Finance Score: 0

Governance Score: 6

Support Score: 4

Strong growth: +2
Multiple Deficits: -2

Good trustee age range: +3
Gender balanced board: +3

Overall weighted support: +4

Overall GiG Score: 10

DUCHENNE UK

Duchenne UK's mission is to find a cure for Duchenne Muscular Dystrophy (DMD). Duchenne UK also lobbies government and regulators in support of it's goal and raises public awareness through the media and through events. Duchenne UK provide services and promote opportunities to enable individuals suffering with DMD and their families to live as independently as possible.

Analysis by Giving is Great

Positives:

The charity has received backing from a grant maker
There has been strong growth in spending over the last 5 years
The Board appears to be well diversified in terms of age and gender

Financial issues to consider:

On several occasions in recent years income has been less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit £k	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
30/12/23		£3,941	£2,994	£947	£385	£4,354	£1,137	4.6	15	0
30/12/22	*	£3,758	£2,353	£1,405	£363	£2,519	£717	3.7	12	0
30/12/21		£1,619	£2,071	£-452	£245	£1,329	£353	2	6	0
30/12/20?		£1,637	£1,882	£-245	£89	£2,299	£957	6.1	7	0
30/04/18		£3,949	£2,039	£1,910	£327	£5,713	£4,456	26.2	4	0
30/04/17		£2,357	£948	£1,409	£138	£3,803	£3,277	41.5	3	0
30/04/16		£1,199	£507	£692	£142	£2,395	£2,370	56.1	0	0
30/04/15		£964	£546	£419	£105	£1,703	£1,702	37.4	0	0
30/04/14		£976	£1,331	£-355	£72	£98	£98	0.9	0	0
30/04/13		£482	£29	£453	n/a	n/a	n/a	n/a	n/a	n/a

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Financial Ratios

Fundraising Costs/Relevant Income: 10.3%
Fundraising Costs/Total Spending: 13%
Senior Staff Costs/Total Spending: 6%
Highest pay band: £80,000-£90,000
Liabilities/Assets: 29%
Liabilities/Income: 46%
Unrestricted Funds/Total Funds: 26%
Reserves/Spending: 4.6 months
Net Current Assets/Spending: 19 months
Quick Ratio: 1.9

Asset Split ?

Balance Sheet History

Established: 13 years

www.duchenneuk.org

duchenne@duchenneuk.org

0203 198 6381

Charity Commission for England and Wales

Tweets

Listed activities

Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Outpatient support services

How it operates

Makes grants to individuals
Makes grants to organisations
Sponsors or undertakes research

Where it operates

Throughout England,

Who it helps

Children/Young People
People With Disabilities

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
Postcode Innovation Trust - The SMART Suit
£1,250,000	25/03/2022	The Dream Fund gives organisations the chance to deliver the project they have always dreamed of, but never had the opportunity to bring to life. Charitable organisations across Great Britain are asked to think big, be ambitious and collaborate with ....more The Dream Fund gives organisations the chance to deliver the project they have always dreamed of, but never had the opportunity to bring to life. Charitable organisations across Great Britain are asked to think big, be ambitious and collaborate with other not-for-profit partners to deliver their dream project.
Tuixen Foundation - Core grant to Duchenne UK
£1,000	23/08/2019	Duchenne Muscular Dystrophy is a devastating muscle wasting disease and is the most common genetic killer of children worldwide. We aim to eradicate it in 10 years: TO END DUCHENNE IN TEN
Foundation Scotland - Grant to Duchenne UK
£2,000	30/01/2019	St Fergus day out for safety

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (8)

Current Trustees appointed

Gender Split

Based on 7/8 persons

Age Range of Trustees: 42-75

ANDREW NEBEL Appointed: 2016, Occupation: Company Director

CECILIA CROSSLEY BA ACA MSC Appointed: 2013, Occupation: Founding Director, From Babies With Love

CAROLINE HAZELL Appointed: 2018, Occupation: Marketing Consultant

CHRISTOPHER HARRIS Appointed: 2019, Occupation: Advertising Consultant

HARRIET MOYNIHAN Appointed: 2023, Occupation: Lawyer

NICK CROSSLEY Appointed: 2012, Occupation: Founding Director, From Babies With Love

PETER RICHARD MICHAEL WILLIAMS Appointed: 2022, Occupation: Director

SRI KRISHNAN GURU-MURTHY (Chair) Appointed: 2019, Occupation: Journalist

Legal constitution

Charitable company registered in England & Wales on 02/05/2012, number: 1147094
Registered at Companies House on 14/04/2012, number: 08030768

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures

Filing Record

10 returns made; AR22: 1 days late,

Main office

Unit G.24
Shepherd's Building
Charecroft Way
Hammersmith
London

Objectives

TO PRESERVE AND PROTECT THE HEALTH OF CHILDREN AND ADULTS WITH DUCHENNE MUSCULAR DYSTROPHY, BY PROVIDING FUNDING FOR SUPPORT AND RESEARCH INTO TREATMENTS AND CURES.TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO DUCHENNE MUSCULAR DYSTROPHY BY DISSEMINATING INFORMATION ON THE DISEASE AND ITS TREATMENTS AND CURES.

Data Sources

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