Finance Score: -2
Governance Score: 8
Support Score: 8
  • Large legacies income: +1
  • Fundraising costs high: -3
  • 12+ Trustees: -1
  • Good trustee age range: +3
  • Dynamic board: +3
  • Gender balanced board: +3
  • Grant maker support: +8
Overall GiG Score: 14 ?

MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND 

We support research with the aim of finding treatments and effective cures and we drive improvements in health care. We provide information and advice, campaign to raise awareness, provide care and support. Further, we enable people to lead as full and rich a life as possible through the provision of advocacy support and equipment grants as well as campaigns to remove barriers to independence.
Analysis by Giving is Great

Positives:

  • This charity has received considerable income from legacies in recent years
  • There have been no material income shortfalls in recent years
  • A significant proportion of recent income was derived from major grant makers including the Government
  • The Board appears to be well diversified in terms of age and gender and dynamic in terms of composition

Regulatory & Governance issues to consider:

  • There are 13 trustees whereas the Charities Commission recommends a maximum of 12

Financial issues to consider:

  • Fundraising costs are high relative to funds raised

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/03/23£8,221£6,856£1,365£2,004£11,913£6,94812.265400
31/03/22£6,669£5,609£1,060£1,798£10,829£5,37811.557450
31/03/21£5,544£3,574£1,970£1,175£9,722£4,96916.759450
31/03/20£6,201£6,350£-148£2,302£7,042£2,4334.686660
31/03/19£8,997£8,537£460£2,311£7,663£2,863484500
31/03/18£7,159£8,297£-1,138£2,232£7,065£4,1516820
31/03/17£7,675£7,692£-17£2,034£8,256£4,8617.6780
31/03/16£8,340£6,536£1,804£2,196£7,768£4,7938.8770
31/03/15£6,112£5,343£769£2,000£5,916£3,7778.5640
31/03/14£6,660£4,937£1,723£2,038£4,880£2,6446.4580
31/03/13£4,544£4,182£362£2,016£2,995£9992.9500
31/03/12£6,306£5,882£424£2,240£2,607£5961.2800
31/03/11£7,162£7,938£-776£3,009£2,162£6341740
31/03/10£9,259£9,925£-666£3,621£2,764£1,0121.2780
31/03/09£6,469£7,230£-761£2,572£2,638£1,0171.7750
31/03/08£6,245£6,452£-207£2,147£4,000£2,1404770
31/03/07£7,041£6,470£571£2,229£4,483£3,0825.7730
31/03/06*£6,712£6,114£598£0£0£0n/a00
31/03/05*£7,212£6,955£257£0£0£0n/a00

Financial Ratios
Fundraising Costs/Relevant Income: 28.4%
Fundraising Costs/Total Spending: 29.6%
Senior Staff Costs/Total Spending: 6%
Highest pay band: £110,000-£120,000
Liabilities/Assets: 25%
Liabilities/Income: 49%
Unrestricted Funds/Total Funds: 58%
Reserves/Spending: 12.2 months
Net Current Assets/Spending: 11 months
Quick Ratio: 2.1
Asset Split ?
Established: 62 years

www.musculardystrophyuk.org

info@musculardystrophyuk.org

02078034800

Charity Commission for England and WalesCompanies HouseFacebookInstagramX
UN SDGs
?
Listed activities
  • Disability
  • Education/Training
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • Other welfare services
How it operates
  • Makes Grants to Individuals
  • Makes Grants to Organisations
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Northern Ireland, Scotland, Throughout England And Wales,
Who it helps
  • Children/Young People
  • Elderly/Old People
  • People With Disabilities

