Finance Score: -10
Governance Score: -6
Support Score: 3
  • Dormant: -10
  • No PartB
  • 2 Trustees: -2
  • Static board: -3
  • Overall weighted support: +3
Overall GiG Score: -13 ?

THE SUSSEX ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS

Recently incorporated new reg'd No:1175032Working with those in Sussex who have spina bifida and/or hydrocephalus to create and develop their best opportunities. Activities include and Adviser service, one stop clinic, family support work, buddy scheme, residential breaks, education advice, youth clubs, newsletter, website, training and work experience opportunities.
Analysis by Giving is Great

Positives:

  • A significant proportion of recent income was derived from major grant makers

Regulatory & Governance issues to consider:

  • Why are there only 2 trustees?
  • The Board composition appears to be rather static

Financial issues to consider:

  • A PartB annual return has not been required and so detailed financial information is not available from the online data
  • This charity appears to be dormant

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit £k
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/12/23£0£0£0n/an/an/an/an/an/a
31/12/22£0£0£0n/an/an/an/an/an/a
31/12/21£0£0£0n/an/an/an/an/an/a
31/12/20*£0£0£0n/an/an/an/an/an/a
31/12/19*£0£0£0n/an/an/an/an/an/a
31/12/18£0£0£0n/an/an/an/an/an/a
31/12/17£212£217£-5n/an/an/an/an/an/a
31/12/16£217£212£4n/an/an/an/an/an/a
31/12/15£223£232£-9n/an/an/an/an/an/a
31/12/14£219£226£-7n/an/an/an/an/an/a
31/12/13£221£221£-1n/an/an/an/an/an/a
31/12/12£202£218£-15n/an/an/an/an/an/a
31/12/11£231£230£1n/an/an/an/an/an/a
31/12/10£227£229£-2n/an/an/an/an/an/a
31/12/09£248£209£39n/an/an/an/an/an/a
31/12/08£218£204£13n/an/an/an/an/an/a
31/12/07£218£177£41n/an/an/an/an/an/a
31/12/06£186£204£-18n/an/an/an/an/an/a
31/12/05£189£209£-20n/an/an/an/an/an/a
31/12/04£190£189£1n/an/an/an/an/an/a

Highest pay bracket: less than £60,000
Established: 59 years

www.sasbah.org.uk

office@sasbah.org.uk

01825873045

Charity Commission for England and WalesFacebook
This Charity appears to be dormant
UN SDGs
?
Listed activities
  • Accommodation/Housing
  • Amateur Sport
  • Disability
  • Education/Training
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • Other education support
How it operates
  • Makes grants to individuals
  • Provides advocacy/advice/information
  • Provides human resources
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • East Sussex, West Sussex,
Who it helps
  • Children/Young People
  • Elderly/Old People
  • People With Disabilities

