Finance Score: -3
Governance Score: 9
Support Score: 9
  • Fundraising costs high: -3
  • Good trustee age range: +3
  • Dynamic board: +3
  • Gender balanced board: +3
  • Overall weighted support: +9
Overall GiG Score: 15 ?

CYSTIC FIBROSIS TRUST

The Cystic Fibrosis Trust works to improve and transform the lives of people with cystic fibrosis by investing in research and its application to patients, driving up standards of clinical care in the NHS, providing information, advice and support for people with cystic fibrosis and their families, campaigning and influencing policy and raising awareness in the media and the general public.
Analysis by Giving is Great

Positives:

  • The charity has received backing from several prominent grant makers recently
  • The Board appears to be well diversified in terms of age and gender and dynamic in terms of composition

Financial issues to consider:

  • Fundraising costs are extremely high relative to funds raised

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit £k
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/03/23£14,666£12,772£1,894£3,294£11,357£9,7119.1121183
31/03/22£15,681£15,968£-287£4,133£9,671£8,3546.3110183
31/03/21£14,386£13,905£481£3,698£9,516£8,2797.1122200
31/03/20£16,527£16,500£27£3,477£7,897£6,7614.9115200
31/03/19£17,769£15,738£2,031£3,463£8,551£7,0875.4111200
31/03/18£15,169£17,645£-2,476£3,878£6,498£4,9983.41170
31/03/17£13,182£15,550£-2,368£3,673£8,986£7,4285.71110
31/03/16£11,386£13,583£-2,197£4,658£10,765£9,1838.1970
31/03/15£12,113£12,032£81£4,557£13,286£11,77711.7890
31/03/14£10,806£10,123£683£3,670£12,943£11,66913.8820
31/03/13*£9,726£7,201£2,525£3,579£11,895£10,83918.1700
31/03/12*£10,426£5,633£4,793£2,987£9,293£13,36428.5600
31/03/11£8,767£5,048£3,719£2,878£4,500£9,98023.7690
31/03/10£9,172£8,180£992£2,793£779£6,84210660
31/03/09£9,274£10,301£-1,027£2,809£-1,128£6,9748.1630
31/03/08£11,530£9,681£1,849£2,621£430£4,8166610
31/03/07£9,971£13,128£-3,157£2,814£-1,069£5,0104.6620
31/03/06£7,874£8,057£-183n/an/an/an/an/an/a
31/03/05£10,464£8,010£2,454n/an/an/an/an/an/a
31/03/04£6,588£8,172£-1,584n/an/an/an/an/an/a

Financial Ratios
Fundraising Costs/Relevant Income: 31.9%
Fundraising Costs/Total Spending: 26%
Senior Staff Costs/Total Spending: 11%
Highest pay band: £140,000-£150,000
Liabilities/Assets: 58%
Liabilities/Income: 107%
Unrestricted Funds/Total Funds: 86%
Reserves/Spending: 9.1 months
Net Current Assets/Spending: 15 months
Quick Ratio: 0.7
Asset Split ?
Balance Sheet History
Established: 25 years

www.cysticfibrosis.org.uk

enquiries@cysticfibrosis.org.uk

020 3795 1555

Charity Commission for England and WalesCompanies HouseFacebookInstagramX
UN SDGs
?
Listed activities
  • Disability
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • General outpatient health-care services
How it operates
  • Makes grants to individuals
  • Makes grants to organisations
  • Provides advocacy/advice/information
  • Sponsors or undertakes research
Where it operates
  • Northern Ireland, Scotland, Throughout England And Wales,
Who it helps
  • Children/Young People
  • People With Disabilities

