Finance Score: 0

Governance Score: 3

Support Score: 6

Strong growth: +2
Multiple Deficits: -2
No PartB

Dynamic board: +3

Grant maker support: +6

Overall GiG Score: 9

NORTH AND WEST YORKSHIRE ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS

Our Association provides direct assistance to children and adults with spina bifida and/or hydrocephalus and their parents/carers within North and West Yorkshire. We provide welfare grants, subsidised holidays and mutual support through activities, outings, workshops and seminars.

Analysis by Giving is Great

Positives:

There has been strong growth in spending over the last 5 years
A significant proportion of recent income was derived from major grant makers
The Board appears to be dynamic in terms of composition

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
On several occasions in recent years income has been less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22		£60	£53	£8	n/a	n/a	n/a	n/a	n/a	0
31/12/21		£39	£14	£25	n/a	n/a	n/a	n/a	n/a	5
31/12/20	*	£9	£11	£-2	n/a	n/a	n/a	n/a	n/a	0
31/12/19	*	£3	£15	£-12	n/a	n/a	n/a	n/a	n/a	0
31/12/18		£26	£14	£13	£0	£0	£0	n/a	0	20
31/12/17		£5	£15	£-10	£0	£0	£0	n/a	0	0
31/12/16		£21	£22	£-1	£0	£0	£0	n/a	0	0
31/12/15		£34	£24	£10	£0	£0	£0	n/a	0	0
31/12/14		£28	£21	£7	£0	£0	£0	n/a	0	0
31/12/13		£22	£25	£-3	£0	£0	£0	n/a	0	0
31/12/12		£32	£31	£1	£0	£0	£0	n/a	0	0
31/12/11		£18	£19	£-1	£0	£0	£0	n/a	0	0
31/12/10		£21	£23	£-2	£0	£0	£0	n/a	0	0
31/12/09		£20	£28	£-8	£0	£0	£0	n/a	0	0
31/12/08		£18	£53	£-35	£0	£0	£0	n/a	0	0
31/12/07		£58	£43	£14	£0	£0	£0	n/a	0	0
31/12/06		£56	£31	£24	£0	£0	£0	n/a	0	0
31/12/05		£29	£35	£-6	£0	£0	£0	n/a	0	0
31/12/04		£23	£38	£-15	£0	£0	£0	n/a	0	0

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Highest pay bracket: less than £60,000

Established: 56 years

nwyasbah.org

nwyasbah@gmail.com

01943 608021

Charity Commission for England and Wales

Listed activities

Disability
Recreation
The Advancement Of Health Or Saving Of Lives
The Prevention Or Relief Of Poverty

GiG Classification

Services for young people

How it operates

Makes Grants to Individuals
Provides advocacy/advice/information
Provides human resources
Provides services

Where it operates

Bradford City, City Of Wakefield, City Of York, Kirklees, Leeds City, North Yorkshire,

Who it helps

Children/Young People
People With Disabilities

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

National Lottery Community Fund	£135,444
Two Ridings Community Foundation	£5,000
The Foyle Foundation	£5,000
Leeds Community Foundation	£1,700

Specific Donations

Amount	When Months	To be used for
Leeds Community Foundation - Counselling Service
£1,700	11/10/2022	Grant to North & West Yorkshire ASBAH
National Lottery Community Fund - Support the Challenge
£129,944	27/10/2021	The funding will be used to support those diagnosed with Spina Bifida or Hydrocephalus due to late investigation accident or injury parents with unborn babies diagnosed in utero or new-born babies ....more The funding will be used to support those diagnosed with Spina Bifida or Hydrocephalus due to late investigation accident or injury parents with unborn babies diagnosed in utero or new-born babies and the carers of those affected some of whom will be older carers of patients who have survived long term with their diagnosis whilst others may be young parents or partners and siblings. The funding will expand the project's mainly remote support offer by setting up and providing initial facilitation of four ‘mini communities’ of peer support groups which will be user lead with oversight and support from the central organisation. Two larger groups will be set up in Leeds and Bradford as higher incidence areas and one group in Castleford and one in Harrogate as lower incidence areas.
Two Ridings Community Foundation - Grant to North and West Yorkshire ASBAH
£5,000	13/07/2021	Funding would cover staff cost for a year of a new position. This role would make welfare and befriending calls to members. It would also cover staff cost for a year of an existing project manager ....more Funding would cover staff cost for a year of a new position. This role would make welfare and befriending calls to members. It would also cover staff cost for a year of an existing project manager role to drive membership and develop the service. The Bradford based charity support people/families who are affected by Spina Bifida and/or Hydrocephalus.
The Foyle Foundation - Small Grants
£5,000	11/02/2021	towards ongoing costs over 12 months (awarded grant in response to coronavirus)
National Lottery Community Fund - Covid-19 Be-friending Scheme
£5,500	15/05/2020 15	The funding will be used to offer a be-friending scheme to members and others living with Spina Bifida and/or Hydrocephalus . The project aims to provide support to those who are isolated and ....more The funding will be used to offer a be-friending scheme to members and others living with Spina Bifida and/or Hydrocephalus . The project aims to provide support to those who are isolated and vulnerable as a result of the COVID-19 pandemic.
National Lottery Community Fund - My Life - Looking Up
£9,860	30/08/2018 12	The charity will provide support for parents and families of children suffering from spina bifida and hydrocephalus. The project will offer a parent buddy system, educational workshops, volunteer ....more The charity will provide support for parents and families of children suffering from spina bifida and hydrocephalus. The project will offer a parent buddy system, educational workshops, volunteer coordination and a youth club with the aim of providing a mutual support network for those affected by these conditions.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

Gender Split

ALISON BARKER Appointed: 2015

DONNA FARMERY Appointed: 2024

JANE HART Appointed: 2020

JOAN PHEASANT (Chair) Appointed: 2017

JOSH PORRITT Appointed: 2023

JUDITH SLADE Appointed: 2020

OLIVER LOUDEN Appointed: 2021

Legal constitution

Charity registered in England & Wales on 04/03/1968, number: 252129

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Conflicting interests
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

19 returns made; AR20: 21 days late, AR19: 1 days late,

Recent reorganisation events:

Asset transfer in from SCOPE IN BRADFORD on 18/07/2023

Main office

28B The Grove
ILKLEY
West Yorkshire
LS29 9EE

Objectives

FOR CHARITABLE OBJECTS AND PURPOSES ONLY AND FOR THE CARE, WELFARE, INTEREST, TREATMENT, EDUCATION AND ADVANCEMENT OF PERSONS SUFFERING FROM SPINA BIFIDA OR HYDROCEPHALUS OR ALLIED OR RELATED DISORDERS AND THE PEOPLE WHO CARE FOR THEM.

Defined Area of Benefit:

NOT DEFINED - IN PRACTISE NORTH AND WEST YORKSHIRE

Data Sources