Finance Score: -5

Governance Score: 0

Support Score: 1

Multiple Deficits and declines: -5
No PartB

No volunteer policy: -2
12+ Trustees: -1
Gender balanced board: +3

Grant maker support: +1

Overall GiG Score: -4

LAM ACTION

LAM Action?s main objectives are to: provide support and information for those with lymphangioleiomyomatosis (?LAM?) and their families; support research which furthers understanding of LAM; increase awareness amongst health professionals about LAM and promulgate good clinical practice for its management; and share research, clinical and patient support experience in the UK and overseas.

Analysis by Giving is Great

Positives:

The charity has received modest backing from a grant maker recently
The Board appears to be well diversified in terms of gender

Regulatory & Governance issues to consider:

Although this charity works with volunteers it does not have a Volunteer Management policy
There are 13 trustees whereas the Charities Commission recommends a maximum of 12

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income has been volatile and on several occasions in recent years less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22	*	£65	£70	£-5	n/a	n/a	n/a	n/a	n/a	11
31/12/21		£45	£65	£-20	n/a	n/a	n/a	n/a	n/a	11
31/12/20		£89	£65	£24	n/a	n/a	n/a	n/a	n/a	11
31/12/19		£53	£105	£-52	n/a	n/a	n/a	n/a	n/a	19
31/12/18		£70	£77	£-7	£0	£0	£0	n/a	0	6
31/12/17		£391	£121	£269	£0	£0	£0	n/a	0	0
31/12/16		£0	£0	£0	n/a	n/a	n/a	n/a	n/a	0

Show more rows -->

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 8 years

http://lamaction.org

finance@office.lamaction.org

07710 527636

Charity Commission for England and Wales

Tweets

Listed activities

The Advancement Of Health Or Saving Of Lives

GiG Classification

Philanthropic intermediaries and voluntarism promotion

How it operates

Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Other Defined Groups

Who works here?

Unknown number of employees
11 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
Department for Work and Pensions - BSHI LIMMITED TA OMEGA ENERGY
£1,085	01/04/2022	The Kickstart Scheme provides funding to employers to create jobs for 16 to 24 year olds on Universal Credit.
National Lottery Community Fund - Funding to support women who suffer from LAM and their families
£8,344	22/10/2020 6	The funding will be used to provide information and advice to women with lymphangioleiomyomatosis (LAM). The project aims to provide patient support to vulnerable people during the Covid-19 pandemic.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (13)

Current Trustees appointed

Gender Split

ADAM JAMES DAVIDSON Appointed: 2023

ALISON HILARY BRONWEN MERRITT-COLLINS Appointed: 2018

DAVID ARTHUR MERCER Appointed: 2016

GILLIAN ELIZABETH HOLLIS Appointed: 2016

HARRIET DAVIDSON Appointed: 2022

ILONA GAIL LEIGHTON-GOODALL Appointed: 2018

JOHN DAVID WOOD Appointed: 2016

KELLY VANCE Appointed: 2016

LEANNE MICHELLE LILLYWHITE-SUTTON (Chair) Appointed: 2014

PROFESSOR SIMON RICHARD JOHNSON Appointed: 2016

SARAH LOUISE SHARPLES Appointed: 2016

TESS HILL Appointed: 2022

JOANNE PATRA PISANI Appointed: 2019, Other trusteeships: LIFEARC, BEACON: FOR RARE DISEASES LTD,

Legal constitution

Charity registered in England & Wales on 10/06/2016, number: 1167610

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Conflicting interests

Filing Record

7 returns made; AR22: 42 days late,

Main office

6 Brun Crescent
CLITHEROE
Lancashire
BB7 2FJ

Objectives

1) TO PROVIDE SUPPORT AND INFORMATION FOR THOSE WITH LYMPHANGIOLEIOMYOMATOSIS (LAM) AND THEIR FAMILIES; 2) TO SUPPORT RESEARCH WHICH FURTHERS UNDERSTANDING OF LAM, INCLUDING THE CAUSE OF LAM AND POTENTIAL TREATMENT FOR LAM IN ACCORDANCEWITH REGULATORY REQUIREMENTS; 3) TO INCREASE AWARENESS AMONGST HEALTH PROFESSIONALS ABOUT HOW LAM PRESENTS AND WHERE SUPPORT FOR THOSE DIAGNOSED WITH THE DISEASE CAN BE OBTAINED, AND TO PROMULGATE GOOD CLINICAL PRACTICE FOR THE MANAGEMENT OF LAM AMONGST HEALTH PROFESSIONALS; 4) TO SHARE RESEARCH, CLINICAL AND PATIENT SUPPORT EXPERIENCE WITH OTHER MEDICAL, PATIENT AND RESEARCH GROUPS IN THE UK AND OVERSEAS.

Data Sources