Finance Score: 0

Governance Score: 3

Support Score: 4

Strong growth: +2
Deficit latest year: -2
No PartB

Dynamic board: +3

Grant maker support: +4

Overall GiG Score: 7

RING20 RESEARCH AND SUPPORT UK CIO

We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.

Analysis by Giving is Great

Positives:

The charity has received backing from several prominent grant makers recently
There has been strong growth in spending over the last 5 years
There have been no material income shortfalls in recent years
The Board appears to be dynamic in terms of composition

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income was lower than spending in the latest year

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23	£40	£45	£-5	n/a	n/a	n/a	n/a	n/a	4
31/03/22	£40	£32	£8	n/a	n/a	n/a	n/a	n/a	7
31/03/21	£44	£13	£31	n/a	n/a	n/a	n/a	n/a	14
31/03/20	£25	£22	£3	n/a	n/a	n/a	n/a	n/a	7
31/03/19	£70	£6	£63	n/a	n/a	n/a	n/a	n/a	8
31/03/18	£18	£13	£5	£0	£0	£0	n/a	0	0
31/03/17	£20	£8	£11	£0	£0	£0	n/a	0	0

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Highest pay bracket: less than £60,000

Established: 8 years

http://www.ring20researchsupport.co.uk/

ring20@ring20researchsupport.co.uk

+44 (0)7385 292797

Charity Commission for England and Wales

Tweets

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Medical education & research

How it operates

Provides advocacy/advice/information
Provides services

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Children/Young People
People With Disabilities

Who works here?

Unknown number of employees
4 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

Brian Mercer Trust	£12,500
DCMS	£7,950
London Catalyst	£2,500

Specific Donations

Amount	When Months	To be used for
Brian Mercer Trust - Grant to Ring 20 Research and Support UK
£12,500	15/07/2021 12	Support network for families affected by Ring20 chromosonal disorder
London Catalyst - Ring20 Research and Support UK CIO - 1
£2,500	21/06/2021	Mental health impacts of living with Ring20 Syndrome - r(20).
DCMS - Coronavirus Community Support Fund
£7,950	17/08/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
National Lottery Community Fund - Ring20 Rare Disease Social Media Support
£10,000	21/02/2019 12	The organisation will use the funding to improve their services for people with a rare condition linked to epilepsy.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (5)

Current Trustees appointed

DALE WARD Appointed: 2021

DR ANTONIO GIL-NAGEL Appointed: 2024

KIM PARKS Appointed: 2020

LYDIA ELENA HIRST (Chair) Appointed: 2020

TIM BUCKINX Appointed: 2022

Legal constitution

Charity registered in England & Wales on 19/02/2016, number: 1165651

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints policy and procedures
Engaging external speakers at charity events policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

7 returns made; all on time

Main office

LYTCHETT HOUSE
UNIT 13 FREELAND PARK
WAREHAM ROAD
POOLE
DORSET
BH16 6FA

Objectives

“THE OBJECTS OF THE CIO ARE: THE PRESERVATION AND PROTECTION OF HEALTH AND THE RELIEF OF NEED IN PARTICULAR BY:A) PROVIDING ADVICE, SUPPORT AND INFORMATION TO RING CHROMOSOME 20 SYNDROME (R)20 PATIENTS AND THEIR FAMILIES;B) PROVIDING OR ASSISTING IN THE PROVISION OF INFORMATION TO THE PUBLIC ABOUT THE CONDITION (R)20;C) SUPPORTING MEDICAL PROFESSIONALS IN THEIR UNDERSTANDING OF RING CHROMOSOME 20 SYNDROME, (R)20 ITS DIAGNOSIS, PROGNOSIS AND TREATMENT;D) SUPPORTING RESEARCH INTO THE CONDITION, (R)20, ITS CAUSES AND THE MEANS TO IMPROVE THE OUTCOMES FOR THOSE SUFFERING WITH THE CONDITION AND PROMOTING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH.

Data Sources