Finance Score: -1

Governance Score: 9

Support Score: 7

Liabilities <10%: +3
Reasonable growth: +1
Deficit latest year: -2
Fundraising costs high: -3

Good trustee age range: +3
Dynamic board: +3
Gender balanced board: +3

Overall weighted support: +7

Overall GiG Score: 15

ENCEPHALITIS INTERNATIONAL

To provide a supportive lifeline & activities that benefit those affected by Encephalitis, their families and carers.To produce quality, evidence-based information on all aspects of the condition. To raise awareness about the condition and its consequences among relevant professionals, statutory agencies and the general public.To encourage research into Encephalitis and its after-effects.

Analysis by Giving is Great

Positives:

The charity has received backing from multiple prominent grant makers recently
This charity has a robust balance sheet
There has been reasonable growth in spending over the last 3 years relative to the previous period
The Board appears to be well diversified in terms of age and gender and dynamic in terms of composition

Financial issues to consider:

Income was lower than spending in the latest year
Fundraising costs are extremely high relative to funds raised

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit £k	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23	£954	£1,070	£-116	£186	£1,305	£1,071	12	16	114
31/03/22	£957	£880	£77	£201	£1,518	£1,209	16.5	11	88
31/03/21	£997	£719	£278	£138	£1,431	£1,109	18.5	12	80
31/03/20	£1,163	£810	£353	£117	£1,073	£669	9.9	12	82
31/03/19	£727	£628	£99	£88	£769	£548	10.5	11	166
31/03/18	£526	£659	£-133	£91	£659	£487	8.9	11	0
31/03/17	£692	£620	£73	£73	£798	£473	9.2	10	0
31/03/16	£493	£659	£-166	n/a	n/a	n/a	n/a	n/a	n/a
31/03/15	£522	£606	£-84	£41	£864	£318	6.3	10	0
31/03/14	£897	£497	£401	£29	£917	£283	6.8	8	0
31/03/13	£584	£408	£177	£24	£516	£317	9.3	9	0
31/03/12	£410	£320	£90	n/a	n/a	n/a	n/a	n/a	n/a
31/03/11	£303	£329	£-26	n/a	n/a	n/a	n/a	n/a	n/a
31/03/10	£315	£257	£59	n/a	n/a	n/a	n/a	n/a	n/a
31/03/09	£312	£322	£-10	n/a	n/a	n/a	n/a	n/a	n/a
31/03/08	£370	£316	£54	n/a	n/a	n/a	n/a	n/a	n/a
31/03/07	£312	£316	£-4	n/a	n/a	n/a	n/a	n/a	n/a
31/03/06	£258	£263	£-5	n/a	n/a	n/a	n/a	n/a	n/a
31/03/05	£232	£217	£15	n/a	n/a	n/a	n/a	n/a	n/a
31/03/04	£183	£172	£11	n/a	n/a	n/a	n/a	n/a	n/a

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Financial Ratios

Fundraising Costs/Relevant Income: 30.9%
Fundraising Costs/Total Spending: 17.9%
Senior Staff Costs/Total Spending: 7%
Highest pay band: £60,000-£70,000
Liabilities/Assets: 5%
Liabilities/Income: 7%
Unrestricted Funds/Total Funds: 82%
Reserves/Spending: 12 months
Net Current Assets/Spending: 3 months
Quick Ratio: 4.3

Asset Split ?

Balance Sheet History

Established: 23 years

www.encephalitis.info

mail@encephalitis.info

01653 692583

Charity Commission for England and Wales

Tweets

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Outpatient support services

How it operates

Provides advocacy/advice/information
Provides human resources
Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

Other Defined Groups

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

DCMS	£95,304
Masonic Trust	£62,500
Garfield Weston Foundation	£55,000
Rank Foundation	£25,000
National Lottery Community Fund	£15,950
The Shears Foundation	£10,000

