AMY AND FRIENDS

This funding will support the project to deliver wellbeing support and activities for children and their families who are affected by rare DNA disorders.

The funding will be used to continue to provide advice and advocacy support for children young people their families and carers who are diagnosed with rare DNA disorders known as Cockayne Syndrome Trichothiodystrophy and Bloom Syndrome. The project ....more

The funding will be used to continue to provide advice and advocacy support for children young people their families and carers who are diagnosed with rare DNA disorders known as Cockayne Syndrome Trichothiodystrophy and Bloom Syndrome. The project aims to improve overall wellbeing and reduce isolation.

Clinic

In support of sight loss organisations based and working in London. This funding supports the sight loss sector’s continued adaptation and recovery during the protracted pandemic and the current economic crisis. Open primarily to charities whose ....more

In support of sight loss organisations based and working in London. This funding supports the sight loss sector’s continued adaptation and recovery during the protracted pandemic and the current economic crisis. Open primarily to charities whose main purpose is in support of those living with or at risk of sight loss. For the continuation of a project, this project must be in support of those living with or at risk of sight loss. Applications for grants of up to £10,000 (for up to 12-24 months) to meet either operational costs, or for any other project activities supporting those living with or at risk of sight loss. Priority will be given to organisations which have been in receipt of a Vision Fund grant within the last three years.

Unrestricted core funding for small charities

3 year grant for the salary of the Family Support Manager

This group delivers wellbeing sessions to children who have siblings with life limiting or life affecting condition. The sessions will be delivered on-line and organised by a sessional worker. Three sessions each week will be specific to the needs ....more

This group delivers wellbeing sessions to children who have siblings with life limiting or life affecting condition. The sessions will be delivered on-line and organised by a sessional worker. Three sessions each week will be specific to the needs of users including relaxation techniques for parents/carers sessions for the child suffering from the disorder and sessions for the siblings.

Amy and Friends in Denbighshire will use £10000 to fund a sessional worker to continue providing weekly siblings support sessions for children who live with a life limiting or life affecting condition due to an increased demand during COVID - 19.

The funding will be used to deliver online support for families with children who have a life limiting illness. Parents siblings and the child will receive the necessary advice information and guidance to encourage them to regain confidence to live ....more

The funding will be used to deliver online support for families with children who have a life limiting illness. Parents siblings and the child will receive the necessary advice information and guidance to encourage them to regain confidence to live their lives to full potential post lockdown with the aim of promoting wellbeing.

Amy and Friends in North Wales will send out activity packs hold online meetings and maintain contact with children whose siblings are suffering with life limiting or life affecting conditions during the pandemic. £10000 will fund a sessional ....more

Amy and Friends in North Wales will send out activity packs hold online meetings and maintain contact with children whose siblings are suffering with life limiting or life affecting conditions during the pandemic. £10000 will fund a sessional worker to run the online sessions. Bydd Amy and Friends yng Ngogledd Cymru yn anfon pecynnau gweithgareddau yn cynnal cyfarfodydd ar-lein ac yn cadw mewn cysylltiad â phlant y mae eu brodyr a'u chwiorydd yn dioddef o gyflyrau sy'n cyfyngu ar fywyd neu sy'n effeithio ar fywyd yn ystod y pandemig. Bydd £10000 yn ariannu gweithiwr sesiynol i gynnal y sesiynau ar-lein.

To fund the costs of a sessional worker who will deliver weekly mental health sessions at 3 sites for 6 months called My Time To Be Me for children who have a poorly brother/sister or who have sadly lost their sibling.

This group will use funding to support the siblings of children with life-limiting conditions such as Cockayne Syndrome (CS) and Trichothiodystrophy (TTD) in South Lanarkshire for one year. The group supports around 22 families in this area.

This group will use funding for a sessional family worker to support 34 families affected by rare disorders such as Cockayne Syndrome and Trichothiodystrophy in South Lanarkshire. Families will be supported by activity packs and virtual one-to-one ....more

This group will use funding for a sessional family worker to support 34 families affected by rare disorders such as Cockayne Syndrome and Trichothiodystrophy in South Lanarkshire. Families will be supported by activity packs and virtual one-to-one support.

