Finance Score: -3

Governance Score: 9

Support Score: 2

Large legacies income: +1
Multiple Deficits: -2
Fundraising costs high: -2

Good trustee age range: +3
Dynamic board: +3
Gender balanced board: +3

Overall weighted support: +2

Overall GiG Score: 8

THE HAEMOPHILIA SOCIETY

The Society represents, offers support, and provides information for all people affected by bleeding disorders.

Analysis by Giving is Great

Positives:

The charity has received modest backing from a grant maker recently
This charity has received considerable income from legacies in recent years
Spending has increased over the last 3 years relative to the previous period
The Board appears to be well diversified in terms of age and gender and dynamic in terms of composition

Financial issues to consider:

On several occasions in recent years income has been less than spending
Fundraising costs are high relative to funds raised

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit £k	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23		£795	£1,073	£-278	£183	£844	£435	4.9	15	15
31/03/22		£749	£1,183	£-434	£287	£1,169	£1,048	10.6	13	50
31/03/21		£815	£772	£43	£115	£1,571	£1,406	21.9	9	100
31/03/20		£925	£950	£-25	£99	£1,416	£1,380	17.4	11	100
31/03/19		£1,265	£1,073	£192	£132	£1,458	£1,389	15.5	12	100
31/03/18		£682	£778	£-96	£103	£1,224	£1,187	18.3	10	0
31/03/17		£1,177	£738	£439	£115	£1,341	£1,303	21.2	10	0
31/03/16		£645	£653	£-8	£132	£861	£804	14.8	7	0
31/03/15	*	£669	£791	£-122	£333	£886	£805	12.2	5	0
31/03/14		£786	£638	£148	£194	£948	£847	15.9	7	0
31/03/13		£875	£570	£305	£95	£803	£670	14.1	7	0
31/03/12		£689	£625	£65	£86	£470	£369	7.1	7	0
31/03/11		£646	£607	£39	£119	£402	£292	5.8	8	0
31/03/10		£697	£628	£69	£95	£361	£269	5.1	7	0
31/03/09		£674	£712	£-37	£150	£279	£140	2.4	9	0
31/03/08?		£836	£977	£-140	£255	£339	£173	2.1	9	0
31/12/06		£740	£839	£-99	n/a	n/a	n/a	n/a	n/a	n/a
31/12/05		£731	£777	£-45	n/a	n/a	n/a	n/a	n/a	n/a
31/12/04		£641	£659	£-17	n/a	n/a	n/a	n/a	n/a	n/a

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Financial Ratios

Fundraising Costs/Relevant Income: 24.2%
Fundraising Costs/Total Spending: 17.1%
Senior Staff Costs/Total Spending: 17%
Highest pay band: £80,000-£90,000
Liabilities/Assets: 11%
Liabilities/Income: 13%
Unrestricted Funds/Total Funds: 52%
Reserves/Spending: 4.9 months
Net Current Assets/Spending: 1 months
Quick Ratio: 1.4

Asset Split ?

Balance Sheet History

Established: 41 years

www.haemophilia.org.uk

info@haemophilia.org.uk

02079390780

Charity Commission for England and Wales

Tweets

Listed activities

The Advancement Of Health Or Saving Of Lives

GiG Classification

Services for people with disabilities

How it operates

Provides advocacy/advice/information
Provides human resources
Provides services

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Children/Young People
Elderly/Old People
People With Disabilities
The General Public/Mankind

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Newly Diagnosed Weekends
£10,000	28/10/2022	This project will provide support to parents who have recently found out that their child has a bleeding disorder. The project will run two events one in the north and one the south to bring together ....more This project will provide support to parents who have recently found out that their child has a bleeding disorder. The project will run two events one in the north and one the south to bring together experts in bleeding disorders and families to ensure their child gets the best care.
National Lottery Community Fund - BAU Delivery
£10,000	10/09/2021	The funding will be used to support the bleeding disorder community in the UK. The project aims to provide advice information and guidance via local groups youth camps and residential weekends to ....more The funding will be used to support the bleeding disorder community in the UK. The project aims to provide advice information and guidance via local groups youth camps and residential weekends to improve the mental and physical wellbeing of the community and their families.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (11)

Current Trustees appointed

Gender Split

Age Range of Trustees: 36-64

AMY OWEN-WYARD Appointed: 2021, Occupation: Mental Health Nurse

CLIVE SMITH Appointed: 2015, Occupation: Barrister

CONAN MCILWRATH Appointed: 2019, Occupation: Asset Performance Engineer

GORDON DIXON Appointed: 2019, Occupation: Retired

JOANNE TRAUNTER Appointed: 2019, Occupation: University Lecturer

LISA BAGLEY Appointed: 2023, Occupation: It Consultant

NATALIE LAWSON Appointed: 2021, Occupation: Nurse

PAUL SARTAIN Appointed: 2018, Occupation: Home Maker

RAYAZ ALI CHEL Appointed: 2021, Occupation: Nhs Manager

STACEY MCGEOWN Appointed: 2023, Occupation: Teaching Associate

SUSAN STRETCH Appointed: 2021, Occupation: Lead, Infected Blood Inquiry

Legal constitution

Charitable company registered in England & Wales on 30/11/1983, number: 288260
Registered at Companies House on 21/10/1983, number: 01763614

Gift Aid

Registered with HMRC for Gift Aid

Event History

02/07/2019 - Asset transfer in from THE LINCOLN SPIRITUAL ASSOCIATION
15/12/2023 - Asset transfer in from THE HAEMNET FOUNDATION

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

19 returns made; AR15: 48 days late,

Recent reorganisation events:

Asset transfer in from THE HAEMNET FOUNDATION on 15/12/2023

Main office

52B Borough High Street
LONDON
SE1 1XN

Objectives

1) THE RELIEF OF PEOPLE SUFFERING FROM HAEMOPHILIA AND RELATED OR ASSOCIATED BLEEDING DISORDERS2) THE ADVANCEMENT OF PUBLIC EDUCATION INTO THE NATURE AND CAUSES OF HAEMOPHILIA AND RELATED OR ASSOCIATED BLEEDING DISORDERS.

Defined Area of Benefit:

NOT DEFINED

Data Sources

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