Specific Donations

Amount	When Months	To be used for
Masonic Trust - MCF Matched Funding
£2,500	29/01/2024	Unrestricted matched funding in partnership with the local masonic province
The Shears Foundation - Encephalitis Society
£5,000	01/11/2022	Encephalitis Conference 2022
National Lottery Community Fund - Translation of YouTube Animations
£5,950	15/08/2022	The funding will be used to translate 'Understanding Encephalitis' animation videos into different languages. The project aims to increase online presence and ensure more people have access to information about brain inflammation diagnosis
Garfield Weston Foundation - Multi-Year Grant (3 Years) award
£15,000	24/06/2022 36	Encephalitis Society Support and Connection Programme
The Shears Foundation - Encephalitis Society
£5,000	27/10/2021	Encephalitis Conference 2021
Garfield Weston Foundation - Multi-Year Grant (3 Years) award
£15,000	16/07/2021 36	Encephalitis Society Support and Connection Programme
Sir Jules Thorn Charitable Trust - Encephalitis Support Group (known as the Encephalitis Society) - 24/06/21
£1,250	07/07/2021	Core Funding
Masonic Trust - MCF Large Grant
£60,000	14/10/2020	A grant to support young people with encephalitis through digital support.
DCMS - Coronavirus Community Support Fund
£95,304	29/07/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
Rank Foundation - Resilience Fund Encephalitis Society 2020
£25,000	07/05/2020	To cover lost income
The Clothworkers Foundation - Grant to Encephalitis Support Group
£3,418	14/04/2020	COVID19 : purchase IT equipment and software for a charity that works with disadvantaged minority communities in North Yorkshire
National Lottery Community Fund - Encephalitis Volunteer Hubs
£10,000	03/04/2020 15	The funding will provide the faciliation and set-up of volunteer-led hubs which will provide a setting for regional meetings in towns and cities across England. This will be open to anyone affected by encephalitis and aims to reduce isolation ....more The funding will provide the faciliation and set-up of volunteer-led hubs which will provide a setting for regional meetings in towns and cities across England. This will be open to anyone affected by encephalitis and aims to reduce isolation improve confidence and mental wellbeing.
Garfield Weston Foundation - Main Grants award
£25,000	29/11/2019	Core Costs
National Lottery Community Fund - Life After Encephalitis
£147,500	30/10/2018 35	This funding will be used to support families whose lives have been affected by encephalitis. A range of events will be funded to bring people together, providing them with the opportunity to share experiences and support each other through ....more This funding will be used to support families whose lives have been affected by encephalitis. A range of events will be funded to bring people together, providing them with the opportunity to share experiences and support each other through recovery. A new staff member will also be funded to help meet the rising demand for its support services.
Garfield Weston Foundation - Main Grants award
£25,000	16/05/2018	Main Grants award
National Lottery Community Fund - Capacity Building: Gearing up for Growth
£10,000	03/08/2016 12	The organisation will use the funding to install a new server and lay new flooring at their centre. This will enable them to meet the increased demand for their services and to provide improved support for people with encephalitis.
The October Club -
£500,000	31/10/2013

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

Gender Split

Based on 6/7 persons

Age Range of Trustees: 37-60

ADELE MARGARET MACKINLAY Appointed: 2022, Occupation: Director Of People & Organisational Development

DAVID JOHN SMITH Appointed: 2021, Occupation: Information Security Consultant And Auditor

DR MARK ALEXANDER ELLUL Appointed: 2019, Occupation: Neurologist

DR PAOLA GEMMA ANGELA TINTI Appointed: 2021, Occupation: Head Of Fundraising

GAGUN GAHIR (Chair) Appointed: 2020, Occupation: Regional Manager Emea & Americas Telstra

JOHN DONALD SIMON MAYHEW Appointed: 2021, Occupation: Finance Team Manager

NICOLA WAINWRIGHT Appointed: 2023, Occupation: Solicitor

Legal constitution

Charitable company registered in England & Wales on 02/08/2001, number: 1087843
Registered at Companies House on 28/03/2001, number: 04189027

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

20 returns made; all on time

Recent reorganisation events:

Asset transfer in from THE SOPHIE CAMERON TRUST on 23/08/2022

Main office

The Encephalitis Society
32 Castlegate
Malton
YO17 7DT

Objectives

(1) THE RELIEF OF PERSONS AFFECTED BY ENCEPHALITIS AND THEIR FAMILIES(2) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF ENCEPHALITIS AND ITS IMPLICATION FOR THE FAMILY(3) TO PROMOTE RESEARCH INTO THE MANAGEMENT OF ENCEPHALITIS AND TO PUBLISH USEFUL RESULTS

Defined Area of Benefit:

NOT DEFINED

Data Sources

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