Finance Score: 0

Governance Score: 3

Support Score: 1

Strong growth: +2
Deficit latest year: -2
No PartB

Gender balanced board: +3

Grant maker support: +1

Overall GiG Score: 4

NOONAN SYNDROME ASSOCIATION

The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition

Analysis by Giving is Great

Positives:

The charity has received modest backing from a grant maker
There has been strong growth in spending over the last 5 years
There have been no material income shortfalls in recent years
The Board appears to be well diversified in terms of gender

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income was significantly lower than spending in the latest year

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23		£60	£80	£-21	n/a	n/a	n/a	n/a	n/a	5
31/03/22		£63	£39	£24	n/a	n/a	n/a	n/a	n/a	2
31/03/21		£66	£32	£34	n/a	n/a	n/a	n/a	n/a	26
31/03/20		£52	£41	£11	n/a	n/a	n/a	n/a	n/a	15
31/03/19		£64	£39	£25	n/a	n/a	n/a	n/a	n/a	24
31/03/18		£32	£35	£-3	£0	£0	£0	n/a	0	0
31/03/17		£34	£29	£5	£0	£0	£0	n/a	0	0
31/03/16		£25	£36	£-11	£0	£0	£0	n/a	0	0
31/03/15		£19	£20	£-2	£0	£0	£0	n/a	0	0
31/03/14		£6	£5	£1	£0	£0	£0	n/a	0	0
31/03/13	*	£20	£11	£10	£0	£0	£0	n/a	0	0
31/03/12	*	£40	£4	£36	£0	£0	£0	n/a	0	0

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Highest pay bracket: less than £60,000

Established: 13 years

www.noonansyndrome.org.uk

info@noonansyndrome.org.uk

07920031635

Charity Commission for England and Wales

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Other specialist outpatient services

How it operates

Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Children/Young People
People With Disabilities

Who supports them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Families for Families Weekend
£10,000	09/08/2018 12	A three day event for will be funded for people and families affected by Noonan Syndrome. This will bring people together to discuss issues.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

Gender Split

ANDREA DAWN REID-KELLY Appointed: 2017

BRIAN EDWARD CARLTON Appointed: 2017

GRAYSON COLIN BOWLER Appointed: 2020

IAN ALEXANDER LEGG BAHON ACIB

JEANETTE DYER Appointed: 2020

PROFESSOR MICHAEL PATTON, Other trusteeship: NEWLIFE THE CHARITY FOR DISABLED CHILDREN,

SHARON LOUISE ALLSOPP Appointed: 2014

Legal constitution

Charity registered in England & Wales on 03/03/2011, number: 1140671

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Volunteer management

Filing Record

12 returns made; AR13: 1 days late, AR12: 23 days late,

Main office

PO Box 692
Blackburn
Lancashire
BB2 9RF

Objectives

THE RELIEF OF ALL PERSONS AFFECTED BY NOONAN SYNDROME BY ALL OR ANY OF THE FOLLOWING MEANS:-1) THE FACILITATION AND PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, DIAGNOSIS, TREATMENT AND RELIEF OF NOONAN SYNDROME WITH THE USEFUL RESULTS OF THE RESEARCH BEING DISSEMINATED FOR THE BENEFIT OF THE PUBLIC;2) THE PROVISION OF FACILITIES, FINANCIAL AID, ADVICE AND SUPPORT SERVICES FOR PERSONS SUFFERING FROM NOONAN SYNDROME, THEIR FAMILIES, DEPENDANTS AND CARERS, INCLUDING THE FAMILIES AND DEPENDANTS OF THOSE WHO HAVE DIED FROM NOONAN SYNDROME AND PREGNANT MOTHERS WHERE IT IS BELIEVED THAT THEIR CHILD IS IN DANGER OF BEING BORN WITH NOONAN SYNDROME; AND3) BY ADVANCING THE EDUCATION OF THE PUBLIC IN RELATION TO THE EFFECTS OF NOONAN SYNDROME BY COMMUNICATING REPORTS AND DISSEMINATING INFORMATION BY ANY MEANS OR MEDIA CONCERNING RESEARCH WORK AND STUDIES UNDERTAKEN BY OR ON BEHALF OF THE CHARITY.

Data Sources