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
Joseph Levy Foundation£428,447
Garfield Weston Foundation£400,000
National Lottery Community Fund£259,536
DCMS£68,057
Specific Donations
Amount When
Months
To be used for
Garfield Weston Foundation - Major Grants award
£100,000 20/02/2023
Tackling the Major Cause of Lung Function loss in people with Cystic Fibrosis
Joseph Levy Foundation - Final year of funding for Welfare Grants programme
£38,000 13/01/2023
To support people with CF who need additional financial support due cost of living pressures
National Lottery Community Fund - Work Forwards - Levelling up for a brighter future
£249,536 05/10/2022
This funding will support Cystic Fibrosis Trust (CFT) to offer a range of employment support and advice on financial resilience to people with Cystic Fibrosis who are living longer due to improved medication and needing support in the worlds of work ....more
National Lottery Community Fund - Improving accessibility of the Cystic Fibrosis Helpline
£10,000 28/01/2022
The funding will be used to diversify the channels by which people with cystic fibrosis (CF) and their loved ones can contact our helpline team by introducing an instant messaging service. The project aims to ensure that everyone affected by CF can ....more
Joseph Levy Foundation - Restricted funding for Joseph Levy Education Fund (JLEF)
£105,533 11/01/2022
To support young people with CF's additional costs of study post 16
Joseph Levy Foundation - Restricted funding for new Rest and Respite Fund
£80,038 11/01/2022
To enable people with CF and their families to have a short break
BBC Children in Need - Grant to Cystic Fibrosis Trust
£1,000 15/12/2021
This project will provide training and mentoring to a project worker who will deliver money management sessions to disadvantaged children. Children will improve their life skills through developing their understanding of financial management.
Joseph Levy Foundation - Joseph Levy Education Fund - administration costs
£39,876 02/11/2021
To fund the administration costs of a small grants programme which assists adults with cystic fibrosis with the additional costs of pursuing higher education or vocational training
DCMS - Coronavirus Community Support Fund
£68,057 09/10/2020
"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public ....more
Garfield Weston Foundation - Major Grants award - COVID19 response
£300,000 07/05/2020
Preventing Lung Damage in People with Cystic Fibrosis
Joseph Levy Foundation - Education support grants (cystic fibrosis)
£75,000 13/01/2020
To contribute to the Trust's grants programme which assists adults with cystic fibrosis with the additional costs of pursuing higher education or vocational training
Joseph Levy Foundation - Welfare support grants (cystic fibrosis)
£90,000 13/01/2020
To contribute to the Trust's welfare grants fund to support people with cystic fibrosis and their families
Joseph Levy Foundation - Welfare support grants (cystic fibrosis)
£25,000 29/04/2019
12
To contribute to the Trust's welfare grants fund to support people with cystic fibrosis and their families
Joseph Levy Foundation - Welfare support grants (cystic fibrosis)
£25,000 23/04/2018
12
To contribute to the Trust's welfare grants fund to support people with cystic fibrosis and their families
Joseph Levy Foundation - Education support grants (cystic fibrosis)
£20,000 23/04/2018
12
To contribute to the Trust's grants programme which assists adults with cystic fibrosis with the additional costs of pursuing higher education or vocational training
Sport England - Core Market Open Fund 1
£169,103 26/02/2018
41
Funding under Sport England's Core Market Open Fund funding programme for a Revenue project titled Core Market Open Fund 1. This project is a Sport and Physical Activity project, with a focus on beneficiaries with a disability.
BBC Children in Need - Grant to Cystic Fibrosis Trust
£144,730 09/02/2017
36
Children and young people with Cystic Fibrosis will be healthier, less isolated, and more independent as a result of participation in a course of digital workshops and seminars that build skills and knowledge, shaped by the young people themselves.
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (12)
Current Trustees appointed
Gender Split

Age Range of Trustees: 32-74
  • ANNE BYRNE Appointed: 2019, Occupation: None
  • DR MAYA DESAI Appointed: 2024, Occupation: Medical Doctor
  • JANE WAINWRIGHT Appointed: 2023, Occupation: Director
  • JOANNA BARRETT Appointed: 2019, Occupation: Policy And Public Affairs Manager
  • MARTIN WALSHAW Appointed: 2021, Occupation: Director
  • MICHELLE SHORE Appointed: 2019, Occupation: Solicitor
  • NEIL PRISCOTT Appointed: 2023, Occupation: Chief Operating Officer
  • RICHARD HOEY Appointed: 2019, Occupation: Director Of Communications
  • RICHARD HUNT CBE (Chair) Appointed: 2018, Occupation: Retired Chief Executive
  • SEAN COLLINS Appointed: 2017, Occupation: Business Executive
  • SONYA TRIVEDY Appointed: 2021, Occupation: Charity Director
  • SOPHIE PIERCE Appointed: 2021, Occupation: Social Worker
Legal constitution
  • Charitable company registered in England & Wales on 21/01/2000, number: 1079049
  • Registered at Companies House on 19/11/1999, number: 03880213
Gift Aid
  • Registered with HMRC for Gift Aid
Fundraising Regulator
First registered: 09/01/2016, current status: Large charity (levy paid)
Event History
Policies in force
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Filing Record
20 returns made; AR13: 1 days late, AR12: 2 days late,
Recent reorganisation events:
  • Asset transfer in from FORMER EMS LIMITED on 11/05/2021
  • Asset transfer in from BOURNEMOUTH VOLUNTARY CARE COMMITTEE FOR TUBERCULOSIS AND DISEASES OF THE CHEST on 23/03/2022
Main office

Cystic Fibrosis Trust
1 Aldgate
LONDON
EC3N 1RE

Objectives

1) TO PROMOTE RESEARCH INTO THE CAUSES OF AND A CURE FOR CYSTIC FIBROSIS AND THE DISSEMINATION OF THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT2) THE CARE, TREATMENT, EDUCATION AND ADVANCEMENT IN SUCH WAYS AS ARE CHARITABLE OF PERSONS SUFFERING FROM CYSTIC FIBROSIS IN ANY FORM AND3) THE EDUCATION OF THE GENERAL PUBLIC ABOUT THE CAUSES AND EFFECTS OF CYSTIC FIBROSIS

Defined Area of Benefit:

NOT DEFINED

Data Sources

Charity Commission for England and Wales
360 Giving
Charizone

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