Finance Score: -6
Governance Score: 8
Support Score: 5
  • Liabilities <10%: +3
  • Large legacies income: +1
  • Multiple Deficits and declines: -5
  • Fundraising costs high: -5
  • 12+ Trustees: -1
  • Good trustee age range: +3
  • Dynamic board: +3
  • Gender balanced board: +3
  • Overall weighted support: +5
Overall GiG Score: 7 ?

BRITISH EPILEPSY ASSOCIATION

Exists to improve the lives of people affected by epilepsy.
Analysis by Giving is Great

Positives:

  • The charity has received backing from several prominent grant makers recently
  • This charity has a robust balance sheet
  • This charity has received considerable income from legacies in recent years
  • The Board appears to be well diversified in terms of age and gender and dynamic in terms of composition

Regulatory & Governance issues to consider:

  • Why are there 15 trustees whereas the Charities Commission recommends a maximum of 12?

Financial issues to consider:

  • Income has been volatile and on several occasions in recent years less than spending
  • Fundraising costs are extremely high relative to funds raised

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit £k
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/12/23£2,767£4,113£-1,346£1,316£3,990£2,4637.275326
31/12/22£5,308£3,512£1,795£1,333£5,269£3,69212.664500
31/12/21£3,315£3,300£15£1,154£3,672£3,0121163500
31/12/20£2,395£3,126£-731£1,011£3,445£2,73310.570200
31/12/19£3,415£3,746£-331£1,193£4,362£3,71211.974850
31/12/18£3,719£3,167£552£998£4,358£3,49213.2700
31/12/17£3,188£2,914£273£1,002£4,065£3,36813.9650
31/12/16£3,758£2,709£1,050£875£3,513£2,75412.2600
31/12/15£2,956£2,649£306£963£2,313£1,7247.8540
31/12/14£2,534£2,765£-231£1,001£2,015£1,4146.1550
31/12/13£2,382£3,458£-1,076£1,183£2,185£1,4865.2620
31/12/12£3,068£3,565£-497£1,325£3,016£2,1297.2570
31/12/11£2,849£3,243£-394£988£3,309£2,4058.9580
31/12/10£3,041£3,099£-58£905£3,778£2,77810.8570
31/12/09£3,378£2,989£389£1,142£3,635£2,52110.1540
31/12/08£3,384£3,524£-141£1,472£3,184£2,0256.9550
31/12/07£3,198£3,488£-290£1,331£3,668£2,3448.1600
31/12/06*£3,522£3,418£104n/an/an/an/an/an/a
31/12/05£3,593£3,050£543n/an/an/an/an/an/a
31/12/04*£3,043£2,703£340n/an/an/an/an/an/a

Financial Ratios
Fundraising Costs/Relevant Income: 51.7%
Fundraising Costs/Total Spending: 32.2%
Senior Staff Costs/Total Spending: 7%
Highest pay band: £90,000-£100,000
Liabilities/Assets: 8%
Liabilities/Income: 12%
Unrestricted Funds/Total Funds: 62%
Reserves/Spending: 7.2 months
Net Current Assets/Spending: 5 months
Quick Ratio: 2.6
Asset Split ?
Balance Sheet History
Established: 60 years

www.epilepsy.org.uk

epilepsy@epilepsy.org.uk

01132108800

Charity Commission for England and WalesCompanies HouseFacebookInstagramX
UN SDGs
?
Listed activities
  • Disability
  • Education/Training
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • Services for people with disabilities
How it operates
  • Makes grants to organisations
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Guernsey, Isle Of Man, Jersey, Northern Ireland, Scotland, Throughout England And Wales,
Who it helps
  • Children/Young People
  • Elderly/Old People
  • People With Disabilities
  • The General Public/Mankind

