Finance Score: 0

Governance Score: -1

Support Score: 0

No PartB

No conflicts policy: -1

No supporters identified

Overall GiG Score: -1

FSHD UK CHARITY

To preserve and protect good health among and relieve the needs of people living with FSHD, their families and carers, in particular but not exclusively by raising awareness of FSHD within the general public, medical and scientific communities and support medical and scientifc organisations or indivduals with activities and projects to further the Charity's overall objectives.

Analysis by Giving is Great

Regulatory & Governance issues to consider:

This charity does not have a Conflict of Interests policy

Financial Data ?

This charity has not yet lodged any accounts with the Charities Commission.

Established: less than 1 year

rbadiani@hotmail.com

07803856451

Charity Commission for England and Wales

Listed activities

Disability
Education/Training
General Charitable Purposes
Other Charitable Purposes
The Advancement Of Health Or Saving Of Lives

GiG Classification

Secondary schools

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England,

Who it helps

Children/Young People
Elderly/Old People
Other Charities Or Voluntary Bodies
People With Disabilities
The General Public/Mankind

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (3)

Current Trustees appointed

RAJESHRI BADIANI (Chair) Appointed: 2023

ANDREW MCCULLOCH GRAHAM Appointed: 2023

RUTH LEE HEREFORD Appointed: 2023, Occupation: Accountant, Other trusteeship: NMC MIDLANDS LTD,

Legal constitution

Charity registered in England & Wales on 14/12/2023, number: 1206212

Gift Aid

NOT registered with HMRC for Gift Aid

Policies in force

There are no Policies registered with the Charities Commission

Main office

19 Langley Road
LONDON
SW19 3NZ

Objectives

THE OBJECTS OF THE CIO ARE: TO PRESERVE AND PROTECT GOOD HEALTH AMONG, AND RELIEVE THE NEEDS OF, PEOPLE LIVING WITH FSHD, THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (A) PROVIDING INFORMATION, HELP AND SUPPORT TO SUCH PEOPLE AND THEIR FAMILIES AND CARERS; (B) MAKING FINANCIAL DONATIONS TO SUPPORT ORGANISATIONS AND INDIVIDUALS CARRYING OUT RESEARCH INTO FSHD, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED FOR PUBLIC BENEFIT; AND (C) RAISING AWARENESS OF FSHD WITHIN THE GENERAL PUBLIC, MEDICAL AND SCIENTIFIC COMMUNITIES. (D) SUPPORT MEDICAL AND SCIENTIFIC ORGANISATIONS OR INDIVIDUALS WITH ACTIVITIES AND PROJECTS TO FURTHER THE CHARITY?S OVERALL OBJECTIVE OF HELPING TO RELIEVE THE BURDEN ON, AND IMPROVE QUALITY OF LIFE FOR, PEOPLE LIVING WITH FSHD.

Data Sources