Finance Score: 5

Governance Score: 0

Support Score: 9

Future income +5
No PartB

Large volunteer base +5
Overall weighted support: +4

Overall GiG Score: 14

FOWLER'S SYNDROME UK

THE ADVANCEMENT OF EDUCATION AMONGST THE MEDICAL PROFESSION AND THE PUBLIC ON THE SYMPTOMS, CAUSES AND TREATMENT OF FOWLERS SYNDROME LIVING IN ENGLAND AND WALES BY OFFERING SUPPORT TO ANYONE CURRENTLY LIVING WITH THIS CONDITION, IN PARTICULAR THROUGH RAISING AWARENESS AND MEDICAL RESEARCH INTO THE CAUSES, COMPLICATIONS, TREATMENTS, MEDICATIONS AND RESEARCH FOR THIS CONDITION.

Analysis by Giving is Great

Positives:

This charity has been very successful in attracting volunteers relative to its size
The charity has received backing from a grant maker recently and there are significant future grants due to be received

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income	Spending	Surplus/ Deficit	Volun- teers
31/12/23		£30	£28	£2	n/a
31/12/22		£41	£1	£40	n/a

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 3 years

www.fowlerssyndrome.co.uk

hello@fowlerssyndrome.co.uk

07863339720

Charity Commission for England and Wales

Tweets

Listed activities

Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Medical research

How it operates

Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Scotland, Throughout England And Wales,

Who it helps

Other Defined Groups
People With Disabilities

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
The Fore - Grant to Fowler's Syndrome UK
£30,000	01/12/2022 36	Fowler’s Syndrome is a unique charity that works to raise awareness, promote education, and encourage research into the debilitating bladder condition, Fowler’s Syndrome. Whilst Fowler’s syndrome is estimated to affect 20,000 women in the UK, ....more Fowler’s Syndrome is a unique charity that works to raise awareness, promote education, and encourage research into the debilitating bladder condition, Fowler’s Syndrome. Whilst Fowler’s syndrome is estimated to affect 20,000 women in the UK, there is low awareness of the condition in the medical field outside of specialist hospitals. The charity’s work is crucial to creating a community of patients, clinicians, and researchers to improve women’s health. The charity is using The Fore’s grant to fund a salaried CEO in order to transform the organisation into a sustainable charity, able to deliver at scale and reach its potential.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

ANNE INGRID HOERITZAUER (Chair) Appointed: 2024

CAROLINE PETERSEN Appointed: 2021

HANNAH MARIE EDWARDS Appointed: 2021

JESPER JENSEN Appointed: 2023

KONSTANTINOS CHARITOPOULOUS Appointed: 2021

MATTHEW COOMBE Appointed: 2021

RORY JAMES LAYTON KNIGHTON Appointed: 2021

Legal constitution

Charity registered in England & Wales on 03/12/2021, number: 1196903

Gift Aid

NOT registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Paying staff
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

2 returns made; all on time

Main office

Fowler's Syndrome UK (FSUK)
42 York Street
TWICKENHAM
London Borough Of Richmond
Upon Thames
TW1 3BW

Objectives

THE OBJECTS ARE:THE ADVANCEMENT OF EDUCATION AMONGST THE MEDICAL PROFESSION AND THE PUBLIC ON THE SYMPTOMS, CAUSES AND TREATMENT OF FOWLER’S SYNDROME LIVING IN ENGLAND AND WALES BY OFFERING SUPPORT TO ANYONE CURRENTLY LIVING WITH THIS CONDITION, IN PARTICULAR THROUGH RAISING AWARENESS AND MEDICAL RESEARCH INTO THE CAUSES, COMPLICATIONS, TREATMENTS, MEDICATIONS AND RESEARCH FOR THIS CONDITION.

Data Sources

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