Finance Score: -3

Governance Score: 6

Support Score: 5

Excess liquidity: -1
Fundraising costs high: -2

Good trustee age range: +3
Dynamic board: +3

Overall weighted support: +5

Overall GiG Score: 8

MULTIPLE SYSTEM ATROPHY TRUST

We strive to protect the public health; Providing information, support & extending the range of services available to people with MSA, their families & carers; Educating healthcare professionals on MSA; Improving awareness/understanding & promoting/sponsoring research into causes, diagnosis & treatment; Working with other charities which support those affected by MSA or neurological conditions.

Analysis by Giving is Great

Positives:

The charity has received backing from several prominent grant makers recently
Spending has increased over the last 3 years relative to the previous period
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Regulatory & Governance issues to consider:

Over half the Board have joined recently

Financial issues to consider:

Liquidity appeared to be in excess of CC guidelines at the latest year end especially considering the historic stability of income
Fundraising costs are high relative to funds raised

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit £k	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23		£1,363	£1,356	£8	£277	£2,374	£2,222	19.7	17	75
31/03/22		£1,227	£1,061	£166	£265	£2,379	£2,097	23.7	15	104
31/03/21		£904	£727	£176	£188	£2,108	£1,864	30.8	13	75
31/03/20		£944	£1,206	£-262	£209	£1,679	£1,373	13.7	11	100
31/03/19		£739	£626	£113	£225	£1,944	£1,137	21.8	11	100
31/03/18		£2,410	£1,241	£1,170	£242	£1,805	£1,008	9.7	10	0
31/03/17		£1,030	£787	£242	£197	£632	£685	10.4	9	0
31/03/16		£618	£609	£9	£203	£374	£245	4.8	9	0
31/03/15		£642	£850	£-208	£322	£365	£297	4.2	9	0
31/03/14		£652	£759	£-108	£236	£562	£444	7	6	0
31/03/13		£538	£621	£-83	£154	£660	£646	12.5	4	0
31/03/12		£296	£363	£-67	n/a	n/a	n/a	n/a	n/a	n/a
31/03/11	*	£305	£350	£-45	n/a	n/a	n/a	n/a	n/a	n/a

Show more rows -->

Show financials table -->

Download accounts

Financial Ratios

Fundraising Costs/Relevant Income: 20.7%
Fundraising Costs/Total Spending: 20.4%
Senior Staff Costs/Total Spending: 6%
Highest pay band: £60,000-£70,000
Liabilities/Assets: 18%
Liabilities/Income: 37%
Unrestricted Funds/Total Funds: 94%
Reserves/Spending: 19.7 months
Net Current Assets/Spending: 1 months
Quick Ratio: 1

Asset Split ?

Balance Sheet History

Established: 14 years

www.msatrust.org.uk

admin@msatrust.org.uk

03333234591

Charity Commission for England and Wales

Tweets

Listed activities

The Advancement Of Health Or Saving Of Lives

GiG Classification

Outpatient support services

How it operates

Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Guernsey, Ireland, Isle Of Man, Jersey, Scotland, Throughout England And Wales,

Who it helps

Other Defined Groups

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

Garfield Weston Foundation	£30,000
DCMS	£16,329
National Lottery Community Fund	£9,375
City Bridge Trust	£1,175

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Specialist support for people in Kent with the terminal neurological disease MSA
£9,375	02/09/2022	The funding will be used to continue providing specialist support and a range of advice services for people living with Multiple System Atrophy and their families. The project aims to improve their knowledge wellbeing needs and reducing the feeling ....more The funding will be used to continue providing specialist support and a range of advice services for people living with Multiple System Atrophy and their families. The project aims to improve their knowledge wellbeing needs and reducing the feeling of isolation.
Garfield Weston Foundation - Main Grants award
£30,000	05/03/2021	Support for people living with the terminal neurodegenerative disease MSA.
DCMS - Coronavirus Community Support Fund
£16,329	17/07/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
City Bridge Trust - Grant to Multiple System Atrophy Trust
£1,175	04/05/2020	A grant of £1,175 to fund the essential and urgent costs outlined in the application, so that the organisation can carry on providing support to Londoners.
The Clothworkers Foundation - Grant to Multiple System Atrophy Trust
£1,140	01/05/2020	COVID19 : purchase IT equipment for a charity that works with older people in the west midlands
National Lottery Community Fund - Bringing together people affected by MSA
£10,000	25/10/2019 12	Bringing together people affected by MSA
RS Macdonald Charitable Trust - Supporting People with MSA in Scotland
£15,000	30/05/2018	The project will develop the vital support and information that we provide to people living with MSA, a complex neurodegenerative condition, across Scotland through our MSA Nurse Specialist and our new Advocacy pilot project.
Garfield Weston Foundation - Main Grants award
£20,000	28/11/2017	Supporting People with MSA

Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (11)

Current Trustees appointed

Gender Split

Based on 10/11 persons

Age Range of Trustees: 48-74

CAROL STEPHENSON Appointed: 2023, Occupation: School Bursar

CAROLE BARBRA FERGUSON WALKER Appointed: 2017

CLARE CROFT-WHITE Appointed: 2023, Occupation: Management Consultant

DAVID BARNES Appointed: 2023, Occupation: Finance Director

DR CHRISTOPHER KOBYLECKI Appointed: 2019, Occupation: Consultant Neurologist

DR JALESH PANICKER Appointed: 2021

GRAHAM WATSON Appointed: 2023, Occupation: Retired

LESLIE TURANO-TAYLOR Appointed: 2021, Occupation: University Lecturer

PHILIP GIBBONS Appointed: 2023, Occupation: Managing Director

PROFESSOR DAVID OLIVER Appointed: 2019, Occupation: Retired

PROFESSOR KAILASH PHANTECHAND BHATIA (Chair) Appointed: 2022, Occupation: Professor Of Clinical Neurology

Legal constitution

Charitable company registered in England & Wales on 27/08/2010, number: 1137652
Registered at Companies House on 01/07/2010, number: 07302036

Gift Aid

Registered with HMRC for Gift Aid

Event History

15/08/2022 - Asset transfer in from ROTARY CLUB OF WATERLOOVILLE TRUST FUND
08/08/2023 - Asset transfer in from INNER WHEEL CLUB OF CLIFTON BENEVOLENT FUND
05/11/2024 - Asset transfer in from AUTONOMIC DISORDERS ASSOCIATION SARAH MATHESON TRUST

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

13 returns made; AR11: 102 days late,

Recent reorganisation events:

Asset transfer in from ROTARY CLUB OF WATERLOOVILLE TRUST FUND on 15/08/2022
Asset transfer in from INNER WHEEL CLUB OF CLIFTON BENEVOLENT FUND on 08/08/2023
Asset transfer in from AUTONOMIC DISORDERS ASSOCIATION SARAH MATHESON TRUST on 05/11/2024

Main office

128B Business Design Centre
52 Upper Street
London
N1 0QH

Objectives

THE OBJECTS OF THE CHARITY ARE TO ADVANCE AND PROTECT THE HEALTH OF THE PUBLIC, INPARTICULAR, BY:(A) THE PROVISION OF INFORMATION AND SUPPORT, INCLUDING PRACTICAL AND WELFARESUPPORT, TO THOSE AFFECTED BY MULTIPLE SYSTEM ATROPHY ('MSA'), THEIR FAMILIESAND CARERS;(B) EDUCATING AND INFORMING HEALTHCARE PROFESSIONALS ON ALL ASPECTS OF MSA;(C) PROMOTING AND SPONSORING RESEARCH INTO THE CAUSES, DIAGNOSIS AND TREATMENTOF MSA;(D) IMPROVING AWARENESS AND UNDERSTANDING OF MSA;(E) PROMOTING THE EXTENSION OF THE RANGE OF SUPPORT SERVICES AVAILABLE TO PEOPLEWITH MSA, THEIR FAMILIES AND CARERS; AND(F) WORKING WITH OTHER CHARITIES WHICH SUPPORT THOSE AFFECTED BY MSA OR OTHERNEUROLOGICAL CONDITIONS.

Defined Area of Benefit:

UNDEFINED. IN PRACTICE, NATIONAL

Data Sources

Watch Inspiring Videos

Save the upside down forest

Change the ending - the pain of Alzheimers

Help Dads in prison stay in touch with their children