Finance Score: 5

Governance Score: 3

Support Score: 8

Future income +5
No PartB

Gender balanced board: +3

Large volunteers +5
Grant maker support: +3

Overall GiG Score: 16

HOPE FOR PAEDIATRIC EPILEPSY - LONDON

HOPE for Paediatric Epilepsy - London is a small award winning charity that supports families with children and young people affected by epilepsy.

Analysis by Giving is Great

Positives:

This charity has been very successful in attracting volunteers relative to its size
The charity has received backing from several prominent grant makers recently and there are significant future grants due to be received
The Board appears to be well diversified in terms of gender

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income	Spending	Surplus/ Deficit	Volun- teers
31/03/23		£14,802	£12,791	£2,011	20
31/03/22		£17,305	£14,893	£2,412	5

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 3 years

www.hopeforepilepsylondon.org.uk

info@hopeforepilepsylondon.org.uk

07516926703

Charity Commission for England and Wales

Tweets

Listed activities

Disability
Education/Training
General Charitable Purposes

GiG Classification

Services for people with disabilities

How it operates

Provides advocacy/advice/information
Provides services

Where it operates

Barnet,

Who it helps

Children/Young People
People With Disabilities

Who works here?

Unknown number of employees
20 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

National Lottery Community Fund	£8,128
The Grocers' Charity	£4,386
London Catalyst	£1,050

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Anti-suffocation Pillows
£5,628	21/04/2023	The funding will be used to enable the organisation to donate anti-suffocation pillows for children and young people who have epilepsy. The project aims to reduce the risk of sudden unexpected death ....more The funding will be used to enable the organisation to donate anti-suffocation pillows for children and young people who have epilepsy. The project aims to reduce the risk of sudden unexpected death as well as anxiety for family members and carers.
The Grocers' Charity - 2022-HOPE for Paediatric Epilepsy London
£4,386	22/06/2022	Towards the programme cost to provide 20 anti-suffocation pillows to children and young people under the age of 19 who have epilepsy.
National Lottery Community Fund - Supporting Teenagers with Epilepsy Project - The STEP Project
£2,500	23/08/2021	The funding is for monthly support sessions for teenagers with epilepsy. The project aims to help teenagers make a successful transition into adulthood while providing a safe space for them to meet ....more The funding is for monthly support sessions for teenagers with epilepsy. The project aims to help teenagers make a successful transition into adulthood while providing a safe space for them to meet share information and reduce their loneliness and isolation.
London Catalyst - HOPE for Paediatric Epilepsy - London - 1
£1,050	09/02/2021	The HOPE Anti -SUDEP Project Sudden Death in Epilepsy (SUDEP)

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (10)

Current Trustees appointed

Gender Split

Based on 9/10 persons

DR AYESHA DIPU AMY HOLDERNESS Appointed: 2022

ALEXANDER GRAEME COX Appointed: 2018

ANDREA LORAYNE RYAN Appointed: 2021

DR ANNA CATRINA WOOD Appointed: 2021

DR CHARLES ANDREW STEWARD Appointed: 2022

DR NADINE JANE GURR (Chair) Appointed: 2014

DR SOPHIE DANIELLE BENNETT Appointed: 2018

LISA JAYNE O'BRIEN Appointed: 2023

LOUISE CHRISTINE MILLER Appointed: 2021

SIMON DAVID HUGHES Appointed: 2023

Legal constitution

Charity registered in England & Wales on 19/11/2020, number: 1192441

Gift Aid

NOT registered with HMRC for Gift Aid

Policies in force

Investing charity funds policy and procedures
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Trustee conflicts of interest policy and procedures
Volunteer management

Filing Record

2 returns made; all on time

Recent reorganisation events:

Asset transfer in from F.A.B.L.E (FOR A BETTER LIFE WITH EPILEPSY) on 09/08/2022

Main office

OAKLEIGH SCHOOL
OAKLEIGH ROAD NORTH
LONDON
N20 0DH

Objectives

TO PRESERVE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF CHILDREN AND YOUNG PEOPLE LIVING WITH EPILEPSY AND THEIR PARENTS AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT, EDUCATION, RECREATIONAL ACTIVITIES AND PRACTICAL ADVICE.

Data Sources