Finance Score: 2

Governance Score: 4

Support Score: 0

Strong growth: +2
No PartB

No volunteer policy: -2
Dynamic board: +3
Gender balanced board: +3

No supporters identified

Overall GiG Score: 6

ALK POSITIVE LUNG CANCER (UK)

We provide a support network in the UK for patients with ALK-positive lung cancer and their families. We provide advice and information so that patients can be empowered to have meaningful conversations with their healthcare professionals. We advocate on their behalf at a national level so that patients receive a high level of care wherever they live in the UK

Analysis by Giving is Great

Positives:

There has been strong growth in spending since inception
The Board appears to be well diversified in terms of gender and dynamic in terms of composition

Regulatory & Governance issues to consider:

Although this charity works with volunteers it does not have a Volunteer Management policy
Over half the Board have joined recently

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income	Spending	Surplus/ Deficit	Volun- teers
31/12/22	£130,582	£114,553	£16,029	18
31/12/21	£164,415	£107,572	£56,843	0
31/12/20	£56,113	£23,560	£32,553	0
31/12/19	£61,139	£38,431	£22,708	0

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 6 years

www.alkpositive.org.uk

hello@alkpositive.org.uk

07783134437

Charity Commission for England and Wales

Tweets

Listed activities

The Advancement Of Health Or Saving Of Lives

GiG Classification

Other specialist outpatient services

How it operates

Provides advocacy/advice/information

Where it operates

Throughout England And Wales,

Who it helps

Other Defined Groups

Who supports them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (6)

Current Trustees appointed

Gender Split

ANDREW THOMSON MCKAY Appointed: 2023

ANGELA FIELD Appointed: 2023

DEBRA LOUISE MONTAGUE (Chair) Appointed: 2023

GRAHAM HERBERT LAVENDER Appointed: 2023

KATHERINE REDMOND Appointed: 2024

REBECCA STEBBINGS Appointed: 2021

Legal constitution

Charity registered in England & Wales on 14/12/2018, number: 1181171

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests

Filing Record

4 returns made; all on time

Main office

Old Carw Farmhouse
Carrow Hill
St. Brides Netherwent
CALDICOT
Monmouthshire
NP26 3AU

Objectives

TO RELIEVE SICKNESS AND TO PRESERVE AND PROTECT GOOD HEALTH OF UK ANAPLASTIC LYMPHOMA KINASE (ALK) POSITIVE LUNG CANCER PATIENTS BY:-A. PROVIDING AN INFORMATION RESOURCE, IN PARTICULAR ACCESS TO INFORMATION ABOUT LATEST DEVELOPMENTS AND CLINICAL TRIALS;B. IDENTIFYING AND LOCATING UK ALK PATIENTS AND OFFERING SUPPORT AND GUIDANCE ON THE LOCATION OF UK ALK SPECIALISTS AND SERVICES;C. LIAISING WITH AND INFLUENCING DECISION MAKERS, E.G. NICE, NHS, DVLA;D. RAISING AWARENESS OF ALK LUNG CANCER, PARTICULARLY AMONGST THE MEDICAL PROFESSION SO AS TO PROMOTE THE BEST TREATMENT FOR PATIENTS;E. LIAISING WITH RELEVANT ORGANISATIONS, IN PARTICULAR ROY CASTLE LUNG CANCER FOUNDATION AND THE PHARMACEUTICAL INDUSTRY;F. RAISING FUNDS FOR THE ABOVE PURPOSES.

Data Sources