Finance Score: -5

Governance Score: 6

Support Score: 0

Strong growth: +2
Multiple Deficits: -2
Fundraising costs high: -5

Good trustee age range: +3
Dynamic board: +3

No supporters identified

Overall GiG Score: 1

THE INTERNATIONAL ALLIANCE OF ALS / MND ASSOCIATIONS

The International Alliance of ALS/MND Associations founded in November of 1992 to provide an international community for ALS/MND associations from around the world. Our vision is to engage our members, prospective members and other organizations in sharing resources globally, advancing awareness and supporting people with ALS/MND worldwide.

Analysis by Giving is Great

Positives:

There has been strong growth in spending over the last 5 years
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Regulatory & Governance issues to consider:

This charity is not recognised by HMRC for Gift Aid according to its latest published return

Financial issues to consider:

On several occasions in recent years income has been less than spending
Fundraising costs are extremely high relative to funds raised

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff
30/06/23		£634	£586	£48	£585	£211	£211	4.3	1
30/06/22		£375	£346	£29	n/a	n/a	n/a	n/a	n/a
30/06/21		£164	£228	£-64	n/a	n/a	n/a	n/a	n/a
30/06/20		£180	£208	£-28	n/a	n/a	n/a	n/a	n/a
30/06/19		£195	£164	£31	n/a	n/a	n/a	n/a	n/a
30/06/18	*	£231	£179	£52	£0	£0	£0	n/a	0
30/06/17		£177	£146	£30	£0	£0	£0	n/a	0
30/06/16		£148	£135	£13	£0	£0	£0	n/a	0
30/06/15		£137	£103	£35	£0	£0	£0	n/a	0
30/06/14		£97	£105	£-7	£0	£0	£0	n/a	0
30/06/13		£94	£100	£-6	£0	£0	£0	n/a	0
30/06/12	*	£45	£64	£-18	£0	£0	£0	n/a	0
30/06/11	*	£54	£89	£-35	£0	£0	£0	n/a	0
30/06/10		£79	£76	£4	£0	£0	£0	n/a	0
30/06/09		£70	£69	£1	£0	£0	£0	n/a	0
30/06/08		£64	£66	£-3	£0	£0	£0	n/a	0
30/06/07		£86	£65	£21	£0	£0	£0	n/a	0
30/06/06		£90	£60	£30	£0	£0	£0	n/a	0
30/06/05		£87	£56	£31	£0	£0	£0	n/a	0
30/06/04		£72	£56	£15	£0	£0	£0	n/a	0

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Financial Ratios

Fundraising Costs/Relevant Income: 266.2%
Fundraising Costs/Total Spending: 99.9%
Senior Staff Costs/Total Spending: 19%
Highest pay band: £90,000-£100,000
Liabilities/Assets: 8%
Liabilities/Income: 3%
Unrestricted Funds/Total Funds: 100%
Reserves/Spending: 4.3 months
Net Current Assets/Spending: 4 months
Quick Ratio: 11.6

Asset Split ?

Established: 24 years

www.alsmndalliance.org

alliance@als-mnd.org

+1-647-203-2117

Charity Commission for England and Wales

Tweets

Listed activities

The Advancement Of Health Or Saving Of Lives

GiG Classification

International poverty relief

How it operates

Acts as an umbrella or resource body
Makes Grants to Organisations
Provides advocacy/advice/information

Where it operates

Argentina, Belgium, Canada, China, Colombia, Croatia, France, Germany, Iceland, India, Ireland, Israel, Netherlands, Northamptonshire, Russia, Scotland, South Africa, Spain, United States,

Who it helps

Other Charities Or Voluntary Bodies
Other Defined Groups

Who works here?

1 employee

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (11)

Current Trustees appointed

Age Range of Trustees: 35-67

DR GETHIN THOMAS Appointed: 2023, Occupation: Executive Director - Research

DR HILMI UYSAL Appointed: 2021, Occupation: Neurologist

LUNG KUO Appointed: 2021, Occupation: Professor

TAMMY MOORE Appointed: 2023, Occupation: Ceo

YOHEI YOMADA Appointed: 2022

ANGELA HARRIS Appointed: 2024, Occupation: Director Of Support Development

CALANEET HADASSAH BALAS (Chair) Appointed: 2017, Occupation: Ceo, The Als Association

GUDJON SIGURDSSON Appointed: 2019, Occupation: Ceo

SABINE TURGEMAN Appointed: 2022, Occupation: Chief Executive

MARCELA SANTOS Appointed: 2020, Occupation: Pshychologist

PABLO AGUSTIN AQUINO Appointed: 2019, Occupation: Director Of Asociation Of Ela Argentina

Legal constitution

Charitable company registered in England & Wales on 23/02/2000, number: 1079504
Registered at Companies House on 24/03/1999, number: 03739783

Gift Aid

NOT registered with HMRC for Gift Aid

Policies in force

Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures

Filing Record

20 returns made; AR18: 82 days late, AR12: 19 days late, AR11: 131 days late,

Main office

Francis Crick House
6 Summerhouse Road
Moulton Park
Northampton
ENGLAND
NN3 6BJ

Objectives

1) FOR THE RELIEF OF PERSONS WORLDWIDE WHO ARE OR WHO ARE SUSPECTED OF BEING AFFECTED BY AMYOTROPHIC LATERAL SCLEROSIS (ALS)/ MOTOR NEURONE DISEASE (MND) AND ASSOCIATED CONDITIONS; AND2) THE ADVANCEMENT OF THE EDUCATION OF THE PUBLIC IN MATTERS RELATING TO ALS/MND

Defined Area of Benefit:

NOT DEFINED

Data Sources