Finance Score: 0
Governance Score: 3
Support Score: 0
  • No PartB
  • Dynamic board: +3
  • No supporters identified
Overall GiG Score: 3 ?

MDS UK PATIENT SUPPORT GROUP 

Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.
Analysis by Giving is Great

Positives:

  • There have been no material income shortfalls in recent years
  • The Board appears to be dynamic in terms of composition

Regulatory & Governance issues to consider:

  • Over half the Board have joined recently

Financial issues to consider:

  • A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/03/23£402£204£198n/an/an/an/an/a30
31/03/22£421£107£313n/an/an/an/an/a25
31/03/21£181£156£25n/an/an/an/an/a25
31/03/20£94£309£-215n/an/an/an/an/a19
31/03/19£156£151£5n/an/an/an/an/a12
31/03/18£204£144£60£0£0£0n/a00
31/03/17£112£74£38£0£0£0n/a00
31/03/16£118£84£35£0£0£0n/a00
31/03/15£81£81£0£0£0£0n/a00
31/03/14£85£27£57£0£0£0n/a00
31/03/13*£94£43£51£0£0£0n/a00

Highest pay bracket: less than £60,000
Established: 12 years

www.mdspatientsupport.org.uk

info@mdspatientsupport.org.uk

02077337558

Charity Commission for England and WalesFacebookX
UN SDGs
?
Listed activities
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • General outpatient health-care services
How it operates
  • Provides advocacy/advice/information
  • Provides services
Where it operates
  • Northern Ireland, Throughout England And Wales,
Who it helps
  • Children/Young People
  • Elderly/Old People
  • People With Disabilities
Who works here?
  • Unknown number of employees
  • 30 volunteers

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (9)
Current Trustees appointed

Age Range of Trustees:
Legal constitution
  • Charity registered in England & Wales on 22/12/2011, number: 1145214
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Volunteer management
Filing Record
11 returns made; AR13: 61 days late,
Main office

Unit FT.B12
Fuel Tank
8-12 Creekside
London
SE8 3DX

Objectives

1) TO RELIEVE SICKNESS AND PRESERVE, PROMOTE AND PROTECT HEALTH OF SUFFERERS OF MYELODYSPLASTIC SYNDROME (MDS) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT EDUCATION AND PRACTICAL ADVICE.2) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC 0001IN THE UNITED KINGDOM IN ALL AREAS IN RELATION TO MDS.3) TO PROMOTE AND SUPPORT SCIENTIFIC RESEARCH INTO MDS, FOR THE TREATMENT OF MDS AND THE CARE OF SUFFERERS OF MDS, AND THOSE DISPOSED TO THE DEVELOPMENT OF SUFFERING MDS.

Data Sources

Charity Commission for England and Wales
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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