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations
Amount When
Months
To be used for
Henry Smith Charity - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£10,000 18/03/2021
towards one year's running costs of the 'Adviser Service Project' for people affected by spina bifida or hydrocephalus in West Sussex.
BBC Children in Need - Grant to Sussex Association For Spina Bifida & Hydrocephalus
£3,000 17/06/2020
6
COVID19 - This grant will fund additional staff hours and activities to support disabled children and young people isolated at home due to Covid-19. Young people will feel less isolated.
Henry Smith Charity - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£10,000 10/12/2019
12
towards one year's running costs of the Adviser Service project for people affected by spina bifida and/or hydrocephalus in West Sussex
Garfield Weston Foundation - Main Grants award
£10,000 12/03/2018
Sasbah Adviser Service
Lloyds Bank Foundation - Grant to Sussex Association of Spina Bifida & Hydrocephalus
£15,000 07/12/2017
24
Towards the role of Project Officer who will deliver a programme of needs assessment, project planning, pilot the delivery of support and evaluate the work.
Co-Operative Group - Grant to Sussex Association for Spina Bifida and Hydrocephalus
£5,499 29/11/2017
We want to set up a buddy scheme for young people with disabilities who are over the age limit for the Sasbah disabilities youth club.
Sussex Community Foundation - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£10,000 20/11/2017
11
The Sussex Association for Spina Bifida and Hydrocephalus is a disabilities support organisation. Their mission is “working with those in Sussex who have spina bifida and/or hydrocephalus to create and develop their best opportunities”. Funding ....more
National Lottery Community Fund - Saspire Development Project
£9,616 15/11/2017
12
This grant will be used to fund a project officer, enabling the organisation to improve the service offered to people with spina bifida or hydrocephalus.
Masonic Trust - Core funding
£5,000 18/10/2017
Education, advice and information, residential care, youth and social clubs and activities for people with Spina Bifida and/or Hydrocephalus.
Henry Smith Charity - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£5,000 09/06/2016
12
towards one year's running costs of the 'Social Inclusion Project' for people affected by spina bifida and/or hydrocephalus in East Sussex
Tudor Trust - Grant to Sussex Association for Spina Bifida and Hydrocephalus
£30,000 18/08/2015
24
over two years as continuation funding towards the running costs of a development programme for young people
Henry Smith Charity - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£7,500 04/12/2014
towards one year's running costs of a project providing an Adviser Service for children and young people with severe disabilities in West Sussex
National Lottery Community Fund - SASBAH 50th Anniversary 'Raising Awareness' Project
£10,000 18/06/2014
12
Not Available
Lloyds Bank Foundation - Grant to Sussex Association for Spina Bifida and Hydrocephalus (SASBAH)
£30,000 29/01/2014
The charity provides a range of services for people with Spina Bifida and Hydrocephalus. The funding will enable them to continue with their advice service offering one to one support for those that need it.
Henry Smith Charity - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£10,000 05/12/2013
towards one years' costs of a project that supports the education and development of children and young people with severe disabilities in West Sussex
Henry Smith Charity - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£10,000 05/12/2013
towards one years' costs of a project that supports the education and development of children and young people with severe disabilities in East Sussex
Henry Smith Charity - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£6,000 05/12/2012
towards one year's running costs of the Advisor Service in West Sussex for people suffering with Spina Bifida & Hydrocephalus
Henry Smith Charity - Grant to Sussex Association for Spina Bifida & Hydrocephalus
£8,000 05/12/2012
towards one year's salary of a Youth Development Officer in East Sussex for people suffering with Spina Bifida & Hydrocephalus
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (2)
Current Trustees appointed

  • HILARY LEWIS Appointed: 2019, Occupation: Director
  • MATT WEST Appointed: 2019
Legal constitution
  • Charity registered in England & Wales on 31/03/1966, number: 247430
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Complaints handling
  • Conflicting interests
  • Paying staff
  • Risk management
  • Safeguarding vulnerable beneficiaries
  • Volunteer management
Filing Record
20 returns made; AR20: 3 days late, AR19: 2 days late,
Main office

UNITS 5 & 6
SWAN WOOD PARK
GUN HILL
HORAM
EAST SUSSEX
TN21 OLL

Objectives

FOR THE RELIEF OF PERSONS WHO HAVE SPINA BIFIDA/HYDROCEPHALUS (FOR FUTHER DETAILS, SEE CLAUSE 5 OF CONSTITUTION)

Defined Area of Benefit:

SUSSEX

Data Sources

Charity Commission for England and Wales
360 Giving

Tips for Selecting Charities

Which areas of philanthropy are most effective?
The text of this post is taken from an article on the Effective Altruism forum. It suggests that you can achieve the most impact by supporting causes that fight extreme poverty, improving animal welfare....more
Our Top Tips for Philanthropy
Here are some ideas to help you gain more satisfaction from your philanthropy and confidence that the causes you have selected are impactful. Engage your brain, as well as your heart You....more
How to become a Philanthropist
In this Blog we outline a strategy to help people who are new to philanthropy and for those who feel dissatisfied with the impact they are having. Effective philanthropy is immensely rewarding for donors,....more

Giving is Great