Finance Score: 0
Governance Score: 6
Support Score: 9
  • No PartB
  • Good trustee age range: +3
  • Dynamic board: +3
  • Large volunteers +3
  • Grant maker support: +6
Overall GiG Score: 15 ?

THE SUSSEX ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS 

Recently incorporated previous Reg'd Charity No. 247430Working with those in Sussex who have spina bifida and/or hydrocephalus to create and develop their best opportunities. Activities include and Adviser service, one stop clinic, family support work, buddy scheme, residential breaks, education advice, youth clubs, newlsetter, website, training and work experience opportunities.
Analysis by Giving is Great

Positives:

  • This charity has been successful in attracting volunteers relative to its size
  • The charity has received backing from multiple prominent grant makers recently
  • There have been no material income shortfalls in recent years
  • The Board appears to be well diversified in terms of age and dynamic in terms of composition

Financial issues to consider:

  • A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/12/22£243£227£16n/an/an/an/an/a82
31/12/21£267£201£66n/an/an/an/an/a62
31/12/20£267£201£66n/an/an/an/an/a60
31/12/19£240£242£-3n/an/an/an/an/a80
31/12/18£317£195£122£0£0£0n/a092
Highest pay bracket: less than £60,000
Established: 7 years

http://www.sasbah.org.uk/

office@sasbah.org.uk

01825873045

Charity Commission for England and WalesCompanies HouseFacebook
UN SDGs
?
Listed activities
  • Disability
GiG Classification
  • Medical education & research
How it operates
  • Provides advocacy/advice/information
  • Provides buildings/facilities/open space
  • Provides services
Where it operates
  • East Sussex, West Sussex,
Who it helps
  • People With Disabilities
Who works here?
  • Unknown number of employees
  • 82 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
Sussex Community Foundation£61,461
Garfield Weston Foundation£50,000
BBC Children in Need£40,038
National Lottery Community Fund£20,000
DCMS£13,000
Co-Operative Group£3,640
Specific Donations
Amount When
Months
To be used for
Sussex Community Foundation - Grant to SASBAH
£8,000 17/11/2023
Funding was provided towards their Youth Development Programme.
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£2,500 24/03/2023
11
Funding was provided to support residents affected by spina bifida, hydrocephalus and other disabilities in the Rye area to access their Adviser and Social Inclusion Services. group activities and ....more
Sussex Community Foundation - Grant to SASBAH Adviser Service
£5,000 11/11/2022
Funding was provided towards their adviser service.
Co-Operative Group - Grant to SASBAH - Sussex Assoc for Spina Bifida & Hydrocephalus
£3,640 22/10/2022
We help children and young adults with complex disabilities, to have regular meetings and online activities to enable them to make more friends, learn through fun, and to feel fitter and happier.
Garfield Weston Foundation - Main Grants award
£25,000 21/10/2022
SASBAH Running Costs
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£2,341 23/03/2022
Funding was provided to support people affected by spina bifida, hydrocephalus (SB&H) and other disabilities in the Rye area to access Sasbah’s core Social Inclusion and Support Services.
National Lottery Community Fund - Looking to the Future Together Pilot Project
£10,000 04/03/2022
The funding will be used to recruit a Social and Digital Inclusion Officer to continue to support service users to develop their skills and confidence with I.T. The project aim is to support those ....more
Sussex Community Foundation - SASBAH Face to Face
£5,000 25/02/2022
Funding was provided to build on their digital services and to resume and expand their face to face services to children and adults affected by spina bifida, hydrocephalus and other disabilities ....more
Sir Jules Thorn Charitable Trust - Sussex Association for Spina Bifida and Hydrocephalus - 05/01/22
£1,750 27/01/2022
Core Funding
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£5,000 17/11/2021
5
Funding was provided to support their youth development work.
BBC Children in Need - Grant to Sussex Association For Spina Bifida & Hydrocephalus
£20,500 30/07/2021
This project will provide two residential respite breaks for children and young people affected by Spina Bifida and Hydrocephalus. Children and young people will have more fun, feel less isolated ....more
