Finance Score: -4

Governance Score: -3

Support Score: 0

Spending falling: -1
Volatile income: -3
No PartB

Static board: -3

Large volunteers +5

Overall GiG Score: -2

KRABBE UK

To preserve and protect the health of children and adults suffering from Krabbe Disease in the United Kingdom, in particular but not exclusively by supporting and funding researchTo preserve and protect the health of the families caring for children and adults suffering from Krabbe Disease in the United KingdomTo support bereaved families who have lost family members to Krabbe Disease.

Analysis by Giving is Great

Positives:

This charity has been very successful in attracting volunteers relative to its size
There have been no income shortfalls in recent years

Regulatory & Governance issues to consider:

The Board composition appears to be rather static

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period
Income has been volatile recently

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income	Spending	Surplus/ Deficit	Volun- teers
31/03/23	£7,146	£1,193	£5,953	2
31/03/22	£10,992	£709	£10,283	2
31/03/21	£13,298	£1,439	£11,859	2
31/03/20	£9,947	£9,180	£767	2
31/03/19	£99,980	£27,683	£72,297	0
31/03/18	£0	£0	£0	0

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Highest pay bracket: less than £60,000

Established: 7 years

www.krabbeuk.org

info@krabbeuk.org

01482880654

Charity Commission for England and Wales

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Scientific research and testing services

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Children/Young People
People With Disabilities

Who works here?

Unknown number of employees
2 volunteers

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (3)

Current Trustees appointed

LINDSEY DODDS Appointed: 2018

ANDREW DAVID GIBSON Appointed: 2017

COLIN REID BROWN Appointed: 2017

Legal constitution

Charity registered in England & Wales on 01/09/2017, number: 1174472

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

6 returns made; all on time

Main office

2 Sage Close
BEVERLEY
HU17 8WH

Objectives

THE OBJECTS OF THE CIO ARE TO RELIEVE SICKNESS AND PRESERVE AND PROTECT THE HEALTH OF CHILDREN AND ADULTS SUFFERING FROM KRABBE DISEASE IN THE UNITED KINGDOM, IN PARTICULAR BUT NOT EXCLUSIVELY BY SUPPORTING AND FUNDING RESEARCH AND PROMOTING THE EXTENSION OF NEWBORN SCREENING FOR KRABBE DISEASE.TO PRESERVE AND PROTECT THE HEALTH OF THE FAMILIES CARING FOR CHILDREN AND ADULTS SUFFERING FROM KRABBE DISEASE IN THE UNITED KINGDOM BY SUCH MEANS AS THE TRUSTEES MAY DETERMINETO SUPPORT BEREAVED FAMILIES WHO HAVE LOST FAMILY MEMBERS TO KRABBE DISEASE IN THE UNITED KINGDOM BY SUCH MEANS AS THE CHARITY TRUSTEES MAY DETERMINE.

Data Sources