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
Garfield Weston Foundation£60,000
National Lottery Community Fund£13,000
The Grocers' Charity£4,500
Specific Donations
Amount When
Months
To be used for
Garfield Weston Foundation - Main Grants award
£30,000 27/01/2023
Epilepsy Action Befriending Scheme
National Lottery Community Fund - Epilepsy My Family and Me
£5,200 11/07/2022
British Epilepsy Association will work in North Wales bringing together children and young people with epilepsy their siblings parents and carers for a day out. Two Epilepsy Specialist Nurses will be on hand to provide health related learning ....more
The Grocers' Charity - 2021 - Epilepsy Action
£4,500 17/11/2020
Towards project costs to produce tools for healthcare workers to understand better epilepsy to support up to 200 people with learning difficulties in care, at any given time.
National Lottery Community Fund - ‘Epilepsy My Family and Me’ Event in North Wales
£4,200 15/04/2020
12
British Epilepsy Association in Conwy will run an activity that will connect children and young people with epilepsy in North Wales and provide awareness training. £4200 will fund venue staff expenses and informative materials. Bydd Cymdeithas ....more
Garfield Weston Foundation - Main Grants award
£30,000 13/03/2020
Employment Project
National Lottery Community Fund - Epilepsy, My Family and Me event in Moneymore
£3,600 28/11/2019
0
The British Epilepsy Association, known as Epilepsy Action, is using a £3,600 grant to deliver a project at the Jungle NI facility outside Moneymore, to give young people with epilepsy the chance to learn, build confidence and make friends as well ....more
National Lottery Community Fund - 'Epilepsy, My Family and Me' Event in Treharris
£4,050 25/07/2019
12
Project Summary :_x000D_ British Epilepsy Association will use the grant to run an outdoor pursuits day for young people with Epilepsy and their families throughout South Wales, where they can try new activities which they would not be able to ....more
RS Macdonald Charitable Trust - Self-management training for people with epilepsy
£3,500 21/02/2018
A virtual course, ‘Epilepsy and you’, was launched which helps adults with epilepsy to build confidence, knowledge and skills to manage their condition.
National Lottery Community Fund - Epilepsy Action Family Camp Weekend
£10,000 07/02/2018
12
The group will run a weekend camp for children and young people with epilepsy, and their families. This will improve the social wellbeing and communication skills of young people and provide respite for families.
Garfield Weston Foundation - Main Grants award
£25,000 14/09/2017
Advice and Information for people with epilepsy
National Lottery Community Fund - North Wales Bilingual Project
£159,300 23/03/2016
36
North Wales Bilingual Project
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (15)
Current Trustees appointed
Gender Split

Age Range of Trustees: 27-69
  • CAMERON HILL Appointed: 2023, Occupation: Civil Servant
  • DIANE JENNIFER HOCKLEY Appointed: 2017, Occupation: Manager
  • DEIRDRE BLACK Appointed: 2023, Occupation: Senior Manager
  • DR PETER CLOUGH Appointed: 2012, Occupation: Associate Specialist In Epilepsy
  • IAN WALKER Appointed: 2010, Occupation: It & Business Consultant
  • JUNE ELEANOR MASSEY Appointed: 2007, Occupation: Consultant
  • JANE ELIZABETH RILEY (Chair) Appointed: 2014, Occupation: Associate Director Of Transformation
  • JOANNE GREER Appointed: 2021, Occupation: None
  • KATIE STEVENS Appointed: 2022, Occupation: Accountant
  • NICOLA ADAMSON Appointed: 2024, Occupation: Retired
  • RICHARD JOHN CHAPMAN Appointed: 1987, Occupation: Government Executive
  • ROBERT NICHOLAS HUTTON Appointed: 2021, Occupation: Retired Solicitor
  • SALLY ANNE TAYLOR Appointed: 2024, Occupation: Analyst
  • SARAH LAWSON Appointed: 2018, Occupation: Event Organiser
  • THOMAS OSBORNE MCLAUGHLAN Appointed: 2022, Occupation: Retired
Legal constitution
  • Charitable company registered in England & Wales on 05/08/1964, number: 234343
  • Registered at Companies House on 25/03/1964, number: 00797997
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Filing Record
20 returns made; AR06: 5 days late, AR04: 365 days late,
Main office

NEW ANSTEY HOUSE
GATE WAY DRIVE
YEADON
LEEDS
LS19 7XY

Objectives

(I) TO SUPPORT PEOPLE WITH EPILEPSY OR THOSE WITH AN INTEREST IN THE CONDITION(II) TO RAISE AWARENESS AND UNDERSTANDING OF THE CONDITIONAND(III) TO PROMOTE RESEARCH INTO EPILEPSY

Defined Area of Benefit:

NATIONAL

Data Sources

Charity Commission for England and Wales
360 Giving

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