Finance Score: -5

Governance Score: -1

Support Score: 0

Volatile income & significant deficit in latest year: -5
No PartB

Mainly male board: -1

No supporters identified

Overall GiG Score: -6

AMYLOIDOSIS UK

a) providing information, support and advice to people living with the Condition, their families and carers; b) advocating to ensure that every person has timely and effective diagnosis, treatment and care of the Condition;c) working closely with all stakeholders to facilitate the availability of effective treatments for the Condition. d) funding and supporting research to advance scientif

Analysis by Giving is Great

Regulatory & Governance issues to consider:

The Board is predominantly male

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income has been volatile recently and was significantly lower than spending in the latest year

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income	Spending	Surplus/ Deficit	Volun- teers
31/03/23		£3,700	£16,431	£-12,731	1
31/03/22		£33,000	£31,000	£2,000	0
31/03/21		£31,258	£9,625	£21,633	0
31/03/20	*	£34,566	£6,002	£28,564	0

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 5 years

www.ukatpa.org

vince@ttramyloidosis.uk

01725238166

Charity Commission for England and Wales

Listed activities

General Charitable Purposes
The Advancement Of Health Or Saving Of Lives

GiG Classification

Other specialist outpatient services

How it operates

Makes Grants to Organisations
Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Ireland, Northern Ireland, Scotland, Throughout England And Wales,

Who supports them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (5)

Current Trustees appointed

Gender Split

CARLOS HERAS-PALOU (Chair) Appointed: 2018, Occupation: Consultant Hand Surgeon, Other trusteeships: THE BRITISH SOCIETY FOR SURGERY OF THE HAND, PULVERTAFT HAND CHARITY,

DAVID GREGORY Appointed: 2019

PAUL POZZO Appointed: 2020

RUTH ELEANOR BRAMWELL Appointed: 2018

VINCENT GRAHAM NESAN NICHOLAS Appointed: 2018

Legal constitution

Charity registered in England & Wales on 29/05/2019, number: 1183624

Gift Aid

NOT registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Trustee expenses policy and procedures

Filing Record

4 returns made; AR20: 5 days late,

Main office

HACKAMOR HOUSE
GROVE LANE
REDLYNCH
SALISBURY
SP5 2NR

Objectives

THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE IN THE UNITED KINGDOM LIVING WITH THE MEDICAL CONDITION ATTR AMYLOIDOSIS (KNOWN AS THE ‘CONDITION’) IN PARTICULAR BUT NOT EXCLUSIVELY BY:A) PROVIDING INFORMATION, SUPPORT AND ADVICE TO PEOPLE LIVING WITH THE CONDITION, THEIR FAMILIES AND CARERS;B) ADVOCATING TO ENSURE THAT EVERY PERSON HAS TIMELY AND EFFECTIVE DIAGNOSIS, TREATMENT AND CARE OF THE CONDITION;C) WORKING CLOSELY WITH ALL STAKEHOLDERS TO FACILITATE THE AVAILABILITY OF EFFECTIVE TREATMENTS FOR THE CONDITION.D) FUNDING AND SUPPORTING RESEARCH TO ADVANCE SCIENTIFIC UNDERSTANDING OF THE CONDITION AND ITS EFFECTIVE TREATMENT AND TO PUBLISH THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT.

Data Sources