Finance Score: -6

Governance Score: -4

Support Score: 0

Spending falling: -1
Multiple Deficits and declines: -5
No PartB

Narrow trustee age band: -2
Very static board: -5
Gender balanced board: +3

No supporters identified

Overall GiG Score: -10

THE AADC RESEARCH TRUST

Promoting awareness and funding research into AADC. The trust also offers support to AADC affected families.

Analysis by Giving is Great

Positives:

A significant proportion of recent income was derived from major grant makers including the Government
The Board appears to be well diversified in terms of gender

Regulatory & Governance issues to consider:

The Board composition appears to be very static and has little diversity in terms of age

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period
Income has been volatile and on several occasions in recent years less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23		£7	£63	£-56	n/a	n/a	n/a	n/a	n/a	0
31/03/22		£27	£51	£-24	n/a	n/a	n/a	n/a	n/a	10
31/03/21		£43	£77	£-33	n/a	n/a	n/a	n/a	n/a	10
31/03/20		£402	£210	£192	n/a	n/a	n/a	n/a	n/a	10
31/03/19		£177	£230	£-53	n/a	n/a	n/a	n/a	n/a	10
31/03/18		£285	£272	£13	£0	£0	£0	n/a	0	0
31/03/17		£331	£344	£-13	£0	£0	£0	n/a	0	0
31/03/16		£234	£185	£48	£0	£0	£0	n/a	0	0
31/03/15		£203	£213	£-10	£0	£0	£0	n/a	0	0
31/03/14		£142	£142	£0	£0	£0	£0	n/a	0	0
31/03/13	*	£68	£60	£8	£0	£0	£0	n/a	0	0
31/03/12	*	£43	£59	£-17	£0	£0	£0	n/a	0	0
31/03/11		£72	£79	£-7	£0	£0	£0	n/a	0	0
31/03/10	*	£51	£80	£-29	£0	£0	£0	n/a	0	0
31/03/09		£52	£73	£-21	£0	£0	£0	n/a	0	0
31/03/08		£54	£26	£28	£0	£0	£0	n/a	0	0
31/03/07	*	£103	£35	£68	£0	£0	£0	n/a	0	0

Show more rows -->

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Download accounts

Highest pay bracket: less than £60,000

Established: 18 years

www.aadcresearch.co.uk

enquiries@aadcresearch.org

07778 356533

Charity Commission for England and Wales

Listed activities

The Advancement Of Health Or Saving Of Lives

GiG Classification

Medical education & research

How it operates

Acts as an umbrella or resource body
Makes Grants to Individuals
Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

People With Disabilities

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (5)

Current Trustees appointed

Gender Split

Age Range of Trustees: 57-73

ANTHONY CHARLES FLINT Appointed: 2006, Occupation: Company Director

BRIAN ANDREW JEFFERIES Appointed: 2006, Occupation: Chartered Building Survey

JACQUELINE JEFFERIES Appointed: 2006, Occupation: Chartered Building Survey

LISA CHERIE FLINT Appointed: 2006, Occupation: Company Director

PROFESSOR SIMON JAMES ROBERT HEALES Appointed: 2006, Occupation: Consultant Biochemist, Other trusteeship: THE SOCIETY FOR MUCOPOLYSACCHARIDE DISEASES,

Legal constitution

Charitable company registered in England & Wales on 24/05/2006, number: 1114367
Registered at Companies House on 30/03/2005, number: 05407899

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

17 returns made; AR13: 1 days late, AR12: 1 days late, AR10: 2 days late, AR07: 128 days late,

Main office

Pineacre
Southfields Road
Woldingham
CATERHAM
Surrey
CR3 7BG

Objectives

(A) THE RELIEF OF SICKNESS OF PEOPLE WITH AROMATIC AMINO-ACID DECARBOXYLASE (AADC) DEFICIENCY AND THEIR PARENTS AND CARERS.(B) TO PROMOTE MEDICAL RESEARCH INTO AROMATIC AMINO-ACID DECARBOXYLASE (AADC) DEFICIENCY AND THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE PUBLIC.(C) TO ADVANCE THE EDUCATION OF THE PUBLIC IN AROMATIC AMINO-ACID DECARBOXYLASE (AADC) DEFICIENCY.

Defined Area of Benefit:

NOT DEFINED.

Data Sources