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home >> charity search >> stickler syndrome uk
Finance Score: -3
Governance Score: 1
Support Score: 0
  • Spending declining: -1
  • Multiple Deficits: -2
  • No PartB
  • No volunteer policy: -2
  • Gender balanced board: +3
  • Large volunteers +3
Overall GiG Score: 1 ?

STICKLER SYNDROME UK 

Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.
Analysis by Giving is Great

Positives:

  • This charity has been successful in attracting volunteers relative to its size

Regulatory & Governance issues to consider:

  • Although this charity works with volunteers it does not have a Volunteer Management policy
  • Over half the Board have joined recently

Financial issues to consider:

  • A PartB annual return has not been required and so detailed financial information is not available from the online data
  • Spending is declining
  • On several occasions in recent years income has been less than spending
miles

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k		 Spending
£k		 Surplus/
Deficit		 Fundraising
Cost £k		 Total
Funds £k		 Unrestricted
Funds £k		 Mths
Rsrvs		 Staff Volun-
teers
30/09/23£12£9£3n/an/an/an/an/a7
30/09/22£10£11£0n/an/an/an/an/a9
30/09/21£6£8£-2n/an/an/an/an/a0
30/09/20£6£8£-2n/an/an/an/an/a0
30/09/19£14£9£4n/an/an/an/an/a2
30/09/18£16£28£-12£0£0£0n/a00
30/09/17£24£31£-8£0£0£0n/a00
30/09/16£15£15£0£0£0£0n/a00
30/09/15£10£12£-1£0£0£0n/a00
30/09/14£11£9£1£0£0£0n/a00
30/09/13£13£11£2£0£0£0n/a00
30/09/12£31£21£10£0£0£0n/a00
30/09/11£31£40£-9£0£0£0n/a00
30/09/10£17£15£1£0£0£0n/a00
30/09/09£17£16£1£0£0£0n/a00
30/09/08£25£11£14£0£0£0n/a00
30/09/07£30£28£2£0£0£0n/a00
30/09/06£24£21£3£0£0£0n/a00
30/09/05£14£12£2£0£0£0n/a00
30/09/04£13£11£2£0£0£0n/a00
Show more rows -->

Download accounts
Highest pay bracket: less than £60,000
Established: 27 years

www.stickler.org.uk

contact@stickler.org.uk

08000668273

Charity Commission for England and WalesFacebookX
UN SDGs
?
Listed activities
  • Disability
  • Education/Training
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • Services for people with disabilities
How it operates
  • Other charitable activities
  • Provides advocacy/advice/information
Where it operates
  • Ireland, Northern Ireland, Scotland, Throughout England And Wales,
Who it helps
  • Children/Young People
  • Elderly/Old People
  • Other Charities Or Voluntary Bodies
  • Other Defined Groups
  • People With Disabilities
  • The General Public/Mankind
Who works here?
  • Unknown number of employees
  • 7 volunteers

Who's supporting them? ?

We have no records of donations from grant makers.

How is it governed?

Trustees (3)
Current Trustees appointed
Gender Split

Legal constitution
  • Charity registered in England & Wales on 28/01/1997, number: 1060421
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Filing Record
20 returns made; all on time
Main office

30 Juniper Close
MAIDSTONE
Kent
ME16 0XP

Objectives

TO PROTECT AND PRESERVE HEALTH BY INFORMING THE PUBLIC OF THE DANGERS OF RETINAL DETACHMENT AND THE IMPORTANCE OF EARLY DIAGNOSIS AND TREATMENT; TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF STICKLER SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY; TO RELIEVE PERSONS SUFFERING FROM STICKLER SYNDROME AND ASSOCIATED CONDITIONS.

Defined Area of Benefit:

NOT DEFINED

Data Sources

Charity Commission for England and Wales
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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