Finance Score: 0

Governance Score: 6

Support Score: 5

No PartB

Good trustee age range: +3
Gender balanced board: +3

Large volunteers +3
Grant maker support: +2

Overall GiG Score: 11

FAHR BEYOND

To preserve and protect the health of patients with Fahrs Disease and allied conditions.Provide assistance to people with Fahrs and/or their families, dependents, and other persons affected by FahrsPromote, support, and disseminate research into the causes, prevention, treatment and cure of FahrsAdvance the education of the public (including medical professionals) about Fahrs

Analysis by Giving is Great

Positives:

This charity has been successful in attracting volunteers relative to its size
The charity has received backing from a grant maker recently
The Board appears to be well diversified in terms of age and gender

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Y/E		Income	Spending	Surplus/ Deficit	Volun- teers
28/02/23	*	£13,484	£7,493	£5,991	3

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Highest pay bracket: less than £60,000

Established: 2 years
(7 years as a company)

www.fahrbeyond.org

enquiries@fahrbeyond.org

Charity Commission for England and Wales

Tweets

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Medical education & research

How it operates

Acts as an umbrella or resource body
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

People With Disabilities

Who works here?

Unknown number of employees
3 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Building the Fahr's Community
£10,000	22/07/2022	The funding will be used to recruit a member of staff to coordinate activities raise awareness and build the capacity of a charity which supports people who are living with Fahr's disease. It will ....more The funding will be used to recruit a member of staff to coordinate activities raise awareness and build the capacity of a charity which supports people who are living with Fahr's disease. It will also be used to develop and publish educational literature about the disorder. The project aims to provide more responsive support for people living with the disease.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (5)

Current Trustees appointed

Gender Split

Age Range of Trustees: 32-61

ADAM JOHN TATE (Chair) Appointed: 2017, Occupation: Director

ALISON DIANE MILLER Appointed: 2022, Occupation: Analyst

DR AMIT BATLA Appointed: 2022, Occupation: Doctor

DR CARINA JACQUELINE FEARNLEY Appointed: 2017, Occupation: Lecturer

VANESSA CATHARINE TATE Appointed: 2018, Occupation: Secretary

Legal constitution

Charitable company registered in England & Wales on 10/12/2021, number: 1197040
Registered at Companies House on 03/01/2017, number: 10545212

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

1 returns made; AR23: 84 days late,

Main office

24 BRENTINGBY CLOSE
MELTON MOWBRAY
LE13 1ES

Objectives

TO PRESERVE AND PROTECT THE HEALTH OF PATIENTS WITH THE CONDITION KNOWN AS FAHR'S DISEASE AND ALLIED CONDITIONS (REFERRED TO HERE AS FAHR'S), BY:A. PROVIDING AND ASSISTING IN THE PROVISION OF ASSISTANCE, SUPPORT AND ADVICE TO PEOPLE WITH FAHR'S AND/OR THEIR FAMILIES, DEPENDENTS, FRIENDS AND CARERS AND OTHER PERSONS AFFECTED BYFAHR'S;B. PROMOTING AND SUPPORTING RESEARCH INTO THE CAUSES, PREVENTION, TREATMENT AND CURE OF FAHR'S AND DISSEMINATING THE RESULTS OF SUCH RESEARCH;C. ADVANCING THE EDUCATION OF THE PUBLIC (INCLUDING HEALTH AND SOCIAL CARE PROFESSIONALS) ON ISSUES RELATING TO FAHR'S.

Data Sources