Finance Score: -5

Governance Score: 5

Support Score: 3

Spending falling: -1
but now stabilising: +1
Multiple Deficits and declines: -5
No PartB

Good trustee age range: +3
Dynamic board: +3
Mainly male board: -1

Grant maker support: +3

Overall GiG Score: 3

THE DYSTONIA SOCIETY

Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research

Analysis by Giving is Great

Positives:

The charity has received backing from a grant maker
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Regulatory & Governance issues to consider:

The Board is predominantly male

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period but has stabilised more recently
Income has been volatile and on several occasions in recent years less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23	£277	£286	£-8	n/a	n/a	n/a	n/a	n/a	0
31/03/22	£293	£262	£31	n/a	n/a	n/a	n/a	n/a	30
31/03/21	£422	£310	£112	n/a	n/a	n/a	n/a	n/a	30
31/03/20	£222	£272	£-51	n/a	n/a	n/a	n/a	n/a	50
31/03/19	£295	£428	£-133	n/a	n/a	n/a	n/a	n/a	50
31/03/18	£462	£408	£54	£0	£0	£0	n/a	0	0
31/03/17	£673	£655	£18	£160	£327	£262	4.8	14	0
31/03/16	£465	£698	£-232	£0	£0	£0	n/a	0	0
31/03/15	£707	£725	£-18	£184	£541	£392	6.5	11	0
31/03/14	£784	£731	£53	£186	£559	£338	5.5	9	0
31/03/13	£721	£612	£109	£158	£506	£376	7.4	10	0
31/03/12	£561	£545	£16	£150	£397	£276	6.1	8	0
31/03/11	£454	£688	£-234	£0	£0	£0	n/a	0	0
31/03/10	£734	£658	£76	£143	£615	£500	9.1	9	0
31/03/09?	£721	£741	£-20	£174	£539	£390	6.3	11	0
29/02/08	£599	£492	£106	£112	£559	£334	8.2	9	0
28/02/07	£503	£435	£68	£90	£453	£254	7	10	0
28/02/06	£508	£411	£97	£0	£0	£0	n/a	0	0
28/02/05	£382	£378	£3	£0	£0	£0	n/a	0	0
29/02/04	£350	£311	£39	£0	£0	£0	n/a	0	0

Show more rows -->

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 27 years

www.dystonia.org.uk

info@dystonia.org.uk

02077933656

Charity Commission for England and Wales

Tweets

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Other specialist outpatient services

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

People With Disabilities

Who supports them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
DCMS - Coronavirus Community Support Fund
£60,000	09/10/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (11)

Current Trustees appointed

Gender Split

Age Range of Trustees: 34-73

ANDREW DAVID RUSSELL Appointed: 2021

ANDY YOUNG Appointed: 2015, Occupation: Company Director

CHRISTOPHER BRADSHAW Appointed: 2015, Occupation: Retired

DANIEL BERRY Appointed: 2014, Occupation: Programme Manager

KATIE ADELE WELLS Appointed: 2021

NICHOLAS PETER MORGAN Appointed: 2021

PENNY RITCHIE-CALDER Appointed: 2019, Occupation: Museum Consultant

ROBERT HAROLD WILLIAM SEMPLE Appointed: 2021, Occupation: Accountant

ROSS GRANT Appointed: 2022, Occupation: Postman

STEPHEN JAMES WISHART Appointed: 2014, Occupation: Retired

TIMOTHY JOHN GANNICLIFFE Appointed: 2019, Occupation: Retired, Other trusteeship: NORTH WEST EARLY MUSIC FORUM,

Legal constitution

Charitable company registered in England & Wales on 02/06/1997, number: 1062595
Registered at Companies House on 30/01/1997, number: 03309777

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Engaging external speakers at charity events policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

20 returns made; all on time

Main office

3rd. FLOOR
89 ALBERT EMBANKMENT
LONDON
SE1 7TP

Objectives

(1) TO PROMOTE THE WELFARE OF THOSE PERSONS SUFFERING FROM THE MOVEMENT DISORDER KNOWN AS DYSTONIA OR FROM SIMILAR OR RELATED CONDITIONS, AND (2) TO ADVANCE THE EDUCATION OF THE PUBLIC ABOUT ALL ASPECTS OF THE SAID CONDITIONS.

Defined Area of Benefit:

NATIONAL

Data Sources