Amy and Friends has received a grant of £72500 to employ a Wellbeing Officer to support siblings and families of children with a life limiting illness in North Wales. The project will help them to feel less isolated and build support networks which ....more

Amy and Friends has received a grant of £72500 to employ a Wellbeing Officer to support siblings and families of children with a life limiting illness in North Wales. The project will help them to feel less isolated and build support networks which will reduce stress and improve their health. Mae Amy And Friends wedi derbyn grant o £72500 i gyflogi Swyddog Lles i gefnogi brodyr a chwiorydd a theuluoedd plant sydd â salwch sy'n cyfyngu ar fywyd yng Ngogledd Cymru. Bydd y prosiect yn eu helpu i deimlo'n llai ynysig ac adeiladu rhwydweithiau cymorth a fydd yn lleihau straen ac yn gwella eu hiechyd.

£16,800 to fund the essential and urgent costs outlined in the application, in order to carry on providing support to Londoners.

The organisation will employ an activity coordinator to remotely work with children with Cockayne Syndrome and their families who are most affected by the Covid-19 virus and who have been advised to self-isolate at home for a minimum of 12 weeks. ....more

The organisation will employ an activity coordinator to remotely work with children with Cockayne Syndrome and their families who are most affected by the Covid-19 virus and who have been advised to self-isolate at home for a minimum of 12 weeks. The projects aims to keep children and their siblings supported during this crisis to improve their mental health and motivation and reduce feelings of severe isolation and anxiety.

The group will use funding to facilitate a grief counselling and well being weekend for families who are affected by or have lost a child to Cockayne Syndrome and Trichothiodystrophy.

Amy and Friends in Flintshire will open a fourth club in the county to support children who are suffering with feelings of sadness, isolation, guilt, loneliness, anxiety and depression. £9,375 will fund a Sessional Worker, rent, refreshments and ....more

Amy and Friends in Flintshire will open a fourth club in the county to support children who are suffering with feelings of sadness, isolation, guilt, loneliness, anxiety and depression. £9,375 will fund a Sessional Worker, rent, refreshments and activities for two clubs.

My Time to be Me

My Time To Be Me

This group will use the funding to deliver a weekend of team building activities and fun for children living with a premature ageing condition, and their siblings. The project will bring them together, build their skills and help to reduce issues ....more

This group will use the funding to deliver a weekend of team building activities and fun for children living with a premature ageing condition, and their siblings. The project will bring them together, build their skills and help to reduce issues such as anxiety and isolation. drink

Towards the costs of the weekly “My Time to be Me” siblings group.

This project will involve a Family Support Worker to work with families, children with Cockayne Syndrome, their siblings and their local service groups, providing information, support and advice, respite, and run a weekly siblings group.

The organisation will use the funding to run a residential weekend for families with children who have a limited life expectancy due to suffering from Cockayne syndrome. This will improve support networks and reduce isolation, feelings of guilt, low ....more

The organisation will use the funding to run a residential weekend for families with children who have a limited life expectancy due to suffering from Cockayne syndrome. This will improve support networks and reduce isolation, feelings of guilt, low self-esteem and sadness.

This is a project by a charity in Liverpool. The organisation will use funding to run activities and events which will aim to improve the health and wellbeing of siblings of very ill children._x000B__x000B_

the salary of the Family Support Worker

This registered charity offers nationwide support to people suffering from Cockayne Syndrome (CS). The group will use their retreat to develop and offer support to the siblings and families of sufferers. By addressing this as well as continuing ....more

This registered charity offers nationwide support to people suffering from Cockayne Syndrome (CS). The group will use their retreat to develop and offer support to the siblings and families of sufferers. By addressing this as well as continuing their work with people who have CS, the group will improve family relations and the personal development of the family members who haven't previously received focused support.