Finance Score: -7

Governance Score: 3

Support Score: 0

Accounts filed more than 5 days late: -2 times
Multiple Deficits and declines: -5
No PartB

No volunteer policy: -2
Good trustee age range: +3
Dynamic board: +3
Mainly male board: -1

No supporters identified

Overall GiG Score: -4

UNITED KINGDOM PRIMARY IMMUNODEFICIENCY NETWORK

The main objectives of UK PIN are the development of best practice guidance, maintenance of patient registry and advancement of education in primary immunodeficiency. The charity seeks to achieve its objectives by aiming to improve patient care through standardisation of care based on evidence and enhanced understanding of disease.

Analysis by Giving is Great

Positives:

Spending has increased over the last 3 years relative to the previous period
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Regulatory & Governance issues to consider:

Although this charity works with volunteers it does not have a Volunteer Management policy
The Board is predominantly male
Over half the Board have joined recently

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Accounts have been filed late on 2 occasions over the last 5 years and the current period appears to have been extended
Income has been volatile and on several occasions in recent years less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22		£55	£227	£-172	n/a	n/a	n/a	n/a	n/a	20
31/12/21		£221	£179	£42	n/a	n/a	n/a	n/a	n/a	14
31/12/20	*	£72	£103	£-31	n/a	n/a	n/a	n/a	n/a	20
31/12/19?	*	£246	£177	£69	n/a	n/a	n/a	n/a	n/a	0
31/10/18		£212	£178	£34	£0	£0	£0	n/a	0	0
31/10/17		£129	£136	£-6	£0	£0	£0	n/a	0	0
31/10/16		£229	£235	£-6	£0	£0	£0	n/a	0	0

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Highest pay bracket: less than £60,000

Established: 8 years

http://ukpin.org.uk/

info@ukpin.org.uk

02030195901

Charity Commission for England and Wales

Listed activities

Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Other specialist outpatient services

How it operates

Acts as an umbrella or resource body
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

The General Public/Mankind

Who works here?

Unknown number of employees
20 volunteers

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (5)

Current Trustees appointed

Gender Split

Age Range of Trustees: 45-68

DR DOUG BROWN Appointed: 2022, Occupation: Chief Executive

OTTO BALSIGER Appointed: 2022, Occupation: Finance Director

PAUL HARDING Appointed: 2022, Occupation: Director

DR FIONA CULLEY (Chair) Appointed: 2022, Occupation: Immunologist, Other trusteeship: BRITISH SOCIETY FOR IMMUNOLOGY,

JAMES LOWE Appointed: 2022, Occupation: Chartered Accountant, Other trusteeships: DACORUM COUNCIL FOR VOLUNTARY SERVICE, BRITISH SOCIETY FOR IMMUNOLOGY,

Legal constitution

Charitable company registered in England & Wales on 18/11/2015, number: 1164466
Registered at Companies House on 21/10/2014, number: 09273983

Gift Aid

NOT registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Risk management

Filing Record

7 returns made; AR20: 11 days late, AR19: 52 days late,

Main office

9 Appold Street
London
EC2A 2AP

Objectives

The Objects of the Charity are, for the public benefit: • The advancement of health in particular among those with primary immunodeficiency disorders (“PID”) and related disorders and in particular but without limitation by: o Developing best-practice approaches to diagnosis and management of PID and related disorders; o Developing clinical guidelines by means of setting consensus standards based upon agreed UK best practice; o Establishing and maintaining a national patients registry; and • The advancement of education in PID and related subjects including disorders of innate and antigen-specific immunity, in particular but without limitation by promoting improved understanding of PID and related disorders among healthcare professionals, students and the public. • The support and advancement of clinical immunology through education, research, and clinical practice for the benefit of healthcare professionals, the public and patients. This provision may be amended by special resolution but only with the prior written consent of the Commission.

Defined Area of Benefit:

NOT DEFINED

Data Sources