Finance Score: 2

Governance Score: 1

Support Score: 5

Strong growth: +2

No volunteer policy: -2
Gender balanced board: +3

Grant maker support: +5

Overall GiG Score: 8

ACTION FOR PULMONARY FIBROSIS

APF raises awareness and understanding of pulmonary fibrosis with patients, families, the general public and the medical profession. We advocate for patients nationally to improve treatment and care. We support patients by assisting in setting up patient support groups, hold information events and by personal contact. We offer study sessions for health professionals and offer research grants.

Analysis by Giving is Great

Positives:

The charity has received backing from several prominent grant makers recently
There has been strong growth in spending over the last 5 years
There have been no material income shortfalls in recent years
The Board appears to be well diversified in terms of gender

Regulatory & Governance issues to consider:

Although this charity works with volunteers it does not have a Volunteer Management policy

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
30/06/23	£1,447	£1,204	£243	£249	£1,512	£1,468	14.6	21	100
30/06/22	£975	£795	£179	£169	£1,270	£1,205	18.2	16	87
30/06/21	£652	£601	£50	£110	£1,090	£1,025	20.5	11	19
30/06/20	£785	£505	£280	£62	£1,040	£1,015	24.1	5	30
30/06/19	£632	£924	£-293	£91	£760	£760	9.9	1	30
30/06/18	£606	£259	£346	£79	£1,053	£1,022	47.3	0	0
30/06/17	£361	£141	£219	£0	£0	£0	n/a	0	0
30/06/16	£359	£89	£270	£0	£0	£0	n/a	0	0
30/06/15	£202	£34	£168	£0	£0	£0	n/a	0	0
30/06/14	£55	£6	£49	£0	£0	£0	n/a	0	0

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Financial Ratios

Fundraising Costs/Relevant Income: 17.4%
Fundraising Costs/Total Spending: 20.6%
Senior Staff Costs/Total Spending: 6%
Highest pay band: £60,000-£70,000
Liabilities/Assets: 12%
Liabilities/Income: 14%
Unrestricted Funds/Total Funds: 97%
Reserves/Spending: 14.6 months
Net Current Assets/Spending: 15 months
Quick Ratio: 0.7

Asset Split ?

Established: 11 years

www.actionpf.org

info@actionpf.org

01733 475642

Charity Commission for England and Wales

Tweets

Listed activities

Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Medical education & research

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Other charitable activities
Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Other Defined Groups
The General Public/Mankind

Who works here?

21 employees
100 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

National Lottery Community Fund	£489,727
Garfield Weston Foundation	£25,000
The Foyle Foundation	£2,500
Masonic Trust	£500

Specific Donations

Amount	When Months	To be used for
The Foyle Foundation - Small Grants
£2,500	07/02/2023	as sponsorship for Lee Milne in the London Marathon in April 2023 to support the work of Action for Pulmonary Fibrosis
Garfield Weston Foundation - Main Grants award
£25,000	03/06/2022	Growing volunteering at Action for Pulmonary Fibrosis to support more patients and carers when they need us the most
Masonic Trust - MCF Matched Funding
£500	09/11/2021	Unrestricted matched funding in partnership with the local masonic province
National Lottery Community Fund - Connecting and empowering the pulmonary fibrosis community
£489,727	27/07/2021 36	The funding will be used by the group over three years to enable them to continue with and expand their existing work of providing peer-led support groups for those affected by pulmonary fibrosis ....more The funding will be used by the group over three years to enable them to continue with and expand their existing work of providing peer-led support groups for those affected by pulmonary fibrosis (PF) provide telephone-based support and improve referral pathways with general hospitals and specialist centres. The group will use the grant to cover staffing costs in order to increase its support and provision to people using its service. This will allow the group to create more support groups offer telephone based support and improve referrals to general hospitals and specialist support centres across England.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (10)

Current Trustees appointed

Gender Split

DR HELEN PARFREY BM,BCH,PHD Appointed: 2013

DR MICHAEL JAMES STUBBINS Appointed: 2022

DR REBECCA LANG Appointed: 2018

ELIZABETH MCKENZIE BRAY MSC Appointed: 2017

MATTHEW SUDDART Appointed: 2022

SHAMA MALIK Appointed: 2023

STEPHEN CHARLES JONES BSC HONS (Chair) Appointed: 2017

STEPHEN MORGAN-HYLAND Appointed: 2018

WENDY ANNE DICKINSON Appointed: 2020

DR SIMON HART Appointed: 2016, Occupation: Consultant Physician

Legal constitution

Charity registered in England & Wales on 12/06/2013, number: 1152399

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Paying staff
Risk management
Safeguarding policy and procedures
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures

Filing Record

10 returns made; all on time

Main office

Action for Pulmonary Fibrosis
Stuart House
East Wing
St John's Street
Peterborough
PE1 5DD

Objectives

THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH IN PARTICULAR BY:A) ADVANCING EDUCATION AND RAISING AWARENESS OF PULMONARY FIBROSIS, THE SYMPTOMS ASSOCIATED WITH IT AND ENCOURAGING EARLIER DIAGNOSIS OF THE CONDITION.B) PROMOTING RESEARCH INTO THE UNDERSTANDING, DIAGNOSIS, CAUSES AND TREATMENTS OF PULMONARY FIBROSIS THROUGH DONATIONS AND GRANTS TO RELATED RESEARCH PROJECTS IN ORDER THAT THE USEFUL RESULTS OF RESEARCH ARE DISSEMINATED FOR PUBLIC BENEFIT.C) PROVIDING SUPPORT TO PATIENTS AND FAMILIES SUFFERING FROM PULMONARY FIBROSIS IN ANY OTHER WAY THE TRUSTEES SEE FIT.

Data Sources