Finance Score: -6

Governance Score: 6

Support Score: 3

Spending falling: -1
Multiple Deficits and declines: -5
No PartB

Good trustee age range: +3
Dynamic board: +3

Grant maker support: +3

Overall GiG Score: 3

GENE PEOPLE

Mission:

Gene People exists to improve the lives of those affected by genetic conditions and their families and carers.

Analysis by Giving is Great

Positives:

The charity has received backing from a grant maker
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Regulatory & Governance issues to consider:

Over half the Board have joined recently

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period
Income has been volatile and on several occasions in recent years less than spending

Comment by the Charity:
Please note: since the last published annual report Gene People has undergone a substantial restructure, demerging the Jeans for Genes campaign and PID UK into two stand-alone charities. This has altered our cost-base and fundraising model, and is why we have new Board members.

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23		£108	£129	£-21	n/a	n/a	n/a	n/a	n/a	4
31/03/22		£105	£148	£-44	n/a	n/a	n/a	n/a	n/a	4
31/03/21		£671	£889	£-218	£378	£75	£59	0.8	4	4
31/03/20		£1,050	£1,074	£-23	£608	£292	£277	3.1	6	15
31/03/19		£1,131	£1,318	£-188	£626	£316	£251	2.3	10	6,227
31/03/18	*	£1,387	£1,433	£-47	£431	£503	£440	3.7	10	0
31/03/17		£1,388	£1,323	£65	£501	£550	£483	4.4	10	0
31/03/16		£1,361	£1,305	£56	£443	£485	£441	4.1	10	0
31/03/15		£1,542	£1,621	£-79	£65	£429	£396	2.9	10	0
31/03/14		£1,655	£1,548	£107	£60	£508	£506	3.9	10	0
31/03/13		£1,726	£1,606	£120	£687	£401	£401	3	9	0
31/03/12		£1,845	£1,564	£281	£618	£281	£281	2.2	7	0

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Download accounts

Senior Staff Costs/Total Spending: 61%
Highest pay band: £60,000-£70,000

Established: 13 years

www.genepeople.org.uk

hello@genepeople.org.uk

0800 987 8987

Charity Commission for England and Wales

Tweets

What it does

Gene People (formerly Genetic Disorders) was created in 2011 with the aim of improving the lives of those affected by genetic conditions. The charity offers support and information to affected individuals and their families through their unique genetic counsellor-led helpline and web resources, and strengthens UK-based condition-specific support groups and charities. Gene People advocates in matters of national policy on behalf of their community.

Listed activities

Disability
Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Services for people with disabilities

How it operates

Acts as an umbrella or resource body
Makes Grants to Organisations
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

Children/Young People
Other Charities Or Voluntary Bodies
People With Disabilities

Who works here?

Unknown number of employees
4 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
DCMS - Coronavirus Community Support Fund
£82,500	05/08/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (8)

Current Trustees appointed

Gender Split

Based on 7/8 persons

Age Range of Trustees: 35-58

SAURAV MITRA Appointed: 2020, Occupation: Finance/Private Wealth

CHRISTOPHER JOHN CONWAY Appointed: 2022, Occupation: Domain Lead

DAVID GEORGE ATKINS Appointed: 2022, Occupation: Trustee

DEREK ANSEL Appointed: 2022, Occupation: Director

DR NICOLA TAVERNER Appointed: 2022, Occupation: Genetic Counsellor

ALASTAIR KENT OBE (Chair) Appointed: 2020, Other trusteeship: ACCESS - SUPPORTING MIGRANTS IN EAST ANGLIA,

ARTI PATEL Appointed: 2023, Occupation: Trustee, Other trusteeship: TREACHER COLLINS FAMILY SUPPORT GROUP,

DR CRYSTAL ANN RUFF Appointed: 2019, Occupation: Consultant

Legal constitution

Charitable company registered in England & Wales on 26/04/2011, number: 1141583
Registered at Companies House on 15/03/2011, number: 07564771

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Trustee conflicts of interest policy and procedures
Volunteer management

Filing Record

12 returns made; AR18: 1 days late,

Main office

c/o Tudor John Accountants Ltd
Nightingale House
46-48 East Street
EPSOM
Surrey
KT17 1HQ

Objectives

THE OBJECTS OF THE CHARITY ARE:3.1 THE RELIEF OF PERSONS SUFFERING FROM GENETIC DISORDERS; 3.2 THE ADVANCEMENT OF MEDICAL RESEARCH INTO THE CAUSES, CURE, PREVENTION OR RELIEF OF GENETIC DISORDERS AND THE PUBLICATION OF THE USEFUL RESULTS OF THAT RESEARCH;3.3 TO RAISE AWARENESS AND ADVANCE THE EDUCATION OF THE PUBLIC ON THE SUBJECT OF GENETIC DISORDERS;3.4 TO PROMOTE THE EFFICIENCY AND EFFECTIVENESS OF OTHER GENETIC DISORDER CHARITIES IN ORDER TO ASSIST THEM TO ACHIEVE THEIR CHARITABLE PURPOSES; AND3.5 SUCH OTHER PURPOSES AS ARE CHARITABLE ACCORDING TO THE LAWS OF ENGLAND AND WALES FOR THE BENEFIT OF THE PUBLIC.

Defined Area of Benefit:

UNITED KINGDOM

Data Sources