Finance Score: -7

Governance Score: -8

Support Score: 2

Accounts overdue -5
Accounts filed more than 5 days late: -2 times
No PartB

Submission defaults: -10
Dynamic board: +3
Mainly female board: -1

Grant maker support: +2

Overall GiG Score: -13

THE CAVERNOMA SOCIETY

1. Providing support to those with cavernoma, their carers, and their family.2. Providing information to those with cavernoma, through literature, meetings, events, and via video or telephone.3. Providing information to the general public about cavernoma and raising awareness.4. Providing information to health professionals and delivering training workshops.5. Doing research.

Analysis by Giving is Great

Positives:

The charity has received backing from a grant maker recently
The Board appears to be dynamic in terms of composition

Regulatory & Governance issues to consider:

There have been multiple defaults for filing returns
The Board is predominantly female
Over half the Board have joined recently

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Latest accounts are overdue for filing and returns have been filed late on 2 occasions over the last 2 years

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income	Spending	Surplus/ Deficit	Volun- teers
31/01/21	*	£29,158	£10,712	£18,446	2
31/01/20	*	£13,956	£14,939	£-983	2

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 5 years

www.cavernomasociety.org.uk

hello@cavernomasociety.org.uk

03301224470

Charity Commission for England and Wales

Tweets

Listed activities

Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Other specialist outpatient services

How it operates

Provides services

Where it operates

Ireland, Northern Ireland, Throughout England And Wales,

Who it helps

Other Defined Groups

Who works here?

Unknown number of employees
2 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
The Foyle Foundation - Small Grants
£5,000	24/11/2020	towards ongoing costs over the next 12 months
DCMS - Coronavirus Community Support Fund
£9,800	21/09/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (6)

Current Trustees appointed

Gender Split

AMY TAYLOR Appointed: 2022

CAROLINE LEONARD Appointed: 2018

DAVID WEEKS Appointed: 2023

DR MARIE ROBINSON Appointed: 2022

SIMONA STANKOVSKA Appointed: 2018

VICTORIA BUTLER Appointed: 2022

Legal constitution

Charity registered in England & Wales on 15/07/2019, number: 1184406

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

2 returns made; AR21: 500 days late, AR20: 854 days late,

Recent reorganisation events:

Asset transfer in from ACORN OVERSEAS CHARITY FOR CHILDREN on 21/02/2023

Main office

4 ARLINGTON COURT
ARLINGTON ROAD
TWICKENHAM
TW1 2AU

Objectives

THE OBJECTS OF THE CIO ARE:-A) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF CAVERNOMA THROUGH THE PROVISION OF SUPPORT, EDUCATION, RESEARCH AND PRACTICAL ADVICE ANDB) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO CAVERNOMA.

Data Sources