Finance Score: -3

Governance Score: -4

Support Score: 1

Volatile income: -3
No PartB

No conflicts policy: -1
All male board: -3

Grant maker support: +1

Overall GiG Score: -6

SUSSEX ME/CFS SOCIETY

We inform, support and represent those affected by the Chronic Fatigue Syndrome - ME across Sussex and Kent.

Analysis by Giving is Great

Positives:

The charity has received backing from several prominent grant makers recently
There have been no material income shortfalls in recent years

Regulatory & Governance issues to consider:

This charity does not have a Conflict of Interests policy
The Board is completely male

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income has been volatile recently

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
30/06/23	*	£5	£5	£0	n/a	n/a	n/a	n/a	n/a	0
30/06/22	*	£36	£9	£27	n/a	n/a	n/a	n/a	n/a	10
30/06/21		£7	£6	£1	n/a	n/a	n/a	n/a	n/a	0
30/06/20		£15	£13	£2	n/a	n/a	n/a	n/a	n/a	20
30/06/19		£6	£6	£0	n/a	n/a	n/a	n/a	n/a	0
30/06/18		£8	£8	£0	£0	£0	£0	n/a	0	0
30/06/17		£7	£7	£0	£0	£0	£0	n/a	0	0
30/06/16		£17	£18	£-1	£0	£0	£0	n/a	0	0
30/06/15		£9	£9	£0	£0	£0	£0	n/a	0	0
30/06/14		£13	£8	£5	£0	£0	£0	n/a	0	0
30/06/13		£6	£6	£1	£0	£0	£0	n/a	0	0
30/06/12		£7	£6	£1	£0	£0	£0	n/a	0	0
30/06/11		£6	£7	£-1	£0	£0	£0	n/a	0	0
30/06/10		£11	£9	£1	£0	£0	£0	n/a	0	0
30/06/09		£18	£18	£1	£0	£0	£0	n/a	0	0
30/06/08		£8	£9	£-1	£0	£0	£0	n/a	0	0
30/06/07		£12	£12	£0	£0	£0	£0	n/a	0	0
30/06/06		£12	£15	£-3	£0	£0	£0	n/a	0	0
30/06/05		£50	£53	£-3	£0	£0	£0	n/a	0	0
30/06/04		£52	£52	£0	£0	£0	£0	n/a	0	0

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Highest pay bracket: less than £60,000

Established: 24 years

www.measussex.org.uk

colin.sussexme@btinternet.com

01273674828

Charity Commission for England and Wales

Listed activities

Disability
Education/Training
Other Charitable Purposes
The Advancement Of Health Or Saving Of Lives

GiG Classification

Services for people with disabilities

How it operates

Other charitable activities
Provides advocacy/advice/information
Provides human resources
Provides services

Where it operates

East Sussex, Kent, West Sussex,

Who it helps

Children/Young People
Elderly/Old People
Other Charities Or Voluntary Bodies
People With Disabilities
The General Public/Mankind

Who supports them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
Sussex Community Foundation - Grant to Sussex ME Society
£950	21/07/2022	Funding was provided towards research and development through a survey and report on the NHS and private services for those affected by ME/CFS.
Sussex Community Foundation - Grant to Sussex ME Society
£750	18/11/2020 6	Funding was provided towards the costs of running a medical conference providing health workers, patients and others affected by ME/CFS with the latest information and how to diagnose and manage the ....more Funding was provided towards the costs of running a medical conference providing health workers, patients and others affected by ME/CFS with the latest information and how to diagnose and manage the illness.
Sussex Community Foundation - Grant to Yoga for ME group
£500	21/09/2020	Yoga for ME was founded by the Sussex and Kent ME/CFS Society 25 years ago to offer its members the opportunity for physical exercise and relaxation. The Yoga classes are adapted to their needs, and ....more Yoga for ME was founded by the Sussex and Kent ME/CFS Society 25 years ago to offer its members the opportunity for physical exercise and relaxation. The Yoga classes are adapted to their needs, and run as an affordable drop-in, as the illness is a fluctuating one. Funding will support and establish on-line yoga classes. Teacher salary and venue hire when they are able to re-open.
National Lottery Community Fund - Sussex ME/CFS 2020 IT revamp and improvement
£7,868	23/03/2020 2	The funding will be used to improve access to advice, information and support for people with chronic fatigue syndrome. The project aims to upgrade the group's computer infrastructure in order to ....more The funding will be used to improve access to advice, information and support for people with chronic fatigue syndrome. The project aims to upgrade the group's computer infrastructure in order to better support people who are experiencing health and social issues associated with ME/CFS.
Sussex Community Foundation - Grant to Sussex ME Society
£450	02/03/2020	Funding was provided towards the costs of running a medical conference providing health workers, patients and others affected by ME/CFS with the latest information and how to diagnose and manage the ....more Funding was provided towards the costs of running a medical conference providing health workers, patients and others affected by ME/CFS with the latest information and how to diagnose and manage the illness.
Sussex Community Foundation - Grant to Yoga for ME group
£500	05/07/2019 11	Funding was provided towards venue hire costs.
Henry Smith Charity - Grant to Sussex & Kent ME/CFS Society
£1,000	13/06/2012 36	towards three years' costs of producing a newsletter for people affected by ME in Sussex

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (3)

Gender Split

COLIN NEIL BARTON (Chair)

DAVID PETER BUTLER

STEPHEN VAUGHAN

Legal constitution

Charity registered in England & Wales on 29/09/2000, number: 1082681

Gift Aid

NOT registered with HMRC for Gift Aid

Policies in force

There are no Policies registered with the Charities Commission

Filing Record

20 returns made; AR23: 3 days late, AR22: 37 days late,

Main office

PO BOX 309
BRIGHTON
EAST SUSSEX
BN50 9FR

Objectives

THE RELIEF OF PEOPLE SUFFERING FROM THE DISEASE MYALGIC ENCEPHALOMYELITS (ME), CHRONIC FATIGUE SYNDROME (CFS) AND OTHER ASSOCIATED ILLNESSES BY THE PROVISION OF ADVICE, INFORMATION AND SUPPORT.

Defined Area of Benefit:

NOT DEFINED, IN PRACTICE EAST AND WEST SUSSEX

Data Sources