Finance Score: 0

Governance Score: 0

Support Score: 4

No PartB

Grant maker support: +4

Overall GiG Score: 4

HISTIOCYTOSIS UK

(i) the promotion and furtherance of scientific research. (ii) the development of more accurate means of diagnosis, improved protocols for management of patients and ultimately measures for prevention of histiocytic diseases; (iii) the provision and dissemination of information, (iv) collaboration with interested individuals and organisations.

Analysis by Giving is Great

Positives:

The charity has received backing from a grant maker recently
There have been no material income shortfalls in recent years

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23	£153	£165	£-12	n/a	n/a	n/a	n/a	n/a	5
31/03/22	£167	£97	£69	n/a	n/a	n/a	n/a	n/a	3
31/03/21	£122	£167	£-46	n/a	n/a	n/a	n/a	n/a	5
31/03/20	£178	£167	£11	n/a	n/a	n/a	n/a	n/a	5
31/03/19	£226	£113	£113	n/a	n/a	n/a	n/a	n/a	5
31/03/18	£140	£165	£-24	£0	£0	£0	n/a	0	0
31/03/17	£125	£85	£40	£0	£0	£0	n/a	0	0
31/03/16	£326	£61	£265	£0	£0	£0	n/a	0	0

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Download accounts

Highest pay bracket: less than £60,000

Established: 10 years

www.histiouk.org

histio@histiouk.org

07850740241

Charity Commission for England and Wales

Tweets

Listed activities

The Advancement Of Health Or Saving Of Lives

GiG Classification

Medical education & research

How it operates

Makes Grants to Organisations
Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Ireland, Throughout England And Wales,

Who it helps

The General Public/Mankind

Who works here?

Unknown number of employees
5 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Histio Outreach
£9,900	19/08/2022	The funding will be used towards an Outreach and Awareness Officer who will better connect and help to build a network of support to patients and parents living with Histocytosis and medical ....more The funding will be used towards an Outreach and Awareness Officer who will better connect and help to build a network of support to patients and parents living with Histocytosis and medical professionals working in this field. The project aims to develop a wider network of volunteers increase engagement throughout the UK and help more patients obtain an early diagnosis and cure.
DCMS - Coronavirus Community Support Fund
£36,560	07/10/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
National Lottery Community Fund - Promotion and Awareness Project
£9,750	24/01/2018 11	The project will ensure that medical professionals have access to a specialist advice network which will provide diagnosis and treatment for patients, addressing physical illnesses at the earliest ....more The project will ensure that medical professionals have access to a specialist advice network which will provide diagnosis and treatment for patients, addressing physical illnesses at the earliest possible opportunity.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

DR V NANDURI Appointed: 2014

DR CLAIRE BOOTH Appointed: 2018

DR RACHEL TATTERSALL Appointed: 2021

MR A KONTOYANNIS (Chair) Appointed: 2014

PETER BIENENSTOCK Appointed: 2014

PROFESSOR PETER CHARLES LEONARD BEVERLEY Appointed: 2014

PROFESSOR M COLLIN Appointed: 2014, Other trusteeship: BRIGHT RED CHARITY,

Legal constitution

Charity registered in England & Wales on 06/10/2014, number: 1158789

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Campaigns and political activity policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Engaging external speakers at charity events policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

8 returns made; all on time

Main office

Histio UK
PO Box 159
LISKEARD
PL14 9DQ

Objectives

THE OBJECT OF THE CIO IS THE RELIEF OF SICKNESS AND PRESERVATION OF GOOD HEALTH AMONG PATIENTS AFFECTED BY HISTIOCYTIC DISEASES THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY:(I) THE PROMOTION AND FURTHERANCE OF SCIENTIFIC RESEARCH INTO THE PHYSIOLOGY AND PATHOLOGY OF HISTIOCYTES AND THE AETIOLOGY OF HISTIOCYTOCYTIC DISEASES, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT;(II) THE DEVELOPMENT OF MORE ACCURATE MEANS OF DIAGNOSIS, IMPROVED PROTOCOLS FOR MANAGEMENT OF PATIENTS AND ULTIMATELY MEASURES FOR PREVENTION OF HISTIOCYTIC DISEASES;(III) THE PROVISION AND DISSEMINATION OF INFORMATION, EDUCATION AND KNOWLEDGE IN SUPPORT OF PATIENTS AND FAMILIES AFFECTED BY THE DISEASE TO INCLUDE THE MEDICAL PROFESSIONS AND GENERAL PUBLIC;(IV) COLLABORATION WITH INTERESTED INDIVIDUALS AND ORGANISATIONS.

Data Sources