to Huntington's Disease Association
£60,000 14/03/2016
36
Towards the salary of the Specialist Huntington’s Disease Adviser for Wiltshire and Dorset.
National Lottery Community Fund - North Wales Regional Care Advisory Service
£134,444 29/11/2013
36
The project will support 60 sufferers of HuntingtonÂ’s disease and carers in Anglesey, Gwynedd, Conwy and Denbighshire. Training for carers will improve their confidence in managing the disease. ....more
National Lottery Community Fund - Regional Care Advisory Service
£190,713 16/10/2012
60
This project will continue and expand the current support service to people with Huntington's Disease and their families. Huntington's Disease is a degenerative illness of the central nervous system ....more
National Lottery Community Fund - Regional Care Advisory Service
£370,812 15/06/2011
60
A regional care advisory service for people living with Huntington's Disease in South and West Yorkshire that ceased in 2008 will be restarted and expanded to people on Merseyside. Regional advisors ....more
National Lottery Community Fund - Regional Care Advisory Service for North Wales
£92,282 25/05/2010
36
The project will develop the Regional Care Advisory Service, enabling the organisation to provide specialist care to Huntington's Disease patients, their carers and those at risk of getting the ....more
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (10)
Current Trustees appointed
Gender Split
Based on 9/10 persons

Age Range of Trustees: 25-71
Legal constitution
  • Charitable company registered in England & Wales on 20/03/1987, number: 296453
  • Registered at Companies House on 21/05/1986, number: 02021975
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Filing Record
20 returns made; AR08: 66 days late, AR07: 63 days late, AR06: 93 days late,
Main office

SUITE 24
THE LIVERPOOL SCIENCE PARK
INNOVATION CENTRE 1
131 MOUNT PLEASANT
LIVERPOOL
L3 5TF

Objectives

THE RELIEF AND TREATMENT OF THOSE SUFFERING FROM OR BELIEVED TO BE SUFFERING FROM HUNTINGTON'S DISEASE AND TO PROVIDE FINANCIAL SUPPORT FOR BOTH SUCH PERSONS AND THEIR FAMILIES IN NEED AND FOR RESEARCH AND THE DISSEMINATION OF THE RESULTS OF SUCH RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSE AND POSSIBLE CURES WHETHER PARTIAL OR COMPLETE AND POSSIBLE PREVENTION OF THE SAID DISEASE.

Defined Area of Benefit:

NOT DEFINED

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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