Finance Score: -3
Governance Score: 3
Support Score: 4
  • Large legacies income: +2
  • Multiple Deficits and declines: -5
  • No PartB
  • Good trustee age range: +3
  • Grant maker support: +4
Overall GiG Score: 4 ?

MYAWARE 

The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.
Analysis by Giving is Great

Positives:

  • The charity has received backing from several prominent grant makers recently
  • This charity has received more than half of its income from legacies in recent years
  • The Board appears to be well diversified in terms of age

Financial issues to consider:

  • A PartB annual return has not been required and so detailed financial information is not available from the online data
  • Income has been volatile and on several occasions in recent years less than spending
Established: 29 years

www.myaware.org

info@myaware.org

01332290219

Charity Commission for England and WalesCompanies HouseFacebookInstagramX
UN SDGs
?

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/03/23£329£717£-387n/an/an/an/an/a0
31/03/22£707£1,022£-315£9£2,406£1,72820.31980
31/03/21£993£1,052£-60£10£2,703£1,64118.72480
31/03/20£1,378£917£461£24£2,727£1,300171780
31/03/19£852£942£-90£47£2,272£82310.51791
31/03/18*£2,174£1,050£1,124£50£2,346£89110.2150
31/03/17£779£935£-156£88£1,219£94912.2150
31/03/16£1,459£944£515£92£1,353£1,17114.9150
31/03/15£1,115£1,226£-111£106£845£6876.7130
31/03/14£1,119£1,021£98£111£943£5616.6180
31/03/13£822£1,033£-211£303£842£5806.7180
31/03/12£1,425£1,343£81£335£1,039£8127.3170
31/03/11£1,137£1,238£-101£315£958£5935.8170
31/03/10£869£1,107£-238£468£1,059£6797.4170
31/03/09£884£1,285£-402£584£1,273£7286.8170
31/03/08*£1,030£1,163£-133£514£1,709£1,05410.9160
31/03/07£2,508£969£1,540£364£1,853£1,28115.9130
31/03/06£659£639£19£0£0£0n/a00
31/03/05£673£704£-30£0£0£0n/a00
31/03/04£626£648£-23£0£0£0n/a00

Senior Staff Costs/Total Spending: 11%
Highest pay band: £60,000-£70,000
What it does
  • Disability
  • Education/Training
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
Who it helps
  • Other Charities Or Voluntary Bodies
  • People With Disabilities
  • The General Public/Mankind
How it operates
  • Makes Grants to Organisations
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Northern Ireland, Scotland, Throughout England And Wales,

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
DCMS£106,773
County Durham Community Foundation£2,678
Co-Operative Group£1,386
Masonic Trust£1,250
Specific Donations
Amount When
Months
To be used for
Masonic Trust - MCF Matched Funding
£1,250 01/02/2022
Unrestricted matched funding in partnership with the local masonic province
Co-Operative Group - Grant to Myaware Nottinghamshire & Leicestershire Support Group
£1,386 23/10/2021
We would like to fund an information day to give our members something to look forward to in March 2022 when, hopefully, Covid-19 lockdown measures and self-isolation are a dim and distant memory.
DCMS - Coronavirus Community Support Fund
£106,773 29/07/2020
"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more
County Durham Community Foundation - Keeping the Durham myasthenia community connected
£2,678 15/04/2020
Towards keeping the Durham myasthenia community connected.
National Lottery Community Fund - Supporting myasthenics in South Yorks
£9,807 31/01/2019
12
A project for people affected by myasthenia, a chronic autoimmune neuromuscular disease that causes weakness in the skeletal muscles, which are responsible for breathing and moving parts of the body, ....more
Co-Operative Group - Grant to myaware North East Support Groups
£6,619 19/11/2018
We want to arrange an Education Day with expert medical speakers, workshops, information stands and lunch.
National Lottery Community Fund - Supporting self management of myasthenia
£9,200 21/09/2018
12
The funding will be used to stage a conference for people living with Myasthenia Gravis. The project aims to provide support, advice and information.
National Lottery Community Fund - Isolated & young MG Support Weekend
£9,450 09/08/2018
12
The funding will be used to run a weekend event for young people living with myasthenia where they can access medical advice and support. The project aims to bring people together and share ....more
National Lottery Community Fund - Myasthenia Gravis Reaching Out To People Whose Lives Are Affected By M
£10,000 15/03/2018
12
The Bangor based group works across Northern Ireland providing support to people affected by myasthenia, a rare condition that causes muscle weakness. They are using the grant of £10,000 to run four ....more
National Lottery Community Fund - Consistency of care and prevention of isolation
£138,000 30/10/2017
36
This group will use the funding to deliver support groups across Scotland for people with Myasthenia Gravis, their family members and their carers. As well as running four established support groups ....more
BBC Children in Need - Grant to Myasthenia Gravis Association (myaware)
£71,514 11/10/2016
36
This project will provide support to families and children with Myasthenia, including a yearly residential and local trips. The aim is to build confidence and self-esteem, reduce isolation, develop ....more
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (10)
Current Trustees appointed

Age Range of Trustees: 30-75
  • CLAIRE WEN Appointed: 2024, Occupation: Foundations Manager
  • JON RIO Appointed: 2016, Occupation: Credit Analyst
Legal constitution
  • Charitable company registered in England & Wales on 19/05/1995, number: 1046443
  • Registered at Companies House on 27/03/1995, number: 03038358
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Filing Record
20 returns made; AR18: 1 days late, AR08: 90 days late,
Main office

myaware
College Business Centre
The College
Uttoxeter New Road
DERBY
DE22 3WZ

Objectives

TO PROMOTE ANY CHARITABLE PURPOSES FOR THE BENEFIT OF THOSE PERSONS WHO SUFFER FROM MYASTHENIA GRAVIS, AND IN PARTICULAR BUT WITHOUT LIMITATION TO RELIEVE SICKNESS, HARDSHIP AND DISTRESS AND PROVIDE COMFORT AND SUPPORT TO PEOPLE SUFFERING FROM MYASTHENIA GRAVIS AND TO PROMOTE AND ENCOURAGE EDUCATION AND RESEARCH INTO MYASTHENIA GRAVIS AND TO PUBLISH THE USEFUL RESULTS OF ANY SUCH RESEARCH.

Defined Area of Benefit:

IN PRACTICE, UNITED KINGDOM AND REPUBLIC OF IRELAND

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

Tips for Selecting Charities

Which areas of philanthropy are most effective?
The text of this post is taken from an article on the Effective Altruism forum. It suggests that you can achieve the most impact by supporting causes that fight extreme poverty, improving animal welfare....more
Our Top Tips for Philanthropy
Here are some ideas to help you gain more satisfaction from your philanthropy and confidence that the causes you have selected are impactful. Engage your brain, as well as your heart You....more
How to become a Philanthropist
In this Blog we outline a strategy to help people who are new to philanthropy and for those who feel dissatisfied with the impact they are having. Effective philanthropy is immensely rewarding for donors,....more

Giving is Great