Finance Score: -3

Governance Score: 2

Support Score: 0

Spending falling: -1
but now stabilising: +1
Volatile income: -3
No PartB

No conflicts policy: -1
Gender balanced board: +3

No supporters identified

Overall GiG Score: -1

MIND BODY EDS

Our Charity provides grants to individuals with, or suspected of having, the condition of Ehlers Danlos syndromes to allow for timely treatment and diagnosis of the disease and its symptoms; we also aim to raise awareness among the public and within the medical profession. We operate across the UK.

Analysis by Giving is Great

Regulatory & Governance issues to consider:

This charity does not have a Conflict of Interests policy

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period but has stabilised more recently
Income has been volatile recently

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit £k	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/23	£23	£17	£6	n/a	n/a	n/a	n/a	n/a	n/a
31/12/22	£31	£31	£0	n/a	n/a	n/a	n/a	n/a	n/a
31/12/21	£42	£19	£23	n/a	n/a	n/a	n/a	n/a	n/a
31/12/20	£10	£7	£3	n/a	n/a	n/a	n/a	n/a	n/a
31/12/19	£45	£59	£-13	n/a	n/a	n/a	n/a	n/a	n/a
31/12/18	£41	£22	£20	n/a	n/a	n/a	n/a	n/a	n/a

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Highest pay bracket: less than £60,000

Established: 7 years

mindbodyeds.org.uk

info@mindbodyeds.org.uk

01252 711244

Charity Commission for England and Wales

Tweets

Listed activities

Disability
Education/Training
General Charitable Purposes
The Advancement Of Health Or Saving Of Lives

GiG Classification

Emotional support, counselling or therapy

How it operates

Makes grants to individuals
Makes grants to organisations
Provides advocacy/advice/information
Provides other finance
Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

Children/Young People
Elderly/Old People
Other Charities Or Voluntary Bodies
People With Disabilities
The General Public/Mankind

Who supports them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (4)

Current Trustees appointed

Gender Split

DR ROCHELLE DODDS SYLVESTER Appointed: 2024

FRANCESCA LOCK Appointed: 2019

KEVIN JOHN SYLVESTER Appointed: 2018

MARTIN RAYMOND COLEMAN Appointed: 2024

Legal constitution

Charity registered in England & Wales on 15/02/2018, number: 1177182

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Trustee expenses policy and procedures

Filing Record

6 returns made; all on time

Main office

Wise & Co
Wey Court West
Union Road
FARNHAM
Surrey
GU9 7PT

Objectives

1) THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROMOTION OF GOOD HEALTH AMONG PEOPLE SUFFERING FROM EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING INFORMATION AND GRANTS OF FINANCIAL ASSISTANCE TO THOSE DIAGNOSED WITH SUCH CONDITIONS, AND THOSE SEEKING A DIAGNOSIS. B) PROVIDING GRANTS OF FINANCIAL ASSISTANCE TO ORGANISATIONS UNDERTAKING RESEARCH INTO EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT. 2) TO ADVANCE THE EDUCATION OF THE PUBLIC IN EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING INFORMATIVE TALKS DESIGNED TO RAISE AWARENESS AND FURTHER KNOWLEDGE OF THE CONDITIONS AMONG THE MEDICAL PROFESSION. FOR THE PURPOSES OF THIS CLAUSE: EHLERS-DANLOS SYNDROMES (EDS) ARE A GROUP OF RARE INHERITED CONDITIONS THAT AFFECT CONNECTIVE TISSUE. CONNECTIVE TISSUES PROVIDE SUPPORT IN SKIN, TENDONS, LIGAMENTS, BLOOD VESSELS, INTERNAL ORGANS AND BONES. THERE ARE THIRTEEN DIFFERENT TYPES OF EDS THAT MAY SHARE SOME SYMPTOMS, INCLUDING: AN INCREASED RANGE OF JOINT MOVEMENT, STRETCHY SKIN, FRAGILE SKIN THAT BREAKS OR BRUISES EASILY. THE DIFFERENT TYPES OF EDS ARE CAUSED BY FAULTS IN CERTAIN GENES THAT MAKE CONNECTIVE TISSUE WEAKER. DEPENDING ON THE TYPE OF EDS, THE FAULTY GENE MAY HAVE BEEN INHERITED FROM ONE PARENT, OR BOTH PARENTS. SOMETIMES THE FAULTY GENE ISN'T INHERITED, BUT OCCURS IN THE PERSON FOR THE FIRST TIME. EDS CAN AFFECT PEOPLE IN DIFFERENT WAYS. FOR SOME, THE CONDITION IS RELATIVELY MILD, WHILE FOR OTHERS THEIR SYMPTOMS CAN BE DISABLING AND LIFE-THREATENING. COMORBIDITIES AND RELATED CONDITIONS INCLUDE: AUTONOMIC NERVOUS SYSTEM DISORDERS; CARDIOVASCULAR DYSAUTONOMIA; FUNCTIONAL GASTROINTESTINAL DISORDERS; IMMUNE SYSTEM DYSREGULATION; EXOCRINE GLAND DYSFUNCTION; MAST CELL ACTIVATION DISORDER; MUSCULOSKELETAL SYSTEM DISORDERS; SKIN AND MUCOSA DISORDERS; NERVOUS SYSTEM DISORDERS; GYNAECOLOGICAL DISORDERS; CHRONIC FATIGUE SYNDROME; CHRONIC PAIN SYNDROME AND PSYCHIATRIC DISORDERS.