Finance Score: -2

Governance Score: 0

Support Score: 7

Multiple Deficits: -2
No PartB

No volunteer policy: -2
Dynamic board: +3
Mainly female board: -1

Large volunteers +3
Grant maker support: +4

Overall GiG Score: 5

CAVERNOMA ALLIANCE UK

To provide information support and services for those with cavernomas and their carers, providing the only readily available information in the UK. CAUK creates support networks and raises awareness among medical professionals.

Analysis by Giving is Great

Positives:

This charity has been successful in attracting volunteers relative to its size
The charity has received backing from a grant maker recently
Spending has increased over the last 3 years relative to the previous period, despite a decline more recently
The Board appears to be dynamic in terms of composition

Regulatory & Governance issues to consider:

Although this charity works with volunteers it does not have a Volunteer Management policy
The Board is predominantly female

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
On several occasions in recent years income has been less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
30/09/22		£135	£130	£5	n/a	n/a	n/a	n/a	n/a	48
30/09/21		£102	£133	£-31	n/a	n/a	n/a	n/a	n/a	46
30/09/20	*	£104	£95	£9	n/a	n/a	n/a	n/a	n/a	37
30/09/19		£127	£145	£-17	n/a	n/a	n/a	n/a	n/a	93
30/09/18		£129	£108	£21	£0	£0	£0	n/a	0	46
30/09/17		£113	£109	£4	£0	£0	£0	n/a	0	0
30/09/16		£139	£138	£1	£0	£0	£0	n/a	0	0
30/09/15?		£132	£151	£-19	£0	£0	£0	n/a	0	0
13/07/14		£122	£70	£52	£0	£0	£0	n/a	0	0
13/07/13		£45	£34	£10	£0	£0	£0	n/a	0	0
13/07/12		£32	£23	£9	£0	£0	£0	n/a	0	0
13/07/11		£16	£21	£-6	£0	£0	£0	n/a	0	0
13/07/10	*	£39	£19	£21	£0	£0	£0	n/a	0	0
13/07/09		£21	£14	£7	£0	£0	£0	n/a	0	0
13/07/08		£11	£10	£1	£0	£0	£0	n/a	0	0
11/07/07	*	£3	£4	£-1	£0	£0	£0	n/a	0	0

Show more rows -->

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 18 years

www.cavernoma.org.uk

admin@cavernoma.org.uk

01305 234 912

Charity Commission for England and Wales

Tweets

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Other specialist outpatient services

How it operates

Acts as an umbrella or resource body
Provides advocacy/advice/information

Where it operates

Ireland, Northern Ireland, Scotland, Throughout England,

Who it helps

Other Defined Groups
People With Disabilities
The General Public/Mankind

Who works here?

Unknown number of employees
48 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

Garfield Weston Foundation	£10,000
National Lottery Community Fund	£9,997
DCMS	£8,800
Department for Business, Energy and Industrial Strategy	£6,624

Specific Donations

Amount	When Months	To be used for
Department for Business, Energy and Industrial Strategy - Manchester Metropolitan University and Apex Engage Limited KTP 21_22 R3
£6,624	01/04/2022	Full Grant details (including summaries) can be found on the Gateway to Research website: https://gtr.ukri.org/projects?ref=10022510
DCMS - Coronavirus Community Support Fund
£8,800	21/08/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
Garfield Weston Foundation - Main Grants award
£10,000	04/09/2019	Adult support services for people impacted by cavernoma
National Lottery Community Fund - Adult Community Support Services
£9,997	07/08/2019 12	Adult Community Support Services
National Lottery Community Fund - Big Step
£198,303	29/04/2013 72	This is a development of an existing project by Cavernoma Alliance UK (CAUK) to improve the lives of those affected by cavernoma through membership of CAUK and the many services it provides. ....more This is a development of an existing project by Cavernoma Alliance UK (CAUK) to improve the lives of those affected by cavernoma through membership of CAUK and the many services it provides. Cavernoma, otherwise known as cerebral cavernous malformations or cavernous angioma, are clusters of abnormal leaky blood vessels found primarily in the brain and spinal cord, which present as haemorrhage. Most people have never heard of this, but they are not rare, with one in six hundred people having at least one.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

Gender Split

Based on 6/7 persons

ALEX FORD Appointed: 2023, Other trusteeship: CAVERNOMA ALLIANCE UK,

BARBARA MARY EDMONDS Appointed: 2021

EMILY FLETCHER Appointed: 2023, Other trusteeship: CAVERNOMA ALLIANCE UK,

HEATHER CHARLOTTE DUNBAR (Chair) Appointed: 2020, Other trusteeship: CAVERNOMA ALLIANCE UK,

JADE LOREN DAVIES Appointed: 2020, Other trusteeship: CAVERNOMA ALLIANCE UK,

MARK JONATHAN FARRAR Appointed: 2020, Other trusteeship: CAVERNOMA ALLIANCE UK,

ROXANNA OLIVE JACQUELINE DIXON Appointed: 2014, Other trusteeship: CAVERNOMA ALLIANCE UK,

Legal constitution

Charity registered in England & Wales on 10/05/2006, number: 1114145

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Paying staff
Risk management
Safeguarding vulnerable beneficiaries

Filing Record

16 returns made; AR20: 1 days late, AR10: 42 days late, AR07: 17 days late,

Main office

Cavernoma Alliance Uk
PO Box 366
WATLINGTON
Oxfordshire
OX10 1GF

Objectives

1. PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF CAVERNOMA THROUGH THE PROVISION OF SUPPORT, EDUCATION, RESEARCH AND PRACTICAL ADVICE AND2. ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO CAVERNOMA

Defined Area of Benefit:

NATIONAL

Data Sources