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home >> charity search >> alport uk
Finance Score: -8
Governance Score: 0
Support Score: 0
  • Accounts filed more than 5 days late: -3 times
  • Spending falling: -1
  • but now stabilising: +1
  • Volatile income & significant deficit in latest year: -5
  • No PartB
  • Static board: -3
  • Gender balanced board: +3
  • Large volunteers +3
Overall GiG Score: -5 ?

ALPORT UK 

Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.
Analysis by Giving is Great

Positives:

  • This charity has been successful in attracting volunteers relative to its size
  • There have been no material income shortfalls in recent years
  • A significant proportion of recent income was derived from major grant makers including the Government
  • The Board appears to be well diversified in terms of gender

Regulatory & Governance issues to consider:

  • The Board composition appears to be rather static

Financial issues to consider:

  • A PartB annual return has not been required and so detailed financial information is not available from the online data
  • Accounts have been filed late on 3 occasions over the last 5 years and the current period appears to have been extended
  • Spending has fallen significantly over the last 5 years relative to the previous period but has stabilised more recently
  • Income has been volatile recently and was significantly lower than spending in the latest year
miles

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k		 Spending
£k		 Surplus/
Deficit		 Fundraising
Cost £k		 Total
Funds £k		 Unrestricted
Funds £k		 Mths
Rsrvs		 Staff Volun-
teers
01/08/22£37£48£-10n/an/an/an/an/a15
01/08/21£60£28£32n/an/an/an/an/a15
01/08/20*£60£28£32n/an/an/an/an/a15
01/08/19*£60£28£32n/an/an/an/an/a23
01/08/18*£142£98£44£0£0£0n/a09
01/08/17£19£52£-33£0£0£0n/a00
01/08/16*£36£64£-28£0£0£0n/a00
01/08/15*£35£27£8£0£0£0n/a00
01/08/14*£110£66£44£0£0£0n/a00
Show more rows -->

Download accounts
Highest pay bracket: less than £60,000
Established: 10 years

alportuk.org

info@alportuk.org

01793 847264

Charity Commission for England and WalesFacebookInstagramX
UN SDGs
?
Listed activities
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • Scientific research and testing services
How it operates
  • Provides advocacy/advice/information
Where it operates
  • Throughout England And Wales,
Who it helps
  • Other Defined Groups
Who works here?
  • Unknown number of employees
  • 15 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations
Amount When
Months		 To be used for
Barnwood Trust - Organisational and Groups Funding
£2,000 27/04/2021
Support for people affected by Alport Syndrome

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)
Current Trustees appointed
Gender Split

Legal constitution
  • Charity registered in England & Wales on 27/11/2013, number: 1154774
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Complaints handling
  • Conflicting interests
  • Risk management
  • Safeguarding vulnerable beneficiaries
  • Volunteer management
Filing Record
9 returns made; AR20: 81 days late, AR19: 143 days late, AR18: 221 days late, AR16: 363 days late, AR15: 7 days late, AR14: 329 days late,
Main office

PO Box 329
Cirencester
GL7 9JA

Objectives

THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PROMOTION OF HEALTH OF THOSE PEOPLE SUFFERING FROM ALPORT SYNDROME, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (A) THE ESTABLISHMENT AND FACILITATION OF A SUPPORT NETWORK FOR ALPORT SYNDROME PATIENTS, CARRIERS, THEIR FAMILIES AND CARERS; (B) THE PROVISION OF INFORMATION ON ALPORT SYNDROME; (C) THE SUPPORT OF RESEARCH INTO ALPORT SYNDROME BOTH IN THE UK AND INTERNATIONALLY;(D) THE SUPPORT OF A RESEARCH REGISTRY IN THE UK AND AN INTERNATIONAL ALLIANCE OF NATIONAL REGISTRIES.

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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