Finance Score: -2

Governance Score: 2

Support Score: 2

Multiple Deficits: -2
No PartB

No conflicts policy: -1
Dynamic board: +3

Grant maker support: +2

Overall GiG Score: 2

CMV ACTION

The three charitable objects of the Charity are as follows. 1. To promote and protect the physical and mental health of families affected by congenital CMV through the provision of support, education and practical advice. 2. To advance the education of the medical profession and the general public into congenital CMV and its implications for the family. 3. To promote research into the causes

Analysis by Giving is Great

Positives:

The charity has received modest backing from a grant maker recently
The Board appears to be dynamic in terms of composition

Regulatory & Governance issues to consider:

This charity does not have a Conflict of Interests policy

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
On several occasions in recent years income has been less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/01/23	£42	£57	£-14	n/a	n/a	n/a	n/a	n/a	6
31/01/22	£48	£41	£7	n/a	n/a	n/a	n/a	n/a	5
31/01/21	£52	£31	£22	n/a	n/a	n/a	n/a	n/a	5
31/01/20	£105	£37	£67	n/a	n/a	n/a	n/a	n/a	2
31/01/19	£47	£63	£-16	n/a	n/a	n/a	n/a	n/a	0
31/01/18	£34	£72	£-38	£0	£0	£0	n/a	0	0

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Highest pay bracket: less than £60,000

Established: 7 years

07772894805

Charity Commission for England and Wales

Listed activities

Disability
Education/Training

GiG Classification

Professional associations

How it operates

Provides advocacy/advice/information
Provides services

Where it operates

Throughout England And Wales,

Who it helps

Children/Young People
People With Disabilities
The General Public/Mankind

Who works here?

Unknown number of employees
6 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Translation of Awareness Leaflets
£4,890	07/10/2022	The funding will be used to translate awareness material about Cytomegalovirus (CMV) in order to reach BAME families currently unable to access important information on the condition. The project ....more The funding will be used to translate awareness material about Cytomegalovirus (CMV) in order to reach BAME families currently unable to access important information on the condition. The project aims to minimise the number of babies in the UK born with CMV by educating every community about the risks and effects of it and reduce health inequalities.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (8)

Current Trustees appointed

Gender Split

ALICE FLETCHER-ETHERINGTON Appointed: 2022

AMY TAYLOR Appointed: 2017

ANGELA ELIZABETH ANDREWS Appointed: 2020

ELIZABETH ESTALL Appointed: 2012

EDWARD GRAHAM JONES Appointed: 2022

LUCY ELIZABETH KELLY Appointed: 2022

SARAH ALISON DEWAR Appointed: 2015

THOMAS KELMAN Appointed: 2013, Other trusteeship: THE INSTITUTE OF ADVANCED MOTORISTS LIMITED,

Legal constitution

Charity registered in England & Wales on 24/02/2017, number: 1171773

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Complaints policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Investing charity funds policy and procedures
Investment
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Trustee expenses policy and procedures
Volunteer management

Filing Record

6 returns made; all on time

Recent reorganisation events:

Asset transfer in from CMV ACTION on 31/10/2020

Main office

60 Fairford Avenue
LUTON
LU2 7ER

Objectives

THE CHARITY'S OBJECTS (THE OBJECTS) ARE1) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF FAMILIES AFFECTED BY CONGENITAL CMV THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE 2) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO CONGENITAL CMV AND ITS IMPLICATIONS FOR THE FAMILY3) TO PROMOTE RESEARCH INTO THE CAUSES, EFFECTS, PREVENTION, TREATMENT AND MANAGEMENT OF CONGENITAL CMV AND TO DISSEMINATE THE USEFUL RESULTS THEREOF

Data Sources