Finance Score: -2

Governance Score: 6

Support Score: 0

Multiple Deficits: -2
No PartB

Dynamic board: +3
Gender balanced board: +3

No supporters identified

Overall GiG Score: 4

BARTH SYNDROME UK

Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.

Analysis by Giving is Great

Positives:

The Board appears to be well diversified in terms of gender and dynamic in terms of composition

Regulatory & Governance issues to consider:

Over half the Board have joined recently

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
On several occasions in recent years income has been less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income	Spending	Surplus/ Deficit	Volun- teers
31/12/23	£79,374	£60,567	£18,807	3
31/12/22	£11,845	£46,135	£-34,290	2
31/12/21	£31,007	£44,840	£-13,833	3
31/12/20	£33,938	£27,093	£6,845	4
31/12/19	£7,916	£14,168	£-6,252	0

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 5 years

www.barthsyndrome.org.uk

info@barthsyndrome.org.uk

01794518785

Charity Commission for England and Wales

Listed activities

General Charitable Purposes
The Advancement Of Health Or Saving Of Lives

GiG Classification

Services for people with disabilities

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Ireland, Scotland, Throughout England And Wales, United States,

Who it helps

Children/Young People
Other Charities Or Voluntary Bodies
Other Defined Groups
People With Disabilities

Who works here?

Unknown number of employees
3 volunteers

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (8)

Current Trustees appointed

Gender Split

CHERYL JAYNE PARISH Appointed: 2022

GEOFFREY MALCOLM PARISH Appointed: 2019

ISABEL JANE EASTERBOOK Appointed: 2019

KELSEY LEIGH DORAN Appointed: 2022

PAUL LAURENCE FORD Appointed: 2024

RALPH STEVEN EASTERBROOK (Chair) Appointed: 2022

STEPHEN COTTERILL Appointed: 2020

SUZANNE MICHELLE GREEN Appointed: 2023

Legal constitution

Charity registered in England & Wales on 31/01/2019, number: 1181830

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

5 returns made; all on time

Recent reorganisation events:

Asset transfer in from BARTH SYNDROME TRUST on 11/01/2020

Main office

1 THE VIKINGS
ROMSEY
SO51 5RG

Objectives

THE RELIEF OF INDIVIDUALS WITH, AND CARRIERS OF, BARTH SYNDROME AND THEIR FAMILIES, WITHIN THE UNITED KINGDOM AND ELSEWHERE IN THE WORLD IN PARTICULAR BUT NOT EXCLUSIVELY BY:A) PROVIDING ACCESS TO INFORMATION, ADVICE AND SUPPORT IN RELATION TO THE CONDITION TO THE PUBLIC AND, IN PARTICULAR, DIAGNOSED INDIVIDUALS AND THEIR EXTENDED FAMILIES AND THOSE IN THE EDUCATIONAL, SCIENTIFIC, MEDICAL AND ALLIED HEALTH CARE PROFESSIONS.B) THE PROMOTION AND FUNDING OF RESEARCH INTO THE CAUSES AND EFFECTS OF THE CONDITION AND THE DISSEMINATION OF THE USEFUL RESULTS OF THE SAME FOR THE BENEFIT OF THE PUBLIC.

Defined Area of Benefit:

WITHIN THE UNITED KINGDOM AND ELSEWHERE IN THE WORLD

Data Sources