Finance Score: -6

Governance Score: 6

Support Score: 0

Spending falling: -1
Multiple Deficits and declines: -5
No PartB

Good trustee age range: +3
Dynamic board: +3

Large volunteers +3

Overall GiG Score: 3

ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED

We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.

Analysis by Giving is Great

Positives:

This charity has been successful in attracting volunteers relative to its size
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period
Income has been volatile and on several occasions in recent years less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23		£144	£157	£-13	n/a	n/a	n/a	n/a	n/a	37
31/03/22		£132	£145	£-13	n/a	n/a	n/a	n/a	n/a	60
31/03/21		£123	£142	£-19	n/a	n/a	n/a	n/a	n/a	55
31/03/20		£206	£217	£-11	n/a	n/a	n/a	n/a	n/a	11
31/03/19		£168	£228	£-60	n/a	n/a	n/a	n/a	n/a	6
31/03/18		£299	£233	£67	£0	£0	£0	n/a	0	0
31/03/17		£301	£266	£35	£0	£0	£0	n/a	0	0
31/03/16		£137	£117	£21	£0	£0	£0	n/a	0	0
31/03/15		£128	£113	£15	£0	£0	£0	n/a	0	0
31/03/14		£102	£123	£-20	£0	£0	£0	n/a	0	0
31/03/13		£72	£122	£-49	£0	£0	£0	n/a	0	0
31/03/12		£147	£140	£6	£0	£0	£0	n/a	0	0
31/03/11	*	£47	£76	£-29	£0	£0	£0	n/a	0	0

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Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 15 years

www.agsd.org.uk

info@agsd.org.uk

0300 123 2790

Charity Commission for England and Wales

Tweets

Listed activities

Disability
Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Medical research

How it operates

Acts as an umbrella or resource body
Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Provides human resources
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Children/Young People
Other Defined Groups
People With Disabilities

Who supports them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (7)

Current Trustees appointed

Age Range of Trustees: 40-67

AILSA ARTHUR Appointed: 2017, Occupation: Director

DR CHARLOTTE DAWSON Appointed: 2023, Occupation: Director

DR FLORENCE OSBOURNE (Chair) Appointed: 2021

KEMPTON REES Appointed: 2023, Occupation: Solicitor

NICK JONES Appointed: 2016, Occupation: Principal Director Of Engineering Consultancy

RACHEL THOMAS Appointed: 2020, Occupation: Director

SARAH CHIKHANI Appointed: 2020, Occupation: Pharmacist

Legal constitution

Charitable company registered in England & Wales on 22/10/2009, number: 1132271
Registered at Companies House on 05/08/2009, number: 06981121

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Campaigns and political activity policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Engaging external speakers at charity events policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

13 returns made; AR11: 30 days late,

Main office

A G S D UK
PO Box 699
SOUTHAMPTON
SO50 0QT

Objectives

THE RELIEF OF SICKNESS, PARTICULARLY OF PERSONS SUFFERING FROM ANY FORM OF GLYCOGENSTORAGE DISEASE

Defined Area of Benefit:

UNDEINED. IN PRACTICE, NATIONAL

Data Sources