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home >> charity search >> batten disease family association cio
Finance Score: 0
Governance Score: -1
Support Score: 0
  • No PartB
  • No conflicts policy: -1
  • No supporters identified
Overall GiG Score: -1 ?

BATTEN DISEASE FAMILY ASSOCIATION CIO 

Analysis by Giving is Great

Regulatory & Governance issues to consider:

  • This charity does not have a Conflict of Interests policy
miles

Financial Data ?

This charity has not yet lodged any accounts with the Charities Commission.
Established: less than 1 year

www.bdfa_uk.org.uk

admin@bdfa-uk.org.uk

07354486586

Charity Commission for England and Wales
UN SDGs
?
Listed activities
  • Disability
  • Education/Training
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • Secondary schools
How it operates
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Northern Ireland, Scotland, Throughout England And Wales,
Who it helps
  • Children/Young People
  • People With Disabilities

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (4)

Legal constitution
  • Charity registered in England & Wales on 11/09/2023, number: 1205650
Gift Aid
  • NOT registered with HMRC for Gift Aid
Policies in force
There are no Policies registered with the Charities Commission
Main office

BATTEN DISEASE FAMILY ASSOCIATION
PO BOX 379
SHIPLEY
WEST YORKSHIRE
BD18 9GE

Objectives

THE OBJECTS OF THE CIO ARE:TO PRESERVE AND PROTECT THE HEALTH AND WELLBEING OF PERSONS AFFECTED BY ALL TYPES OF NEURONAL CERIOD LIPOFUSCINOSIS (NCL) COMMONLY KNOWN AS BATTEN DISEASE.TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF BATTEN DISEASE AND ITS IMPLICATIONS FOR THE FAMILY, IN PARTICULAR BUT NOT EXCLUSIVELY BY SUPPORTING AND CONDUCTING RESEARCH INTO THE MANAGEMENT OF BATTEN DISEASE AND TO PUBLISH THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO BATTEN DISEASE.

Data Sources

Charity Commission for England and Wales
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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