THIS CHARITY HAS BEEN REMOVED FROM THE CHARITY COMMISSION REGISTER

Finance Score: 0
Governance Score: 0
Support Score: 0
  • Removed: -50
  • No PartB
(no info on trustees)
    Overall GiG Score: -50 ?

    ACTION FOR DYSTONIA, DIAGNOSIS, EDUCATION AND RESEARCH 

    Financial Data ?

    Income & Spending ?
    Sources of Income ?
    Y/E Income
    £k
    Spending
    £k
    Surplus/
    Deficit
    Fundraising
    Cost £k
    Total
    Funds £k
    Unrestricted
    Funds £k
    Mths
    Rsrvs
    Staff Volun-
    teers
    31/12/23£1£51£-50n/an/an/an/an/a0
    31/12/22£4£4£0n/an/an/an/an/a0
    31/12/21£6£3£3n/an/an/an/an/a0
    31/12/20?£13£7£6n/an/an/an/an/a0
    31/08/19£8£8£1n/an/an/an/an/a0
    31/08/18£10£8£3£0£0£0n/a00
    31/08/17£12£7£4£0£0£0n/a00
    31/08/16£13£6£7£0£0£0n/a00
    31/08/15£14£8£6£0£0£0n/a00
    31/08/14£12£10£2£0£0£0n/a00
    31/08/13£15£13£3£0£0£0n/a00
    31/08/12£16£18£-3£0£0£0n/a00
    31/08/11£25£23£2£0£0£0n/a00
    31/08/10*£21£18£3£0£0£0n/a00
    31/08/09*£16£21£-5£0£0£0n/a00
    31/08/08£39£22£17£0£0£0n/a00
    31/08/07£30£44£-15£0£0£0n/a00
    31/08/06£53£45£8£0£0£0n/a00
    31/08/05£39£35£3£0£0£0n/a00
    31/08/04£28£33£-6£0£0£0n/a00

    Highest pay bracket: less than £60,000
    Established: 25 years
    Charity Commission for England and WalesFacebook
    UN SDGs
    ?
    Listed activities
    • Disability
    • Education/Training
    • The Advancement Of Health Or Saving Of Lives
    GiG Classification
    • Other specialist outpatient services
    How it operates
    • Provides advocacy/advice/information
    • Provides human resources
    • Provides services
    • Sponsors or undertakes research
    Where it operates
    • Throughout England And Wales,
    Who it helps
    • People With Disabilities

    Who supports them? ?

    We have no records of donations from grant makers.

    How is it governed?

    Trustees

    Sorry we have no information about the Trustees.

    Legal constitution
    • Charity registered in England & Wales on 28/09/1999, number: 1077578
    Gift Aid
    • Registered with HMRC for Gift Aid
    Policies in force
    • Complaints handling
    • Risk management
    • Volunteer management
    Filing Record
    20 returns made; AR10: 123 days late, AR09: 26 days late,
    Main office


    Objectives

    1. TO ADVANCE THE EDUCATION OF THE PUBLIC IN RELATION TO THE SICKNESS AND DISTRESS CAUSED BY THE NEUROLOGICAL CONDITIONS KNOWN AS DYSTONIA2. TO PROMOTE THE TREATMENT OF PEOPLE WITH DYSTONIA AND OTHER RELATED MOVEMENT DISORDERS, AND TO OFFER SUPPORT AND WELFARE TO PATIENTS, THEIR CARERS AND FAMILIES.3. TO PROMOTE AWARENESS AND ENCOURAGE RESEARCH AMONGST THE MEDICAL PROFESSION OF THE NEUROLOGICAL CONDITIONS KNOWN AS DYSTONIA

    Defined Area of Benefit:

    NOT DEFINED

    Data Sources

    Charity Commission for England and Wales
    CharityBase

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