Finance Score: 0

Governance Score: 0

Support Score: 6

No PartB

Large volunteers +3
Grant maker support: +3

Overall GiG Score: 6

SEDSCONNECTIVE

SEDSConnective improves and actively supports the lives of people with SH EDS HSD and ND (primarily autism, ADHD, dyspraxia, TS) and associated conditions, families and carers, in health, education, social care, employment, and transport accessibility.

Analysis by Giving is Great

Positives:

This charity has been successful in attracting volunteers relative to its size
The charity has received backing from a grant maker recently

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Y/E		Income	Spending	Surplus/ Deficit	Volun- teers
30/11/23		£40,949	£26,768	£14,181	17

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Highest pay bracket: less than £60,000

Established: 2 years

www.sedsconnective.org

general@sedsconnective.org

07376973688

Charity Commission for England and Wales

Listed activities

Disability

GiG Classification

Services for people with disabilities

How it operates

Makes Grants to Individuals
Provides advocacy/advice/information

Where it operates

East Sussex, West Sussex,

Who it helps

Children/Young People
People With Disabilities
The General Public/Mankind

Who supports them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

National Lottery Community Fund	£10,000
Sussex Community Foundation	£5,000
Co-Operative Group	£1,026

Specific Donations

Amount	When Months	To be used for
Co-Operative Group - Grant to SEDSConnective
£1,026	21/10/2023	We would like to help people with physical, mental and neurodevelopmental issues by hosting support groups, webinars and specialist activities.
Sussex Community Foundation - Grant to SEDSConnective
£500	09/03/2023 6	Funding was provided towards their SEDSConnective Art Show.
National Lottery Community Fund - Admin Support and Webinars
£10,000	13/01/2023	The funding will be used to employ a part-time support worker to provide and develop services for people with hypermobility and neurodivergent syndromes. The project aims to raise awareness of the ....more The funding will be used to employ a part-time support worker to provide and develop services for people with hypermobility and neurodivergent syndromes. The project aims to raise awareness of the conditions and provide advice for improved health and educational support for people living with these conditions.
Sussex Community Foundation - Grant to SEDS Sussex Ehlers-Danlos syndromes and hypermobility support group
£4,500	21/07/2022	Funding was provided towards their online therapy activity groups.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

Gender Split

ABRAHAM ARSHAD MR Appointed: 2023

DAVID MASON Appointed: 2022

JANE FIONA GREEN MBE (Chair) Appointed: 2022

JOANNE FEARNLEY Appointed: 2024

KELLY ELIZABETH HARRIS Appointed: 2022

MONICA MARY COLLINS Appointed: 2022

VIMALA JAYARAMAN Appointed: 2024

Legal constitution

Charity registered in England & Wales on 20/07/2022, number: 1199724

Gift Aid

NOT registered with HMRC for Gift Aid

Policies in force

Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

1 returns made; all on time

Main office

PLANET HOUSE
NORTH HEATH LANE INDUSTRIAL ESTATE
HORSHAM
W SUSSEX
RH12 5QE

Objectives

THE OBJECT OF THE CIO, TO BE CARRIED OUT FOR THE PUBLIC BENEFIT PRIMARILY IN SUSSEX, THE SURROUNDING AREAS AND BEYOND, AS THE TRUSTEES SEE FIT, IS:TO RELIEVE THE NEEDS OF PEOPLE (AND THEIR FAMILIES AND OR THEIR CARERS) LIVING WITH EHLERS-DANLOS SYNDROME (EDS), HYPERMOBILITY SPECTRUM DISORDERS (HSD) OR SYMPTOMATIC HYPERMOBILITY, NEURODIVERGENT CONDITIONS AND ANY ASSOCIATED CONDITIONS OR SYMPTOMS, IN PARTICULAR BUT NOT EXCLUSIVELY, BY: A) PROVIDING ADVICE, INFORMATION AND PEER SUPPORT AS WELL AS FUNDING FOR ACTIVITIES, SUPPORT SERVICES AND EQUIPMENT; AND B) ADVANCING THE EDUCATION OF THE PUBLIC AND ALLIED PROFESSIONALS BY RAISING AWARENESS OF THE ABOVE CONDITIONS;FOR THE PURPOSE OF THIS CLAUSE “NEURODIVERGENT CONDITIONS” INCLUDE, BUT NOT EXCLUSIVELY, AUTISM, ATTENTION DEFICIT HYPERACTIVITY DISORDER (ADHD), DYSPRAXIA AND TOURETTE’S SYNDROME. “ASSOCIATED CONDITIONS OR SYMPTOMS” INCLUDE, BUT ARE NOT LIMITED TO, FIBROMYALGIA,M.E/CFS (CHRONIC FATIGUE SYNDROME), ALLERGIES AND POSTURAL TACHYCARDIA SYNDROME (POTS).

Data Sources