Finance Score: 0

Governance Score: 3

Support Score: 1

Large legacies income: +1
Spending falling: -1
No PartB

Gender balanced board: +3

Grant maker support: +1

Overall GiG Score: 4

THE BRITTLE BONE SOCIETY

The Brittle Bone Society (BBS) exists to support those living with Osteogenesis Imperfecta (OI). Our core purposes are to: provide information, advice support and equipment to anyone affected by OI; build public awareness of the condition and increase the profile of the BBS in the NHS service and general population; promote the BBS to hospitals,support groups, individuals and anyone affected by OI

Analysis by Giving is Great

Positives:

The charity has received backing from a grant maker
This charity has received considerable income from legacies in recent years
The Board appears to be well diversified in terms of gender

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23	£0	£0	£0	n/a	n/a	n/a	n/a	n/a	0
31/03/22	£510	£253	£257	£43	£619	£581	27.6	4	20
31/03/21	£192	£203	£-11	n/a	n/a	n/a	n/a	n/a	20
31/03/20	£287	£354	£-67	n/a	n/a	n/a	n/a	n/a	30
31/03/19	£399	£386	£13	n/a	n/a	n/a	n/a	n/a	50
31/03/18	£359	£328	£32	£0	£0	£0	n/a	0	0
31/03/17	£240	£286	£-46	£0	£0	£0	n/a	0	0
31/03/16	£492	£376	£117	£0	£0	£0	n/a	0	0
31/03/15	£315	£324	£-8	£0	£0	£0	n/a	0	0
31/03/14	£335	£350	£-15	£0	£0	£0	n/a	0	0
31/03/13	£362	£311	£51	£0	£0	£0	n/a	0	0
31/03/12	£272	£319	£-47	£0	£0	£0	n/a	0	0
31/03/11	£331	£344	£-13	£0	£0	£0	n/a	0	0
31/03/10	£336	£315	£21	£0	£0	£0	n/a	0	0
31/03/09	£232	£272	£-39	£0	£0	£0	n/a	0	0
31/03/08?	£394	£391	£4	£0	£0	£0	n/a	0	0
30/09/06	£289	£241	£49	£0	£0	£0	n/a	0	0
30/09/05	£224	£230	£-6	£0	£0	£0	n/a	0	0
30/09/04	£0	£0	£0	n/a	n/a	n/a	n/a	n/a	0

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Highest pay bracket: less than £60,000

Established: 48 years

www.brittlebone.org

bbs@brittlebone.org

01382204446

Charity Commission for England and Wales

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Other specialist outpatient services

How it operates

Makes Grants to Individuals
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Ireland, Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Other Defined Groups
People With Disabilities

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
Garfield Weston Foundation - Main Grants award
£10,000	11/03/2022	Core Funding to support individuals with Osteogenesis Imperfecta.
Garfield Weston Foundation - Main Grants award
£10,000	28/05/2019	Core Funding Application
Garfield Weston Foundation - Main Grants award
£10,000	14/02/2018	Core Funding to support people with Osteogenesis Imperfecta
BBC Children in Need - Grant to Brittle Bone Society
£63,785	09/02/2017 36	This project helps children from all over the UK who have Brittle Bone disease. It provides information, advice and support, plus fun and get-togethers in their Cool Bones programme, to help them ....more This project helps children from all over the UK who have Brittle Bone disease. It provides information, advice and support, plus fun and get-togethers in their Cool Bones programme, to help them improve their health and wellbeing and make friends.
National Lottery Community Fund - Patient Workshops (Two to be held in Scotland over a year)
£10,000	01/12/2014 12	Not Available
National Lottery Community Fund - Voice 2014, a youth event for people with Osteogenesis Imperfecta (OI)
£10,000	28/11/2013 12	This is a project by a charity in Dundee, serving beneficiaries in Bristol. The group will use the funding to hold a youth conference weekend event for young people living with a genetic bone ....more This is a project by a charity in Dundee, serving beneficiaries in Bristol. The group will use the funding to hold a youth conference weekend event for young people living with a genetic bone disorder. This will build capacity for peer support, enable beneficiaries to raise awareness of improving their health through sharing sessions and enable them to reach their full potential._x000B_
National Lottery Community Fund - VOICE Ireland
£10,000	08/11/2012 12	The group offers support to those have Osteogenesis Imperfecta (OI). The grant will be used to provide a Youth Conference event.

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (10)

Gender Split

Based on 9/10 persons

THINES GANESHAMOORTHY Appointed: 2021

ANGELA STEWART BA HONS Appointed: 2017

DOMINIC HYAMS Appointed: 2022

ELAINE HEALEY (Chair)

ELIZABETH ROBERTSON Appointed: 2022

JOHN PHILLIPS

PROFESSOR MARGARET SMITH OBE Appointed: 2018

PROFESSOR NICK BISHOP Appointed: 2015

YVONNE GRANT

ROBERT WILLIAM GORDON FCA, Other trusteeship: STANWIX COMMUNITY ASSOCIATION,

Legal constitution

Charity registered in England & Wales on 13/10/1976, number: 272100

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

19 returns made; all on time

Main office

BRITTLE BONE SOCIETY
30 GUTHRIE STREET
DUNDEE
DD1 5BS

Objectives

TO ADVANCE RESEARCH INTO THE CAUSES, INHERITANCE AND MANAGEMENT OF OSTEOGENESIS IMPERFECTA AND SIMILAR DISORDERS AND TO PUBLISH THE RESULTS OF SUCH RESEARCH AND TO RELIEVE PERSONS SUFFERING FROM SUCH DISORDERS.

Defined Area of Benefit:

NOT DEFINED

Data Sources