Finance Score: -1

Governance Score: -7

Support Score: 0

Spending falling: -1
No PartB

No conflicts policy: -1
Static board: -3
All female board: -3

Large volunteers +3

Overall GiG Score: -5

ALPHA-1 UK SUPPORT GROUP

We provide a support group and website focusing on news, events, information and how better to cope with Alpha-1 aiming towards improving quality of life. Organise social gatherings to educate and unite the Alpha-1 community. Produce, publish and distribute information booklets to advance understanding and awareness. Support research and campaign for better access to treatment.

Analysis by Giving is Great

Positives:

This charity has been successful in attracting volunteers relative to its size
There have been no income shortfalls in recent years

Regulatory & Governance issues to consider:

This charity does not have a Conflict of Interests policy
The Board is completely female
The Board composition appears to be rather static

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23	£19	£3	£16	n/a	n/a	n/a	n/a	n/a	3
31/03/22	£12	£5	£7	n/a	n/a	n/a	n/a	n/a	5
31/03/21	£10	£3	£7	n/a	n/a	n/a	n/a	n/a	5
31/03/20	£19	£8	£11	n/a	n/a	n/a	n/a	n/a	10
31/03/19	£28	£7	£20	n/a	n/a	n/a	n/a	n/a	20
31/03/18	£11	£8	£2	£0	£0	£0	n/a	0	0
31/03/17	£23	£6	£16	£0	£0	£0	n/a	0	0
31/03/16	£18	£12	£6	£0	£0	£0	n/a	0	0
31/03/15	£166	£76	£90	£0	£0	£0	n/a	0	0
31/03/14	£40	£21	£18	£0	£0	£0	n/a	0	0
31/03/13	£12	£12	£0	£0	£0	£0	n/a	0	0

Show more rows -->

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 12 years

www.alpha1.org.uk

info@alpha1.org.uk

Charity Commission for England and Wales

Tweets

Listed activities

Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Environment conservation & animal welfare advocacy

How it operates

Makes Grants to Individuals
Provides advocacy/advice/information
Provides services

Where it operates

Scotland, Throughout England And Wales,

Who it helps

Children/Young People
Elderly/Old People
People With Disabilities
The General Public/Mankind

Who works here?

Unknown number of employees
3 volunteers

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (5)

Current Trustees appointed

Gender Split

BEVERLEY BURROUGHS Appointed: 2011

DR SANDRA NESTLER-PARR Appointed: 2014

JEMMA LOUISE COAD Appointed: 2016

MISS KAREN O'HARA (Chair) Appointed: 2013

TANYA JONES Appointed: 2018, Other trusteeship: TALATON PARISH HALL,

Legal constitution

Charity registered in England & Wales on 12/03/2012, number: 1146330

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Engaging external speakers at charity events policy and procedures
Social media policy and procedures
Trustee expenses policy and procedures

Filing Record

11 returns made; all on time

Main office

24 Pelham Road
DROITWICH
WR9 8NT

Objectives

(1) TO RELIEVE THE NEEDS OF INDIVIDUALS SUFFERING FROM THE GENETIC CONDITION ALPHA-1 ANTITRYPSIN DEFICIENCY (AATD), THEIR FAMILIES, CARERS AND FRIENDS, IN PARTICULAR, BUT NOT EXCLUSIVELY BY:A) PROVIDING ADVICE, SUPPORT AND EQUIPMENT WITH A VIEW TO IMPROVE THE QUALITY OF LIFE OF THOSE SUFFERING WITH AATD, THEIR FAMILIES, CARERS AND FRIENDS;B) ADVANCING AWARENESS AND KNOWLEDGE OF AATD, IN PARTICULAR AMONG AFFECTED PATIENTS AND MEDICAL PROFESSIONS AND HEALTHCARE PROVIDER ORGANISATIONS;C) FOSTERING IMPROVEMENTS IN ACCESS AND EQUALITY OF ACCESS TO CLINICAL EXPERTISE AND OPTIMAL DISEASE MANAGEMENT AND TREATMENTS FOR AATD;D) SUPPORTING INITIATIVES AIMED AT DEVELOPMENT, INTRODUCTION AND WIDESPREAD ADOPTION OF NOVEL THERAPIES FOR AATD, INCLUDING RESEARCH.E) WORKING COLLABORATIVELY WITH OUR MEMBERS AND RELEVANT EXTERNAL INDIVIDUALS, GROUPS OF INDIVIDUALS, ORGANISATIONS AND INSTITUTIONS IN ORDER TO ACHIEVE A) - D).

Defined Area of Benefit:

UNDEFINED, IN PRINCIPLE NATIONAL

Data Sources