Finance Score: -3

Governance Score: 0

Support Score: 4

Strong growth: +2
Volatile income & significant deficit in latest year: -5
No PartB

Dynamic board: +3
All female board: -3

Grant maker support: +4

Overall GiG Score: 1

SOFT UK

SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome) and related disorders. SOFT UK runs a website, produces printed information and runs a volunteer befriender programme. SOFT UK also holds annual family days in England and Scotland and a biennial family day in Northern Ireland.

Analysis by Giving is Great

Positives:

The charity has received backing from several prominent grant makers recently
There has been strong growth in spending over the last 5 years
There have been no material income shortfalls in recent years
The Board appears to be dynamic in terms of composition

Regulatory & Governance issues to consider:

The Board is completely female

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income has been volatile recently and was significantly lower than spending in the latest year

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
30/04/23	*	£45	£67	£-22	n/a	n/a	n/a	n/a	n/a	10
30/04/22		£74	£59	£15	n/a	n/a	n/a	n/a	n/a	20
30/04/21		£63	£33	£30	n/a	n/a	n/a	n/a	n/a	12
30/04/20		£60	£29	£31	n/a	n/a	n/a	n/a	n/a	22
30/04/19		£48	£24	£24	n/a	n/a	n/a	n/a	n/a	20
30/04/18		£30	£33	£-2	£0	£0	£0	n/a	0	0
30/04/17		£24	£45	£-21	£0	£0	£0	n/a	0	0
30/04/16		£35	£42	£-7	£0	£0	£0	n/a	0	0
30/04/15		£38	£42	£-4	£0	£0	£0	n/a	0	0
30/04/14		£26	£44	£-19	£0	£0	£0	n/a	0	0
30/04/13		£94	£39	£55	£0	£0	£0	n/a	0	0
30/04/12	*	£37	£39	£-2	£0	£0	£0	n/a	0	0
30/04/11	*	£50	£48	£2	£0	£0	£0	n/a	0	0
30/04/10		£20	£17	£4	£0	£0	£0	n/a	0	0
30/04/09		£13	£12	£1	£0	£0	£0	n/a	0	0
30/04/08		£17	£11	£6	£0	£0	£0	n/a	0	0
30/04/07		£25	£16	£9	£0	£0	£0	n/a	0	0
30/04/06	*	£11	£9	£2	£0	£0	£0	n/a	0	0
30/04/05	*	£11	£9	£1	£0	£0	£0	n/a	0	0
30/04/04	*	£15	£11	£4	£0	£0	£0	n/a	0	0

Show more rows -->

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 33 years

www.soft.org.uk

enquiries@soft.org.uk

07748772061

Charity Commission for England and Wales

Tweets

Listed activities

Disability
Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Services for people with disabilities

How it operates

Other charitable activities

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Children/Young People
Other Charities Or Voluntary Bodies
People With Disabilities
The General Public/Mankind

Who works here?

Unknown number of employees
10 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Connecting Trisomy Families Across Scotland
£8,041	18/07/2023	This grant will fund an annual family event for families affected by Edwards’ or Patau’s Syndromes and a mobile sensory play area.
True Colours Trust - Towards a mobile sensory play area
£3,070	20/04/2021	Towards a mobile sensory play area.
National Lottery Community Fund - Covid-19 - You're Not Alone
£10,000	12/10/2020 8	SOFT UK will co-create a series of educational resources with Same but Different CIC based in Flintshire to help families who care for children with a life-limiting condition during the Covid-19 ....more SOFT UK will co-create a series of educational resources with Same but Different CIC based in Flintshire to help families who care for children with a life-limiting condition during the Covid-19 pandemic. £10000 will fund educational resources and a multimedia exhibition. Bydd SOFT UK yn cyd-greu cyfres o adnoddau addysgol gyda Same but Different CIC sydd wedi'i leoli yn Sir y Fflint i helpu teuluoedd sy'n gofalu am blant â chyflwr sy'n cyfyngu ar fywyd yn ystod pandemig Covid-19. Bydd £10000 yn ariannu adnoddau addysgol ac arddangosfa amlgyfrwng.
National Lottery Community Fund - SOFT UK Northern Ireland Family Day
£4,570	30/01/2020 0	SOFT UK support group is using a £4,570 grant to provide a family fun day for families in Northern Ireland whose child has the life limiting condition Edwards' or Patau's syndrome. The fun day ....more SOFT UK support group is using a £4,570 grant to provide a family fun day for families in Northern Ireland whose child has the life limiting condition Edwards' or Patau's syndrome. The fun day brings families together to take part in activities including sensory play and therapies for the children. The group are also delivering workshops for parents to provide information and signposting for financial or clinical support.
National Lottery Community Fund - Developing SOFT UK Volunteer Community
£7,401	25/01/2019 12	This funding will be used to create a volunteer support group for families of children affected by rare genetic illnesses. The project aims to increase the level of assistance available for people ....more This funding will be used to create a volunteer support group for families of children affected by rare genetic illnesses. The project aims to increase the level of assistance available for people affected by these life-limiting conditions.
True Colours Trust - towards its training project to develop a Volunteer Befriending Service.
£2,500	17/10/2017	towards its training project to develop a Volunteer Befriending Service.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (8)

Current Trustees appointed

Gender Split

Based on 7/8 persons

DR D ROBBINS Appointed: 2011

ALISON PEARSON Appointed: 2016

DEBORAH LOUISE KADUM Appointed: 2022

LAURA PETRIE Appointed: 2020

MRS J FOWLER (Chair) Appointed: 2011

MRS L EGAN Appointed: 2014

REBECCA MARGARET WIRTH Appointed: 2021

SUSAN WILSON Appointed: 2024

Legal constitution

Charity registered in England & Wales on 15/05/1991, number: 1002918

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

20 returns made; AR23: 14 days late, AR12: 71 days late, AR11: 0 days late, AR06: 184 days late, AR05: 31 days late, AR04: 39 days late,

Main office

11 Newlands Road
Uddingston
GLASGOW
G71 5QP

Objectives

TO RELIEVE THE SICKNESS OF CHILDREN WITH CHROMOSOMATIC ABNORMALITY AND OTHER RARE MEDICAL CONDITIONS (FOR FURTHER DETAILS SEE CLAUSE 2 OF DECLARATION OF TRUST

Defined Area of Benefit:

NOT DEFINED

Data Sources