Finance Score: -6

Governance Score: 6

Support Score: 1

Spending falling: -1
Multiple Deficits and declines: -5
No PartB

Good trustee age range: +3
Gender balanced board: +3

Grant maker support: +1

Overall GiG Score: 1

THE TUBEROUS SCLEROSIS ASSOCIATION

The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.

Analysis by Giving is Great

Positives:

The charity has received modest backing from a grant maker
The Board appears to be well diversified in terms of age and gender

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period
Income has been volatile and on several occasions in recent years less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22		£285	£359	£-74	n/a	n/a	n/a	n/a	n/a	10
31/12/21	*	£443	£476	£-33	n/a	n/a	n/a	n/a	n/a	10
31/12/20		£419	£614	£-196	n/a	n/a	n/a	n/a	n/a	10
31/12/19		£303	£1,000	£-698	n/a	n/a	n/a	n/a	n/a	10
31/12/18		£324	£975	£-651	£0	£0	£0	n/a	0	10
31/12/17		£440	£1,026	£-585	£0	£0	£0	n/a	0	0
31/12/16		£418	£1,068	£-650	£0	£0	£0	n/a	0	0
31/12/15		£1,176	£1,089	£87	£107	£3,021	£651	7.2	12	0
31/12/14?		£356	£745	£-389	£0	£0	£0	n/a	0	0
31/03/13		£402	£458	£-56	£0	£0	£0	n/a	0	0
31/03/12		£408	£384	£23	£0	£0	£0	n/a	0	0
31/03/11		£356	£329	£27	£0	£0	£0	n/a	0	0
31/03/10		£357	£328	£29	£0	£0	£0	n/a	0	0
31/03/09		£496	£536	£-40	£0	£0	£0	n/a	0	0
31/03/08		£394	£429	£-34	£0	£0	£0	n/a	0	0
31/03/07		£682	£618	£64	£66	£2,844	£2,556	49.6	6	0
31/03/06		£366	£501	£-135	£0	£0	£0	n/a	0	0
31/03/05?	*	£360	£385	£-25	£0	£0	£0	n/a	0	0
30/06/04		£354	£491	£-137	£0	£0	£0	n/a	0	0

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Download accounts

Highest pay bracket: less than £60,000

Established: 30 years

www.tuberous-sclerosis.org

admin@tuberous-sclerosis.org

0300 222 5737

Charity Commission for England and Wales

Tweets

Listed activities

Disability
Education/Training
General Charitable Purposes
The Advancement Of Health Or Saving Of Lives

GiG Classification

Services for people with disabilities

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Provides human resources
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

People With Disabilities

Who supports them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
DCMS - Coronavirus Community Support Fund
£10,000	07/08/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (8)

Current Trustees appointed

Gender Split

Based on 7/8 persons

Age Range of Trustees: 48-77

ANNEMARIE COTTON Appointed: 2019, Occupation: Iass Adviser

DR CHRIS KINGSWOOD, Occupation: Hospital Physician

DR FRANCES ELMSLIE Appointed: 2019, Occupation: Doctor

JANE ROGERS Appointed: 2019, Occupation: Nurse

MR TOM CARTER, Occupation: Textiles Manger

RAJAN KHULLAR Appointed: 2020, Occupation: Chartered Management Accountant

REV MARTIN PETER SHORT Appointed: 2011

SANJAY SETHI (Chair) Appointed: 2018, Occupation: Director

Legal constitution

Charitable company registered in England & Wales on 14/09/1994, number: 1039549
Registered at Companies House on 18/02/1994, number: 02900107

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Investment
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

19 returns made; AR21: 4 days late, AR05: 22 days late,

Main office

c/o Nightingale House
46-48 East Street
Epsom
Surrey
KT17 1HQ

Objectives

TO PROMOTE THE CARE WELFARE TREATMENT INTEREST EDUCATION AND ADVANCEMENT OF PERSONS SUFFERING FROM TUBEROUS SCLEROSIS AND RESEARCH INTO ITS CAUSE AND CURE INCLUDING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH

Defined Area of Benefit:

NOT DEFINED (IN PRACTICE GREAT BRITAIN AND NORTHERN IRELAND)

Data Sources