Finance Score: -3

Governance Score: 6

Support Score: 7

Fundraising costs high: -3

Good trustee age range: +3
Dynamic board: +3

Grant maker support: +7

Overall GiG Score: 10

THE SICKLE CELL SOCIETY

Information, counselling, caring and advocacy support for those with sickle cell disorders and their families.

Analysis by Giving is Great

Positives:

There have been no material income shortfalls in recent years
A significant proportion of recent income was derived from major grant makers including the Government
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Regulatory & Governance issues to consider:

Over half the Board have joined recently

Financial issues to consider:

Fundraising costs are high relative to funds raised

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23		£774	£644	£129	£203	£878	£662	12.3	11	30
31/03/22		£872	£677	£195	£198	£749	£601	10.7	13	35
31/03/21		£790	£605	£184	£123	£554	£337	6.7	12	30
31/03/20		£754	£675	£79	£178	£370	£145	2.6	14	21
31/03/19		£617	£654	£-37	£129	£292	£202	3.7	14	35
31/03/18		£588	£578	£10	£121	£329	£225	4.7	12	0
31/03/17		£607	£511	£97	£76	£319	£218	5.1	12	0
31/03/16		£474	£415	£59	£0	£0	£0	n/a	0	0
31/03/15		£324	£309	£15	£0	£0	£0	n/a	0	0
31/03/14		£286	£298	£-11	£0	£0	£0	n/a	0	0
01/04/13		£367	£444	£-78	£0	£0	£0	n/a	0	0
31/03/12		£405	£452	£-47	£0	£0	£0	n/a	0	0
31/03/11	*	£385	£466	£-81	£0	£0	£0	n/a	0	0
31/03/10		£394	£383	£11	£0	£0	£0	n/a	0	0
31/03/09		£340	£338	£2	£0	£0	£0	n/a	0	0
31/03/08		£403	£392	£10	£0	£0	£0	n/a	0	0
31/03/07		£679	£508	£171	£35	£343	£199	4.7	11	0
31/03/06		£522	£505	£17	£0	£0	£0	n/a	0	0
31/03/05		£448	£398	£50	£0	£0	£0	n/a	0	0
31/03/04		£291	£317	£-26	£0	£0	£0	n/a	0	0

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Financial Ratios

Fundraising Costs/Relevant Income: 26.4%
Fundraising Costs/Total Spending: 31.5%
Highest pay band: Less than £60,000
Liabilities/Assets: 16%
Liabilities/Income: 22%
Unrestricted Funds/Total Funds: 75%
Reserves/Spending: 12.3 months
Net Current Assets/Spending: 13 months
Quick Ratio: 4.2

Asset Split ?

Established: 29 years

www.sicklecellsociety.org

info@sicklecellsociety.org

020 8961 7795

Charity Commission for England and Wales

Tweets

Listed activities

Amateur Sport
Arts/Culture/Heritage/Science
Disability
Education/Training
The Advancement Of Health Or Saving Of Lives
The Prevention Or Relief Of Poverty

GiG Classification

General outpatient health-care services

How it operates

Acts as an umbrella or resource body
Makes Grants to Individuals
Provides advocacy/advice/information
Provides human resources
Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

Children/Young People
Elderly/Old People
People Of A Particular Ethnic Or Racial Origin
People With Disabilities
The General Public/Mankind

Who works here?

11 employees
30 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

The Clothworkers Foundation	£50,000
Hackney Council	£41,807
DCMS	£36,752
Garfield Weston Foundation	£30,000
The London Community Foundation	£10,000

