Finance Score: -5

Governance Score: 6

Support Score: 2

Multiple Deficits and declines: -5
No PartB

Good trustee age range: +3
Dynamic board: +3

Grant maker support: +2

Overall GiG Score: 3

THE CHRONIC GRANULOMATOUS DISORDER SOCIETY

FORMERLY KNOWN AS THE CGD RESEARCH TRUST, THE CHRONIC GRANULOMATOUS DISORDER SOCIETY IS SOLELY CONCERNED WITH THE WELLBEING OF THOSE AFFECTED BY CHRONIC GRANULOMATOUS DISORDER. OUR MISSION IS TO BE THE LEADING GLOBAL SOURCE OF SUPPORT AND INFORMATION ON THIS RARE GENETIC DISORDER AND THEREBY CREATE A CHARITY THAT IS RESPECTED BY AFFECTED FAMILIES AND MEDICAL PROFESSIONALS THROUGHOUT THE WORLD.

Analysis by Giving is Great

Positives:

The charity has received modest backing from a grant maker recently
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income has been volatile and on several occasions in recent years less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23		£93	£177	£-84	n/a	n/a	n/a	n/a	n/a	3
31/03/22		£127	£124	£3	n/a	n/a	n/a	n/a	n/a	0
31/03/21		£83	£160	£-77	n/a	n/a	n/a	n/a	n/a	0
31/03/20		£117	£157	£-40	n/a	n/a	n/a	n/a	n/a	0
31/03/19		£159	£165	£-7	n/a	n/a	n/a	n/a	n/a	0
31/03/18		£152	£203	£-51	£0	£0	£0	n/a	0	0
31/03/17	*	£78	£130	£-53	£0	£0	£0	n/a	0	0
31/03/16		£91	£179	£-88	£0	£0	£0	n/a	0	0
31/03/15		£251	£155	£96	£0	£0	£0	n/a	0	0
31/03/14		£223	£162	£62	£0	£0	£0	n/a	0	0
31/03/13		£198	£327	£-130	£0	£0	£0	n/a	0	0
31/03/12		£195	£413	£-219	£0	£0	£0	n/a	0	0

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Download accounts

Highest pay bracket: less than £60,000

Established: 13 years

www.cgdsociety.org

hello@cgdsociety.org

08009878988

Charity Commission for England and Wales

Tweets

Listed activities

Disability
Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Services for people with disabilities

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Scotland, Throughout England And Wales,

Who it helps

Children/Young People
Other Defined Groups
People With Disabilities

Who works here?

Unknown number of employees
3 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - CGD Information and Support
£10,000	11/11/2022	The funding will be used to provide a helpline for people and their families affected by Chronic Granulomatous Disorder including an email and telephone helpline for families seeking information and ....more The funding will be used to provide a helpline for people and their families affected by Chronic Granulomatous Disorder including an email and telephone helpline for families seeking information and advice on a wide range of CGD-related issues. The project aims to support families and help them reach their potential by helping them manage their physical and mental wellbeing.
National Lottery Community Fund - The CGD Society Family Conference
£10,000	06/09/2018 12	The organisation will use the funding to raise awareness of Chronic Granulomatous and will include childminding costs so parents can attend lectures. The funding will also go towards recording ....more The organisation will use the funding to raise awareness of Chronic Granulomatous and will include childminding costs so parents can attend lectures. The funding will also go towards recording equipment so the events can be uploaded to the website for those who are unable to attend. The project aims to bring families together affected by the condition, provide support and reduce isolation.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (5)

Current Trustees appointed

Age Range of Trustees: 38-68

NING HE Appointed: 2015, Occupation: Accountant

ALAN GEORGE KEFFLER Appointed: 2023, Occupation: Chartered Engineer

CHIKAI LAI Appointed: 2019, Occupation: Director, Other trusteeship: JEANS FOR GENES CAMPAIGN,

GEOFFREY CREAMER Appointed: 2011, Occupation: Chartered Engineer

WAYNE KITCHENER Appointed: 2023, Occupation: Senior Manager, National Health Service England, Other trusteeship: LIFE EDUCATION EAST MIDLANDS LIMITED,

Legal constitution

Charitable company registered in England & Wales on 22/07/2011, number: 1143049
Registered at Companies House on 18/04/2011, number: 07607593

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Trustee conflicts of interest policy and procedures

Filing Record

12 returns made; AR17: 2 days late,

Main office

PO Box 454
DARTFORD
DA1 9PE

Objectives

THE OBJECTS ARE:3.1 THE RELIEF OF PERSONS SUFFERING FROM CHRONIC GRANULOMATOUS DISORDER OR OTHER PRIMARY IMMUNE DEFICIENCIES OR RELATED ILLNESSES;3.2 THE ADVANCEMENT OF MEDICAL RESEARCH INTO THE CAUSES, CURE, PREVENTION OR RELIEF OF SUCH DISORDERS AND/OR ILLNESSES AND THE PUBLICATION OF THE USEFUL RESULTS OF THAT RESEARCH;3.3 TO ADVANCE THE EDUCATION OF THE PUBLIC ON THE SUBJECT OF SUCH DISORDERS AND/OR ILLNESSES; AND 3.4 SUCH OTHER PURPOSES AS ARE CHARITABLE ACCORDING TO THE LAWS OF ENGLAND AND WALES FOR THE BENEFIT OF THE PUBLIC.

Data Sources