Finance Score: -4

Governance Score: 6

Support Score: 6

Large legacies income: +1
Multiple Deficits and declines: -5
No PartB

Good trustee age range: +3
Dynamic board: +3

Grant maker support: +6

Overall GiG Score: 8

THE ATAXIA-TELANGIECTASIA SOCIETY

Ataxia-Telangiectasia (A-T) is a progressive genetic condition which from early childhood causes increasingly severe disability, and shortens lives. The A-T Society is dedicated to improving quality of life and quality of care for people living with A-T while actively promoting research to lengthen lives and ultimately bring about a cure.

Analysis by Giving is Great

Positives:

This charity has received considerable income from legacies in recent years
A significant proportion of recent income was derived from major grant makers including the Government
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income has been volatile and on several occasions in recent years less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22	£429	£481	£-52	n/a	n/a	n/a	n/a	n/a	10
31/12/21	£368	£501	£-132	n/a	n/a	n/a	n/a	n/a	10
31/12/20	£321	£506	£-185	n/a	n/a	n/a	n/a	n/a	1
31/12/19	£1,062	£553	£509	£127	£953	£641	13.9	9	2
31/12/18	£360	£498	£-139	£0	£0	£0	n/a	0	9
31/12/17	£834	£395	£439	£99	£583	£89	2.7	6	0
31/12/16	£392	£351	£40	£0	£0	£0	n/a	0	0
31/12/15	£291	£341	£-50	£0	£0	£0	n/a	0	0
31/12/14	£361	£376	£-14	£0	£0	£0	n/a	0	0
31/12/13	£370	£313	£57	£0	£0	£0	n/a	0	0
31/12/12	£295	£361	£-66	£0	£0	£0	n/a	0	0
31/12/11	£261	£278	£-17	£0	£0	£0	n/a	0	0
31/12/10	£240	£184	£56	£0	£0	£0	n/a	0	0
31/12/09	£197	£188	£10	£0	£0	£0	n/a	0	0
31/12/08	£169	£211	£-42	£0	£0	£0	n/a	0	0
31/12/07	£233	£197	£37	£0	£0	£0	n/a	0	0
31/12/06	£190	£170	£20	£0	£0	£0	n/a	0	0
31/12/05	£143	£141	£2	£0	£0	£0	n/a	0	0

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Highest pay bracket: less than £60,000

Established: 20 years

www.atsociety.org.uk

info@atsociety.org.uk

01582760733

Charity Commission for England and Wales

Tweets

Listed activities

Arts/Culture/Heritage/Science
Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Scientific research and testing services

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

People With Disabilities

Who works here?

Unknown number of employees
10 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

Masonic Trust	£15,000
Co-Operative Group	£11,866
National Lottery Community Fund	£10,000
DCMS	£9,500

Specific Donations

Amount	When Months	To be used for
Co-Operative Group - Grant to The Ataxia Telangiectasia Society
£5,491	21/10/2023	Our project will support and empower disabled young people and their families who are living with AT and improve their wellbeing through education and social workshops, both face-2-face and virtually.
Virgin Money Foundation - Grant to The Ataxia-Telangiectasia Society
£500	27/04/2023	Grant through the Colleagues in the Community Fund.
Masonic Trust - MCF Small Grant
£15,000	07/11/2022	Unrestricted core funding for small charities
Co-Operative Group - Grant to The Ataxia Telangiectasia Society
£6,375	22/10/2022	We would like to provide workshops and training events for disabled young people aged 11 to 18 who are living with AT, and their families. This will help them grow in confidence and mental resilience.
National Lottery Community Fund - Improving mental well-being of children suffering from AT during/post pandemic
£10,000	13/05/2022	The funding will be used to cover salary costs of a Support Manager to provide direct support to people with Ataxia-Telangiectasia (AT) and their families. The project aims to ensure that clients ....more The funding will be used to cover salary costs of a Support Manager to provide direct support to people with Ataxia-Telangiectasia (AT) and their families. The project aims to ensure that clients with AT a life-limiting condition continue to access advice information and support through interactive online services.
DCMS - Coronavirus Community Support Fund
£9,500	27/07/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
Woodward Charitable Trust - Towards the costs of a Family Support Officer
£1,000	31/07/2014	Towards the costs of a Family Support Officer to help obtain medical care for disabled travellers’ children at national specialist clinics.

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (9)

Current Trustees appointed

Age Range of Trustees: 33-82

DR JAYESH BHATT Appointed: 2021, Occupation: Doctor

DAVID MACDONALD Appointed: 2021, Occupation: Managing Director

JHILNA SHAH Appointed: 2018, Occupation: Pharmacist

JOE POWELL Appointed: 2021, Occupation: Local Government Officer

RACHEL POUPARD Appointed: 2021, Occupation: Civil Servant

LIAN CECILIA YARLETT Appointed: 2007, Occupation: Company Secretary

MICHAEL DETSINY (Chair) Appointed: 2015, Occupation: Retired

NICHOLAS GULL Appointed: 2018, Occupation: Retired

PENNY JEGGO Appointed: 2014, Occupation: Research Scientist

Legal constitution

Charitable company registered in England & Wales on 18/08/2004, number: 1105528
Registered at Companies House on 12/07/2004, number: 05177145

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

18 returns made; all on time

Main office

Unit 54
Thrales End Business Centre
Thrales End Lane
Harpenden
Herts
AL5 3NS

Objectives

THE RELIEF OF SICKNESS AND DISTRESS AMONG PERSONS SUFFERING FROM ATAXIA-TELANGIECTASIA.

Defined Area of Benefit:

NATIONAL

Data Sources