Specific Donations

Amount	When Months	To be used for
DCMS - Coronavirus Community Support Fund
£36,752	29/09/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
The Clothworkers Foundation - Grant to Sickle Cell Society
£50,000	27/05/2020	refurbishment of community centre which helps disadvantaged minority communities in Brent
The London Community Foundation - Grant to Sickle Cell Society
£10,000	04/05/2020	Services we can support remotely including our Telephone Helpline & Online Advice/Information service, Volunteer training/support, South London Gives (project to increase the number of blood ....more Services we can support remotely including our Telephone Helpline & Online Advice/Information service, Volunteer training/support, South London Gives (project to increase the number of blood donors registering of black African/black Caribbean heritage) and development of online resources including live workshops for people in South London subsequently uploaded for wider access.
Garfield Weston Foundation - Main Grants award
£30,000	24/01/2020	Sickle Cell Society's Community Hub
Hackney Council - Grant to The Sickle Cell Society
£41,807	28/10/2019 24	To embed a community volunteer led/run programme to enable adults & young people affected by Sickle Cell Disease to better manage their condition & support one another to live healthier, ....more To embed a community volunteer led/run programme to enable adults & young people affected by Sickle Cell Disease to better manage their condition & support one another to live healthier, happier & more independent & fulfilling lives.
National Lottery Heritage Fund - Grant to The Sickle Cell Society
£80,856	29/03/2019	Sickle Cell Disease in the UK: 1950 to the present day
Garfield Weston Foundation - Main Grants award
£5,000	28/11/2017	Helpline & Information Officer Project for those affected by Sickle Cell Disease
National Lottery Community Fund - Sickle Cell Link South London
£280,866	23/03/2016 36	A project to improve the health, well-being and life-chances of people living with Sickle Cell Disorder (SCD) and their families. The scheme will include activity sessions and family days, targeted ....more A project to improve the health, well-being and life-chances of people living with Sickle Cell Disorder (SCD) and their families. The scheme will include activity sessions and family days, targeted support for teenagers including peer-support and trips, volunteering and skills learning. It will also provide information advice and guidance on the best ways to manage the condition, and workshops and information on health and education provision, advocacy, housing and benefits.

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (10)

Current Trustees appointed

Age Range of Trustees: 28-59

DR KILALI BASOENE OMINU-EVBOTA Appointed: 2022

LANRE OGUNDIMU Appointed: 2023, Occupation: Media And Arts Professional

LISETT BROWN Appointed: 2022, Occupation: Retired

CLAUDETTE ALLERDYCE Appointed: 2022, Occupation: Pharmacist

JULIA MCLARTY Appointed: 2023, Occupation: Certified Accountant

NATHAN FORDWOR-HEPBURN Appointed: 2020, Occupation: Civil Servant

ZAINAB GARBA-SANI Appointed: 2022, Occupation: Nhs Manager

CAROL BURT Appointed: 2017, Occupation: Nurse

GANESH SATHYAMOORTHY Appointed: 2017, Occupation: Research Director

MICHELE SALTER (Chair) Appointed: 2022, Occupation: Qualified Accountant/Finance Director, Other trusteeship: ACTION AGAINST MEDICAL ACCIDENTS,

Legal constitution

Charitable company registered in England & Wales on 22/05/1995, number: 1046631
Registered at Companies House on 26/07/1993, number: 02840865

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

20 returns made; AR11: 19 days late,

Main office

SICKLE CELL SOCIETY
54 STATION ROAD
LONDON
NW10 4UA

Objectives

THE CHARITY’S OBJECTS (“OBJECTS”) ARE:(1) THE RELIEF OF PERSONS LIVING WITH SICKLE CELL DISEASE;(2) THE RELIEF OF POVERTY AMONG MEMBERS OF THE IMMEDIATE FAMILY OF PERSONS WHO ARE SUFFERING, OR WHO, IMMEDIATELY BEFORE THEIR DEATH, SUFFERED FROM SICKLE CELL DISEASE;(3) THE PROVISION OF FACILITIES FOR RECREATION OR OTHER LEISURE TIME OCCUPATION FOR SUCH PERSONS AND FOR SUCH IMMEDIATE MEMBERS OF THEIR FAMILIES HAVING NEED OF SUCH FACILITIES BY REASON OF THEIR YOUTH, AGE, INFIRMITY, OR DISABLEMENT, POVERTY OR SOCIAL ECONOMIC CIRCUMSTANCES WITH THE OBJECT OF IMPROVING THE CONDITIONS OF LIFE FOR SUCH PERSONS;(4) TO ADVANCE PUBLIC EDUCATION IN SICKLE CELL DISEASE BY CARRYING OUT OR ASSISTING IN CARRYING OUT RESEARCH INTO THE CAUSES, EFFECTS AND TREATMENT OF SICKLE CELL DISEASE AND TO DISSEMINATE USEFUL RESULTS OF SUCH RESEARCH.

Defined Area of Benefit:

NOT DEFINED

Data Sources