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£10,000 11/06/2021
Sussex Association for Spina Bifida and Hydrocephalus (SASBAH) provide lifelong support for over 1,000 people of all ages in Sussex, affected by these conditions. They support their families and ....more
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£2,232 18/03/2021
Funding was provided to support people affected by spina bifida, hydrocephalus and other disabilities in the Rye area to access Sasbah’s services.
National Lottery Community Fund - SASBAH social & digital inclusion
£10,000 05/02/2021
11
The funding will be used to recruit a digital inclusion officer to support service users with complex disabilities to develop their skills and confidence with IT and improve their experience of ....more
BBC Children in Need - Grant to Sussex Association For Spina Bifida & Hydrocephalus
£9,538 30/11/2020
Web-based activities/workshops for Spina Bifida & Hydrocephalus affected children and young people in West and East Sussex. The activities will result in improved peer friendships, confidence and ....more
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£5,000 18/11/2020
5
Funding was provided as a contribution to core staff/running costs.
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£4,753 21/09/2020
Sussex Association for Spina Bifida and/or Hyrdocephalus (SASBAH), provide lifelong support for over 1,000 people in Sussex affected by these conditions, and support their families and carers. ....more
DCMS - Coronavirus Community Support Fund
£10,000 25/06/2020
"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more
DCMS - VSCE CMC Fund
£3,000 20/05/2020
NET, Comic Relief and Children in Need will use this funding to provide: increased support to vulnerable people and hidden groups, thus reducing the burden on public services; reach local grassroots ....more
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£5,000 18/05/2020
Sussex Association for Spina Bifida and/or Hydrocephalus (SASBAH), provide lifelong support for over 1,000 people of all ages in Sussex, affected by these conditions. Social isolation is a major ....more
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£1,800 25/03/2020
7
Funding was provided for a proportion of Sasbah's core social inclusion and support services costs to support people affected by Spina Bifida, Hydrocephalus and other disabilities in the Rye area.
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£4,835 05/07/2019
3
Funding was provided for staff/project costs of an advisory service to support people affected by SB&H.
Garfield Weston Foundation - Multi-Year Grant (3 Years) award
£25,000 04/07/2019
Sasbah Advisor Service
BBC Children in Need - Grant to Sussex Association for Spina Bifida and Hydrocephalus (Sasbah)
£10,000 21/05/2019
12
This project will support disabled children and young people by delivering two residential breaks. Children and young people will become more physically active, make new friends and improve their ....more
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£1,500 17/10/2018
12
Funding was provided to cover costs for service users from the area of Rye.
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (5)
Current Trustees appointed

Age Range of Trustees: 41-74
  • IAN WOOLER Appointed: 2022, Occupation: Self Employed Decorator
  • MATT WEST Appointed: 2018, Occupation: Policeman
Legal constitution
  • Charitable company registered in England & Wales on 09/10/2017, number: 1175032
  • Registered at Companies House on 04/10/2017, number: 10994693
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Complaints handling
  • Conflicting interests
  • Paying staff
  • Risk management
  • Safeguarding vulnerable beneficiaries
  • Volunteer management
Filing Record
5 returns made; all on time
Main office

Sasbah
Unit 5-6
Swanwood Park
Gun Hill
HEATHFIELD
TN21 0LL

Objectives

THE RELIEF OF PERSONS WHO HAVE SPINA BIFIDA AND/OR HYDROCEPHALUS OR ALLIED RELATED DISORDERS WHO ARE RESIDENT OR WERE FORMALLY RESIDENT IN THE COUNTIES OF EAST AND WEST SUSSEX AND ADJACENT AREAS BY PROVIDING FOR THEIR CARE, WELFARE, TREATMENT, EDUCATION AND INTEGRATION INTO SOCIETY.

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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