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
Garfield Weston Foundation£150,000
Comic Relief£91,500
DCMS£66,054
City Bridge Trust£42,961
Specific Donations
Amount When
Months
To be used for
True Colours Trust - Towards updates for the Changing Places website and map
£10,000 13/06/2023
Towards further enhancing the Changing Places website.
Garfield Weston Foundation - Multi-Year Grant (2 Years) award
£150,000 01/04/2022
24
Core Costs
City Bridge Trust - Grant to Muscular Dystrophy UK
£42,961 23/02/2021
£42,961 towards the costs of core salaries for 12 months, as identified in the application, together with some overheads.
Tedworth Charitable Trust - Towards its work (in support of The Q Trust)
£2,500 18/02/2021
Towards its work
DCMS - Coronavirus Community Support Fund
£66,054 09/09/2020
"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more
Comic Relief - Information and Support Services during Covid-19
£40,000 23/06/2020
6
COVID19 Recovery funding
Comic Relief - Holistic Needs Assessment (HNA) Portal
£51,500 03/07/2019
9
Muscular Dystrophy UK are the leading organisation supporting at least 70,000 people living with a range of muscle wasting conditions in the UK. The project is looking to work in partnership with ....more
Co-Operative Group - Grant to Muscular Dystrophy Group Of Great Britain And Northern Ireland
£3,619 19/11/2018
We want to fund hydrotherapy sessions for children with muscular dystrophy and run 'Muscle Cafes' for adults affected by muscular dystrophy.
Co-Operative Group - Grant to Tavistock Branch - Muscular Dystrophy UK
£3,122 29/11/2017
We want to fund our annual respite holiday for young people with muscular dystrophy from the Devon area.
Garfield Weston Foundation - Major Grants award
£300,000 16/11/2017
Muscular Dystrophy UK Oxford Neuromuscular Centre
Comic Relief - People with muscle-wasting conditions lead the way in improving health and social care
£80,000 16/03/2016
24
70,000 people in the UK are affected by different forms of progressive neuromuscular conditions. These conditions are complex, highly progressive and severely disabling. Specialist support from ....more
City Bridge Trust - Grant to Muscular Dystrophy Group of Great Britain and Northern Ireland
£113,000 09/07/2015
36
£113,000 over three years (£41,500; £34,500; £37,000) towards the salary costs of a Project Lead Officer and running costs for delivering the Trailblazers work-experience project for Londoners.
National Lottery Community Fund - Supporting people, promoting independence, empowering communities
£162,138 11/02/2013
36
This project aims to support people with muscle wasting conditions to learn new skills as self-advocates in order to secure improved care and benefits for themselves and their peers across England. ....more
Henry Smith Charity - Grant to Muscular Dystrophy Campaign
£90,000 05/12/2012
36
towards three years' salary and associated costs of an Advocacy Officer to support people with muscle wasting diseases from across the UK to access appropriate care packages
National Lottery Community Fund - Trailblazers Scotland New Pathways Project
£10,000 02/02/2012
11
The group will run a series of employability workshops for young disabled people across Scotland. The grant will fund workshop delivery including sessional staff costs, travel costs, room hire, ....more
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (13)
Current Trustees appointed
Gender Split

Age Range of Trustees: 36-76
Legal constitution
  • Charitable company registered in England & Wales on 16/05/1962, number: 205395
  • Registered at Companies House on 10/10/1961, number: 00705357
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Filing Record
19 returns made; AR06: 2 days late, AR05: 3 days late,
Main office

32 Ufford Street
LONDON
SE1 8QD

Objectives

TO PROMOTE RESEARCH INTO MUSCULAR DYSTROPHY AND ALLIED NEUROMUSCULAR CONDITIONS; TO PROMOTE THE PROVISION OF CARE AND TREATMENT AND OTHER RELIEF TO THOSE AFFECTED BY MUSCULAR DYSTROPHY AND ALLIED NEUROMUSCULAR CONDITIONS; TO ASSIST THOSE WHO CARE FOR PERSONS AFFECTED BY MUSCULAR DYSTROPHY AND ALLIED NEUROMUSCULAR CONDITIONS; TO PROVIDE EDUCATION AND TRAINING TO PERSONS AFFECTED BY MUSCULAR DYSTROPHY AND ALLIED NEURO MUSCULAR CONDITIONS; TO RAISE THE AWARENESS OF THE PUBLIC ON ANY MATTERS RELATING TO THE CHARITY'S OBJECTS.

Defined Area of Benefit:

NOT DEFINED

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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